Hi everyone

More love to you all who are struggling so bravely.

Thank you Min for that lovely explanation of grief. I will certainly share it with others. My neighbour was only asking me the other week why she didn't feel better, but worse, having lost her husband 18 months ago.

It certainly takes more time than most people who haven't…[Read more]

Hi Min

You do the brain training and have a laugh. I did one on my friend's nintendo last week. I have a brain age of 59 – not bad for a 66 year old! But on one of the tests you had to remember a list of four letter words (all clean of course!)nd I could only remember three. I thought I would get a scor of about a hundred!!!

And David,…[Read more]

Hi Jean

I have just caught up with these posts. Sorry Frank is having such a bad time and you are having such a lot of worry.

I do hope the MRI doesn't throw up anything sinister. When you describe the pain around his ribs, it is very like the pain I get from time to time. sometimes, like Frank I can hardly move with it. I mentioned it…[Read more]

Hi Everyone
I have already bought mine could not tell you if they are eco friendly ,Mine will be set of on a sea shore,and don,t worry already thought of coast guard,I use to work for them years ago as a voluntary coastguard,

Christmas night seems ideal, to remember people we have loved and lost,and raise a glass,and be grateful that we have…[Read more]

Hi Jean
Just seen and read your post,sorry Franks going through a bad time.
I wonder how the doctor can say a crushed vertebrae is nothing to do with Myeloma,a lot of people including Slim started with a crushed or cracked vertebrae!!!!!!!
Hope he has some strong pain relieve to get him through Christmas and Wedding,it,s a bit of a bummer for…[Read more]

Hi Craig and Etta

Glad to see you have got home,as Tom said enjoy that bed,wish Slim had one,he sleeps in his chair more than his bed,says his legs feel far more comfortable in chair.:-)

Just being home is going to lift Etta,nothing worst than hospitals to make you feel depressed,looking back Slim had a phase of anxiety,it will pass:-)
If…[Read more]

Hi Min and Sarah the woman who described grieving so well must be an amazing person to be able to put it so well Although I havent lost a partner through death about six years ago Jeff had a mid-life crisis and left for a floozy with false everything and a sports car I can honestly say my heart broke and I was grieving for my life as it had…[Read more]

Hi Jean I know exactly what you mean when you say Frank would go ballistic if he thought you were dicussing him because Jeff is just the same!! There have been a few occasions when I have spoken to a friend who then innocently repeated something very trivial boy was I in the doghouse ! Still thats the way they are and we love them anyway I hope…[Read more]

I think that person explained it so well,some one once told me never refuse an invite or opportunity,keep opening the doors in front of you,your past will always follow you through the door.
I have a friend who,s husband is planning his funeral,I have known him for 30 years,he knows he has not got a lot of time,and I have found out,so much in one…[Read more]

Hi Jean when will Frank realise he is not sparing you the worry by keeping things from you At least he did phone the hospital though It sounds as if it could be his ribs so getting checked out is very wise One thing I have learnt in the last 5 years is mever to ignore significant pain always tell someone. I hope itt is nothing too serious and he…[Read more]

I want to send special greetings to all of you who have lost loved ones to the dreaded MM this year. It will be very sad, especially on Christmas day, but I am sure i won't be the only one sending up a prayer for all my cyber friends in this sad situatiion.

May you find that strength that you previously generously and lovingly spent on your…[Read more]

I agree Glyn! When I read the first article Min directed us too I wasn't too impressed to read the stark survival expectations.

Let's all prove them wrong, and, David, who knows what is round the corner.

Thank you Ellen for looking out for us.

Love and long remissions to all my cyber friends on site.

Mavis xxxx

Hi Eve

Envy Slim his tan even if drug induced. I am looking decidedly pastey!!

Hope his tooth isn't too painful and that you get it sorted out soon. Just when you thought you could have a break from the medics!!

Lots of love to you both.

Mavis

Hi Mari
How is Steve getting on with the Velcade!!!!!!!

Hi Tom
It is the tooth Tom,lol
If he had his way,it would be straight forward job,see dentist,don,t bother with injection,tooth out.lol:-0
I am the coward in the family:-(
When we listed the drugs and complications like his lungs,for the dentist,It surprised me how much there was to be written down,I could not equate it to Slim because he is…[Read more]

Hi Craig poor Etta really is having a rought time no wonder she feels depressed The depression could be caused in part by all the medication combined with all the info she is trying to take on board VHave you spoken to her specialist nurse? They are there for you as well as Etta but could I suggest you have a chat with them about her depression,…[Read more]

Hi Gary
Forgot to mention,have you looked in related conditions,there is a few younger people on there who have gone through the same thing as your sister,
Eve

Hi Craig
This is were you have to be strong,when Slim was in ITU,he was saying and seeing all sought of things,does not remember anything,In fact a lot of his short term memory has gone,but that,s not important,he is still here,and although not his old self,I am grateful.
Low blood pressure is my first marker with Slim,even before other symptoms…[Read more]

Hi All
Well if there is a link Slims must be from his Slavakien side,and we have no history there.
I do not know if I am bitter,but Slims mum died last year age 84,she was not a very nice person,so it does seem a little unfair,but that sums up life sometimes.
I know we worry about our partners David, managing, worrying about what the future…[Read more]

Hi Terry
Yes they are the same thing,I use that reference,as to me it is a biopsy because it looks at cells in the bone marrow,and it is the one test they can confirm myeloma and the only way of telling what is going on inside the bones.
I agree failure is not an option,it,s important to be positive.Eve