It's been a few weeks since I have posted on here.The days seem to run into one another! I am on week 5 now with the Thalidomide dose doubled when I saw my Consultant. Having said it was OK two weeks ago, I'm now finding that my body responses to the steroid 'dump day's are becoming more challenging and lasting longer, possibly as a result of the cumulative effect of the chemo or the combined treatment? Hopefully it's working and I'm just becoming more tired so not able to tackle it quite as easily as at the beginning .It's definitely hard work whatever the reason! It's also difficult to explain to those who haven't been through it as the responses change throughout the day. My grandchildren are a bit puzzled by their Nanni not having any energy (but they are only little)-it must be very confusing for them.
We have a tentative plan of SCT March/April depending on response to the four cycles,and assuming MRI scans show some improvement in my 'holey bones' !
On a couple of positive notes – our eldest son has signed up to do the Ironman, Wales in Tenby next September for MyelomaUK. That's a massive physical undertaking and he is in training already. My aim is to be well enough to be there to cheer him on. Plus my daughter is coming over from NZ with her husband and two boys (aged 22 months and 11weeks) for a four week stay over Christmas -so reasons to be cheerful as Ian Drury used to sing!
Will try to catch up soon.
Carol
