[BADGERParticipant]

Hi Maureen
I had 5 cycles of CDT then a year on maint Thalidomide 100mgs thats what did the trick after this treatment they are thinking of putting me on 50mgs as a maint again we will see
Love Jo x

[BADGERParticipant]

HI Eve

I hope he likes it I am sure he will it will give him a bit of freedom on his own I dont have many complaints about my Hospital Lister in Stevenage herts except the long wait on some visits they are often short of staff so i put up with it they are all so nice
Love Jo x

[BADGERParticipant]

Hi Maureen
sorry you didnt get to wimbeldon I have been watching some on the TV has Ian had a full course of CDT it worked for me and I got just over 3 1/2 years remission I relapsed last nov and have been on Velcade it really is working but i did have two spells in hospital with pneumonia but thats a bit of my own fault as i refuse to hide away and carry on with life as best i can so i am a bit exposed to bugs just had a week in swanage with my daughter and grandson came home a bit tired but we had a good time
Take care and i hope Ian feels better soon
Love Jo x

[BADGERParticipant]

hello Dia
sorry you had a hiccup and things settle down now i found in the begining i needed blood tranfusions every other week as my Hb was knocked back by the treatment so they put me on EPO which has solved the problem blood now hover at 95 so ok my regime was the same as yours except DEX days are 20mgs from this week I go on the once a fortnight after cycle 6 which will give me a bit of a break which is good my PP where un measurable at last check so i hope i get a good remission again
Keep well;-)
Love Jo x

[BADGERParticipant]

Hi Vicki
perhaps colins blood count is a bit low that can make you tired but it could be post operation blues i know its 6 months but the body takes a battering with an SCT he may be a bit depressed and not realise it i hope he feels better soon
Love Jo x

[BADGERParticipant]

Hi eve

sorry to hear about Slims leg he should listen to you as i bet you know as much as some docters by now this is all you need more worry i hope he makes a speedy recovery and you can get him back on track buggys are great i was speaking to a lady who lost her leg from cancer and she had an all terrain one marvellous got her almost any where they had a ramp to get it in a van they had we have just come back from swanage had a week of good weather so that was a bonus
Tke care love jo x

[BADGERParticipant]

hi Maureen
happy 60th i was away when you had you your birthday I will never forget my 60th I had it in the Amazon jungle in a native camp they baked me a jungle cake wonderful as i was diagnosed the following year so no more adventures for me
Love Jo x

[BADGERParticipant]

great result Dia:-) 😀 😛

I am doing really well on velcade PP'S 0 I have it once a week for four weeks then a week off mine is SUB CUT which is marvellous I am on holiday next week then UCH what me togo on a two weekly regime one week on one week off this will take me to 9 cycles i hope this gives me another good remission lets hope its a wonder drug for us
Love Jo x

[BADGERParticipant]

marvellous wendy

I am so glad you feel you can do it as i say never give up it would mean MM has beaten us i think you are great and give us all hope
Love Jo x

[BADGERParticipant]

Hi Eve

all goes well with velcade but UCH have decided after next week I will be put on an every other week regime do a 9 cycle regime I only have it once a week and this has suied me i have it sub cut so after long waits for blood tests two mins and out I am now on EPO so no cycle races for me!! as the treatment was destroying my Hb and I was needing blood transfusions every two weeks but EPO has solved that apart with the glich of pneumonia I have kept fairly well so we will be going to Dorset for a week on my week off yippee!! havn't be away for agaes I hope Slim will be good on Revlimid I know a couple of people who are doing really well on it
Regards Jo x

[BADGERParticipant]

Hi Terry

sorry about your PP'S it must have been a big disappointment and all you need is a rude consultant dont you just love em!! I hope you get a better rception at Barts I am on Velcade and seem to be doing ok I have a polish consultant he is a lovely man just like father christmas without a beard
Keep well Jo

de

[BADGERParticipant]

Gosh Eve

you and Slim have been though all this before it must seem like you are always going into battle at your hospital this is bordering on the rediculous I dont suppose you can change hospitals even if it is a journey
it might be better for you I am thinking of you both i just hope things get better
Love Jo x

[BADGERParticipant]

hi Wendy
sorry you had to go to hodpital comes as a bit of a shock especially as you have been well all this time hope this is just a glich and you will be back on track soon
Kind Regards Jo

[BADGERParticipant]

Tom
this is wonderful news and only what you diserve you cheer everyone up regardless of how you are feeling lets hope its the same for Elaine
BIG BIG HUG 😛
From Jo xxxxxxx

[BADGERParticipant]

Hi Eve

Sorry to hear Slim has to go on revlimid if it suits him it should be good there is a lady in my Myeloma group who has been 5 years clear on it she had to fight to get it it the first place Our MP Grant Schapps managed to secure oit for her luckly it on general perscription now I do hope you can use your motor home this summer even if its just in the Uk
Hope you both keep well
Regards Jo x

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