Hello Bridget

How are you is your treatment going well are you feeeling any relief.
I had to giggle about the shoes at new years we went out I had a smart blue velvet dress so bought a pair of really nice silk blue shoes with two inch heels felt the bee's knees then sciatica struck so I had to go to town and get a cheap pair of flattys £6.99…[Read more]

Hello Min

Sorry Peter is not feeling so well I hope things get better soon, Benjamin looks lovely i Bet he is missing his walks if your leg is so bad I hope it clears up soon mine lasted for eight weeks I know what agony you are in have you thought of accupuncture it really helped me. I do hope you can get your party I am sure it will be ok…[Read more]

Hello Gaye

foot massage sounds great glad it relaxed you had one once by a chinese accupuncturist it started of ok then he sharted on the pressure points and soon had me writhing in agony no relaxation there then, felt ok after.
I know what you mean about taking DEX i found it went down better with a small glass of milk if anything can make…[Read more]

Gaye
this was so well put when I was first diagnosed I did not want to speak or see anyone I was afraid of the shutters coming down in peoples eyes when the word cancer is spoken I joined this site and it was my saviour it made me realise i was not alone I then found out my true friends and they let me know in no uncertain terms it made no…[Read more]

Hi Min

glad peters kidneys are ok mine are good and stable at the moment but i do get swollen ankles in the evening but they are ok in the morning I think it is to do with fact I have to drink at least two litres a day which is really hard for me at the start it was three litres i felt like I was drowning, I really hope Peter responds to…[Read more]

Hello Min

Managed to do it took a picture from my lap top camera hadn't thought of that, its not very good but you can now at least see my moon face caused by the steriods I am on at the moment to help my damaged kidneys, are Peters kidneys ok now mine are working at about 40% I luckily managed to avoid dialysis but only by the skin of my teeth…[Read more]

Good Morning Kay
ouch another painful bone marrow I have had three all painful because I did not realise you could have some sort of sedative will ask next time
any way your consultant may not be right life is full of supprises lets hope its one of those times
Good luck regards Jo 🙂

This is realyy clever where do you find these little snippets to amuse us

Love Jo 🙂

Hello John
welcome to this site I dont expect anybody really wants to join but now you are here you will find much help and support and you will learn much about the condition more than most clinics will tell you.
Good luck with any future treatment
Regards Jo 😎

hi i tried to do that but it didnt work i think i need to use another image
but i cannot remember how to do it

Best wishes jo

hi Min

tried that it didn't work I shall just have to get another image if I can remember how to do it i am not very good with technology.
I have had sciatica for the last six weeks( agony )I have had some relief I went to an accupunture clinic it really helped with the pain thanks for trying to help me hope you feel better soon
Love Jo x

Hi min

I have tried several times to do my photo it always comes out blurred i must br doing something wrong but I dont know what :-S
Regards JO

Hi Min

Fingers crossed, retirement i can really recommed it this will be time for you to do what you want most of the time, if you are like i was working full time for most of my life its a return to freedom

Good luck Jo 🙂

Hi Tom glad you are doing well 13 months is great:-) I am not so keen on this new web site:-/ as i found the other site easier as you could see all the posts at the same time being a computer numpty this was much better for me I also dont seem to get a clear picture on either:-(
Best Regards Jo >:-)

Hello Bridget

Will power whats that, mine was last seen disapearing over the hill fast.
Since I have been on steriods I look like a barrel on legs put me in a tutu and I could join the elephant circus. Its not chocalate for me as I am not supposed to have it its nuts which are my favourite snack never really thought of them as fattening but I…[Read more]

Hello Ron

welcome to the site I know you will find all the help and advise you need here, I did. I was diagnosed two years ago and one of the first treatments I had was seven units of blood as I was so anaemic this was partly due to the fact my kidneys had failed I continued to have two units every month for at least six months it really helped…[Read more]

Hello Jean
A new grandaughter how wonderful congratulations

Love Jo 😀

Hello Bridget

So glad to heard they have arrenged your RT treastment so quickly it must be so awful for you to be constantly in pain (all of you ) it must be much easier to cope without it, its a pity you cannot stay at Uch rather than travelling but I expect you may feel more confortable at home. fingers crossed for the revlimid I am sure you…[Read more]

Hello Michelle

hope mum is ok with the infusion I have had pamidrinate for the last eighteen months once a month it made my bones ache at first but after a while I have felt no effects at all I have mine over an hour and a half once a month hope your mum keeps well
Love JO:-D

Hello Keith

Sorry the monster is back we are all waiting for this dreaded phone call
I dont suppose its ever as bad as the first time we are told it just as if there is a ticking time bomb in us and we just dont know when its going to go off really good luck with the next lot of treatment lets hope it gives you a good long remmission
Keep…[Read more]