Hi David
I think everyone judges there own life span on there parents,Slim and I were talking about it today,I said after the initial shock of being told you have Cancer,you become more acceptant,Slim answer was,he was the one with Cancer not me,and he never looked at it as a shock,his father was a soldier who died in the 2WW age 28,and Slim was…[Read more]

Hi Gary
Welcome to the site,as a carer i and others,have been standing,just were your standing and feeling the same as you,no matter what we say you are going to worry,but welcome to the roller coaster.Do not feel embarrassed,just feel glad you are not alone,and everyone on here knows how you feel.:-)

Please get your sister to join the under…[Read more]

Hi Terry
Come on just to tell you what BMB is,it,s Bone Marrow Biopsy.
Slim has to have them as other results do not show true readings and the only way to tell if Chemo is effective is by BMB,and general health.
Slims on a three week cycle of Velcade 2 weeks on one week off a combination of VCD on different days,just finished 6 cycle waiting…[Read more]

Hi Min
I read that article too.
I think it has long been accepted that we all hold the ingredients within our bodies that can be cancer related,how it multiplies to full blown cancer related illness is not known,otherwise we would have an answer to Cancer.

I would like to see more research relating to the individual person,considering how…[Read more]

Well done Debs
were did you find the energy!!I want some.I agree you should take it a bit easier,you must have worked very hard.have a good Christmas Deb.Eve

Hi Sarah
She is lovely Eve

Hi Christine!

I was diagnosed at the beginning of 2010 because of intense back pain which had been caused by 3 vertabrae collapsing at once. Since then several more vertebrae have gradually deteriorated.

They decided to do chemo then a stem cell transplant immediately to zap the MM so did not look into doing a balloon kyphoplasty initially…[Read more]

Hi Jean Tom and Min
Thank you for the advice about the tooth,Slim went to the dentist the other day,was called in and sent out to fill in forms on previous illnesses and medication.in that time 4 other patients went in as slim was filling in forms.LOL.
Went in needed tooth extracting,sent to hospital for xray ,these days they give you your own…[Read more]

Hi Glynj I have not had radiotherapy to reduce the myeloma cells as such but I have had it twice for pain relief and to shrink tumours. It was painless very quick , the first session takes about an hour to set it all up but each session afterwards was about 15mins In my case it was completely successful , especially the last time when I had…[Read more]

Hi Bridget

I'm still routing for you!!! Sorry you had such a bad experience. It does seem daft what floors us, isn't it.

Maybe your body is saying it wants a partial rest from all this toxic stuff. It sounds, by what you wrote that you are still on steroids. Whatever, I hope it is enough to keep anything more sinister at bay. Hope the…[Read more]

Hi Mari

Sorry to hear Steve has taken a dive. Glad he can be a bit philosophical about it. Folk on here seem to do well on velcade. I met one of the "Velcade Three" ladies (your name sake – Marie!) on am ambulance to Leeds last year. How grateful we need to be to those who fought the Authorities to make NHS agree to pay for it. And, to…[Read more]

Hi Sue and Michael

So sorry the Trial hasn't worked for you – you will have had such high hopes. I know you won't give up and I have read that refractory patients often respond to drugs that have worked for them earlier in their treatment. Has that been suggested. It maybe that your local Consultant with come up with something, but if not,…[Read more]

Hi Christine

Sorry to have to welcome you to this elite club!! Glad others have been able to answer your specific questions. One thing I have learnt from this site is to concentrate on what you can do, not what you can't. Now you have been diagnosed and are being treated, I'm sure that, like most of us, you will eventually find you can do…[Read more]

Hi Everyone
I have a word,that I think is a good thing on this site the word is

OPENNESS Leaving ESS
on looking at the word it looks if it is spelt wrong,may be it,s because its a word not used very often.Love Eve

Hi Sue
Do not give up,you said your self you both have been in this position before not just once,so I would agree with Bridget,Ask for second opinion.
I know it is Michael and your decision,but he would not be here today if he was not a fighter.
I wish you well what ever you both decide Love Eve

Hi Sue and Michael so sorry your platelets couldnt get back to safe levels . I hope your doctors can come up with another treatment plan very soon It goes against the grain to be told there is no futher treatment when you have gone along with all the treatment so far If your doctor cant see any other way perhaps it would be a good time to ask for…[Read more]

Thank you everyone for your good wishers.
had last Velcade today,so BMB next blood test and Zometa all before Christmas,and one tooth to be removed along the way,sounds a lot but it,s less than we have been doing.
No marathons yet Dai,sleeping for England in the day awake all night,normality will be a bonus,what,s normal:-P I think I have…[Read more]

Hi mari
So sorry to hear Steve, back on the roller coaster it is funny when you hit it again when Slim had his CTD and we went to see consultant,and he told us it had not worked in fact got worse we were both very calm,strange feeling,may be you get past the tears and anger first time you are told.

Velcade!!! its worked for Slim from 80% in…[Read more]

Hi Christine
My name is Eve and i am a carer for my husband,first let me welcome you to your journey,and to answer your question,yes there are lots of people ahead of you on this journey.
As you must know by now people react different to different chemo and also people have different damage to bones.

my husband had 2 vertebra cracked plus…[Read more]