BellaRS

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  • #89236

    BellaRS
    Participant

    Thanks Geoff! (and Tom for positive vibes as always…)

    I can't find anything in Bangor but Liverpool looks good. However, husband is not keen to move so will have think bit more before I decide whether to apply.

    Bella

    #84042

    BellaRS
    Participant

    hi and welcome!

    I'm also asymptomatic/smouldering (though at first they labelled me MGUS). I did consider curcumin, but the thought of that many pills extra was a bit much – I've got RA too and there are plenty of pills a day for that. Though at the moment my pp has dropped significantly and I think it is because of Humira (anti-TNF drug against RA). So I'm very pleased!

    Come and say hello to the under 50's group here and we also have another webforum (Scotty can send you an invite if you wish to join – note that the by invitation only is not to keep people out but to keep the "expressive" language many of us use in… 🙂

    Bella

    #88650

    BellaRS
    Participant

    …but a bush full of lady birds

    Bella xxx

    #96488

    BellaRS
    Participant

    Hi!

    Like Debs I'm a smoldering kind a girl… I've looked at curcumin but am not sure whether the potential "down" effect it has been reported to have on paraproteins is a real one or not. I've got rheumatoid arthritis (just to add to my pleasures!) and after recently starting Humira (a biological anti-TNF drug) my paraproteins sank to the floor. It feels great when that happens but at the same time, I'm not sure if it changes my MM prospects at all. Maybe it will just make it harder to spot if/when my paraproteins have gone too high and I might need treatment. But on the other hand, if what causes organ damage are the paraproteins and their kappa/lamba friends (note that I know nothing about this!!!), then surely anything that downs the level of paraprotein must be good for the body.

    Bella

    #88502

    BellaRS
    Participant

    I like it! (Though when I just reply to a topic, it asks me for a subject which is confusing since the subject is the same…)

    Bella

Viewing 5 posts - 16 through 20 (of 20 total)