Hello Kath

I hope you dont give up you have been a real inspiration to me I also could not have an SCT and reading that are still here 9 years later gives me a lot of hope that I can achieve something like it

Much Love Jo x

Hello Kathline

Sorry you have not been so well hope you are feeling better now I have missed you I agree about this web I also do not find it as user friendly as as the old one it was better seeing all the new posts at once

Keep well love JO X 😎

Hello Andy

welcome to the site it must have come as a big shock to you to be diagnosed with MM as it was with most of us I have never heard of it before you will find all the help and encouragement you need hear, and do look for a support group in your area they are a great help also

Kind regards Jo x 😎

Hello Bridget

I am well at the moment get PEP results on the 1st of march so fingers crossed I next go to UCH on thursday 24th Feb when will you be there.I
have a support group meeting this friday I believe we have a speaker from McMillan so should be interesting I will let you know all about it I am so glad your pain is getting a bit better…[Read more]

Hello Kay

good luck with the CDT it really worked for me I also had a rash we diScovered it was the Anti B they put me on ( CIPROFLOXIN)it looked like a german measles rash

Keep Well love jO X:-D

hELLO Gaye

so sorry you are feeling so unwell at the moment you have every rite to feel sorry for yourself I hope the RT treatment goes well and it will soon help with your pain

Love JO XXX

Hello Bridget

I did laugh I could imagine Dai conducting us in a chior I would be the one he would tap on the head a say mime it. Dex Dex Dex we should write a song perhaps Dai could, I know what you mean about fat face I am only on a small dose but still have a fat face! hope you feel much better soon have you had any relief from your RT…[Read more]

Hi Gill

I got two out of three pepperpot skull and Dexatude this word should make its way to the oxford dictinary
Love J0 x

Hello Sharon

I am sorry to hear about your spine I hope things get better soon could you please let me know what the nice guide lines are forwarn is for armed

Thank you Jo

Hello min

My name is Josephine but I only answer to Jo I live in Hatfield in Hertfordshire I retired in December 2008 aged 61 1/2 diagnosed with MM Jan 2009 went into AE after my docter sent me home with paracetamol my husband insisted I went to AE I had double pnuemonia renal failure and as it turned out MM
what a shock five months of CDT…[Read more]

HELLO angie and clara

Welcome to the site it will not halt all your worries but really helps you will find out most things here but you will definatley get support which is so important as most people have not heard of myeloma you can feel very alone David is very right about DEX so bear with it, it does get better and your mum and dad will…[Read more]

Thanks for the laugh David it cheers up the day
Love Jo 😎

Hello Min

Glad to hear Peter is feeling better now.Good news about your redundancy
when I was first diagnosed in the january Geoff wasa due to retire in the march his company let him go three months early with no loss of income or pension which was marvellous. I have the Myeloma diary it is really usful as you say, got it at the London…[Read more]

So true David do any politicians do their homework or do most just follow the party line like sheep :-/

Regards Jo

HI Min

On the continent the first line of treatment is Velcade plus DEX this means if there is any kidney damage the outcomes are much better
my consultant is Polish and he told me this
Love JO :-/

Hello Min

Glad to hear you are a bit better as for work it sounds as if it will not be for much longer good luck

Love Jo x 😀

Hello Keith

I agree with all you are saying my mp is a tory and for my sins I voted for him in opposition he worked really hard for the community so I thought I would give him a chance but now he is one of Daves boys and since he has become housing minister he tows the party line. My GP was hopeless I went to the surgery hardly able to walk and…[Read more]

Hello min
sorry peter is having such a hard time at the moment the swelling must be awful.Due to my kidney damage they had to reduce the dosage of aciclover as it was not good for the kidneys it help reduce my ankle swelling although when I stopped taking it I got shingles which was terrible so it's worth taking it.
I hope your sciatica is…[Read more]

Hi Bridget

I don't know if anyone else is worried but I am about the GP 's holding the money will they be willing to fund second and third treatments or even first expensive ones will we all be fighting the system agsin

Love jO :-S

HAPPY BIRTHDAY BRIDGET 😀 You never moan not even when you are on DEX or as i say dexitude :-/ all you ever do is give kind words and encouragement hears to the next four years and many many more

Lots of love jo x