We had a great holiday in wales we went to all the places you said I also cannot spell them. Took our grandson up snowdon on the train the weather was good and it didnt rain all week which was such a bonus so a nice time was had by all love to slim
Love JO X8-)
glad you had a good holiday on the rhine you should have a good time in st ives we have just come back from northwales we had sunshine all week which was a real bonus as we took wet weather gear expecting it to rain
Love Jo
I hope Slim has good news on friday, I always get apprehensive every time I go to the clinic I feel like its the sword of damacles hanging over my head silly i know but thats just how it is
so glad you had a great holiday it can really buck you up you must have been glad of the sunshine as the weather has looked awful in Northern Island the last couple of weeks,Really glad Frank was on top form I had a giggle at the Mr and Mrs it must have been a good laugh:-)
we are going to conwy taking our grandson so not much rest for Geoff as they are best buddys hope we can get him on the beach for a bit but we are taking our waterproofs and there are plenty of castles which he loves , we hope to go up snowdon on the train Regards to Slim
Love JO8-)
Blimey Dia
And we thought you were on holiday, you have been through it lets hope this is the final fling for this horrid disease just before you get CR:-) ALL fingers and toes crossed. We are off the sunny Wales on monday for a week taking our grandson I will say hello to snowdon for you8-)
Take care and keep well
Love Jo x:-)
is everything going on ok with Slim at the moment I know you hd a good hospital visit but have they told you if his treatment is working yet I do hope so. Are you feeling not so stressed now i do hope so
Take care regards to Slim
love Jo
So glad to hear from you Bridget I was really worried for you I hope they soon sort out the pain and you will be back to your cheery self looking forward to you getting back on line will e.mail you when I get back from wales we are taking our grandson for a weeks holiday:-)
I will look forward to your post good luck for next week I will have to give you an answer the week after as we are taking our grandson to Wales for a week
weather forcast looks terrible but hey ho that british weather for you
sorry you are not feeling so good at the moment I hope it passes soon
how are your aches and pains from the fall, i know its good to be positive but I try but do have some down days
Keep well
love JO 🙂
Hello Scott
I see you may be taking the same route as me I chose not to have SCT as the full strength chemo could have finished my kidneys off completly. When I was diagnosed Jan 2009 I had really bad kidney failure due to MM my creatinine was 485 and I was on the verge of dialysis it is now (last reading 239 ) after CDT which I finished april 2009 I took 100mgs of thalidomide until april 2010 when i started to get bad peripheral neuropathy in my feet the only medication I take at the momement is for the kidneys if you look on the internet an american doctor James berenson talks at length about maintenance and not SCT all very interesting;-)
kind Regards Jo
Rant away we all feel like that especially when first diagnosed and on steriods! and yes there will be people who dont want to know you now but they are not worth worrying about just appreciate true friends. SCT is stem cell transplant
my kidneys were too bad and I didnt want to risk the agressive chemo which you have to have with the transpant knocking them out completly my choice
as the thought of dialysis for the rest of my life filled me with horror
you may be different a lot of peoples kidneys recover enough for transplant
Keep in touch and let us know how you get on
Regards Jo
so sorry Gordons SCT didn,t work it must have been a hammer blow on the positive side new drugs are coming on line all the time, look at Mins post good old CDT is working for Peter second time around so don't lose hope
Love Jo
thanks I am still doing ok last paraprotien in a band to fient to measure so onwards and upwards I always have someone looking over my shoulder Geoff my husband he TRIES!!! to keep me in line
Lots of love Jo8-)
