[BADGERParticipant]

Hi Tina
hope your journy is a good one I struggled mostly with the dex and had mood swings and found I could not sleep very well I took dEX with yogurt which made it easier to swallow I managed to take 100mgs of thalidamide for a year after CDT until my feet got red hot so I had to stop good luck
And keep well:-)
Regards Jo x

[BADGERParticipant]

Dear Sally

Welcome to this web site it must have been a big shock when you relapsed
I think its something we are all waiting for it feels like the sword of damacles hanging over me and I know I will be still shocked when it happens
because I think we just hope it will stay away I have not been on Velcade but I expect that will be my next treatment Good luck
Regards Jo x

[BADGERParticipant]

Hi Trisha

try MIA insurance I have used them a couple of times my insurance is a bit higher than Helen as I also have Chronic renal failure due to MM Mia seem to insure you if you have the Doc's permission to travel their number is
01268 783383 you could get a couple of quotes
Regards Jo x

[BADGERParticipant]

Hello Stan
I am sorry your partner is so unwell there is a simple blood test for MM so your partner should ask for one Pep test is a good indicater of MM it measures the paraprotien in the blood which is one of the major indicators for the disease
Regards Jo

[BADGERParticipant]

Hello Mavis

I really glad you are feeling a bit better and more mobile lets hope this continues
God bless
Love Jo x

[BADGERParticipant]

Hello Mari

glad Stephen is doing well I know my hospital Lister in Stevenage is not licenced but I have regular visits to UCH and they do so lets hope its soon run out all over the country
Regards Jo x

[BADGERParticipant]

Hello Sue

I have been in touch with Bridget and she is not well with a bad chest infection I am sure we all wish that she will be better soon
Love Jo x

[BADGERParticipant]

hello Jean

sorry Frank is having trouble white cells and neutrophils are all to do with fighting infection it looks like Franks white cells are to low so the doctor is worried about infection he may be brewing a cold. I think 8 weeks is much to long to wait for a scan that needs hurrying up, when you go to spain you will have to try and keep Frank from infection I use first defense on the plane to try and avoid colds we are going to Skiathos on the 4th of may I hope you can get away and have a lovely time some sun will do us all good:-) 😎
Love Jo xxx

[BADGERParticipant]

hi Teds
sounds interesting I hav'nt got a kindle I wonder if it could be down loaded on line
Hope you are keeping well:-)
Regards JO

[BADGERParticipant]

Hello Tony
sorry you have had to join but welcome You will find much help and advice here as well as moral support the myeloma help line is invaaluable they are able to answer most of your questions good luck with your journey
Regards Jo x

[BADGERParticipant]

Hello Eve

I have the all clear this month to go on holiday so we have booked up an 11 night holiday on Skiathos we go on the 4th of may really looking forward to it
Regards Jo x

[BADGERParticipant]

Hello Eve

how are things progressing for slim will his SCT be soon and are you ok its been a long long year for you both perhaps now you can look forward to more holidays in the camper hope the sun keeps shineing for you regards to Slim
Love JO X

[BADGERParticipant]

Hello Mavis
so glad you are home at last that will make you feel a bit better both my daughters are doing the race for life in Bedford they are walking it, both of them have done it for the last couple of years
Well CDT i had four lots of CDT which put me into a good part remission or plateau stage when I finished that I took thalidomide 100mg for a further year until my feet started to suffer since 2010 I havn't had any further treatment since then except pemidrinate once a month hope this helps
My thoughts and prayers are with you
Love Jo x

[BADGERParticipant]

Best of luck Helen lets hope you find your way though all this paper work and it will all go smoothly for you I cannot advise you about benefits as I am retired and on a pension
Regards Jo x

[BADGERParticipant]

Hi Jet

how are you not heard from you for a while, thanks for the link

Regards Jo x

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