hi Dia
thanks for noticeing me I had 3years 6months remission from CDT so i didnt do too badly my PP were only 9 they usually dont start treatment until you get to 30 but i was creating heavy light chains again which destroyed my kidneys in the first place so they started early the regime is not to bad
20mgs of dex and 200mgs of cyclo day one…[Read more]

Hi Pat

had my second dose today app at 1 0'clock got out of the hospital at 4.30!!
my dex is 20mgs two days running and 200mgs of cyclo on the first day having my treatment sub Q only takes a minute to get the injection I wore my very bright pink jumper today very loud but fun:-P having a colour tomorrow hope my hair wont fall out:-(
Love Jo

Hi Pat
sorry you are not too good lets hoe things soon get better I am just starting vcd had one lot i am having it once a week sub Q and a reduced dose of DEX and CYCLO because of my kidneys i expect we will be sharing experiences try and keep well love Jo xx

wonderful news Mavis

lets hope ou get a long remission I have had 3yrs 6 after CDT just started VCD rthe MM is not to bad but i am creating heavy light chains which destroyed my kidneys in the first place so they are starting early
God bless Jo x

Kerry just let it out ot must be so hard for you to see Melvin suffer so much and the children must be suffering to not knowing what will happen to their belooved dad you sound a strong person so i am sure you will get through this
Love AND A (((HUG))
jO

Hi Andy

glad your readings are a bit better hopefully you will find a match so you will be able to go ahead with your SCT
kEEP WELL
Love Jo

Hi NETTIE
I have been swimming a lot at my local pool go early in the morning before all the kids get in got a throuat infection once I thought it could have came from the pool but not sure just try not to get water in your mouth its a bit unconfortable but I do breast stroke with my head out of the waater
Love Jo:-P

Hi Michael
sorry to hear about Jo same name as me I had cdt when first daignosed in jan 2009 could not have SCT due to renal failure it actually worked for me I was in full remission until the beginning of this year my PP's are still very low but my light chains are rising so due to my damaged kidneys I will have to start Velcade sooner than most…[Read more]

Hello Kerry

So sorry to hear about melvin what a shock for you both most of us here are over 50 so I can imagine how heart breaking it is to be diagnose under 40 you must be wondering what next we here are all at different stages and we dont give up i know you will give Melvin strength to get through this
Good luck Jo

Hi Helen
gosh whooping cough is something you expect to get when a child it shows how vunerable we are even to childhood illness I had shingles and thought that if you had had chicken pox you couldnt get it how wrong was I its true whooping cough is on the increase I dont know why because I havent heard about it for years now hope you feel better…[Read more]

Hi Pat
Try Mcmillan they gave me a form and the Mcmillan nurse in the hospital signed it for me you doc will probably sign yours as he suggested it its a real help if if you are feeling unwell a lot of places charge in carparks but you usually get a space you can also park on yellow lines upto 3 hours good luck
Love Jo x

Hi Keith

glad you are feeling better at the moment bit of a nuisence out the bloods have you thought about a transfusion i have had a few they do make you feel a bit better dont think it will effect sugars or any thing it might buck you up for the next round of treatment stay well
love Jo x

hello Dia

I am so glad you are back with us wow! you have been through the mill but I believe you are a surviver thinking off you:-)
Love Jo x

hi Vicki
glad you laughed at the legging or as my husband says "that is just not a good look" went to see Henrey Blofelt the cricket commentator the other night he had us rolling with laughter it certainly does you good
Love Jo x

Hello Pat
sorry you have not been well bit of a b+++gger glad you are feeling a bit better now co codamol are good but they may make you constipated so back on the syrup of figs!!!! if its not one end its the other I have know people to defer treatment to go on holiday so i bet its possible I dont think you are a wimp all these treatment are…[Read more]

Hello Jean
like the new photo of you and Frank how is he doing at the moment any news about his SCT is it soon will mail you soon
love Jo x

Hello Emma

what a terrible shock for you all I dont think anyone really gets over it we just learn to live with it the trearments now are so much better than even 10 years ago with new ones coming on every couple of years you will get some really good advice here and the myeloma help line is a god send they seem to be able to answer most…[Read more]

HI Andy
glad you enjoyed your hols I bet you got the cold from the airplane that often happens to me I have taken to putting vaseline in nose it seems to form a barrier well thats one year over I am sure you will kick the devil into touch we must all stay strong and stubborn;-)
Keep well
Jo x

Good Afternoon Pat

Sorry you feel pants bet its the DEX it turned me into a monster I am generally cheerful but not while on DEX dexitude is the word for it hope you will feel better soon I bought a fetching new top today in mixed autumn colours was temped by these skinny leggings but my husband says i look like a barrel on legs:-P so went for…[Read more]

Dear Eve and Slim

thats wonderful news I agree never give up I feel there is always something round the corner Enjoy New Zealand and the grandchildren so there is light at the end of the tunnel long may it last dont forget to dip in and from time to time it will be nice to hear from you.
As for scrabble i play my 10 year old grandson he…[Read more]