Hi Everyone
It is lovely news at the moment my glass is half full!!!.
Slims been on zometa since February,the last six months every three weeks instead of four,he has not had many side effects from either CTD or Velcade.

This Christmas has to be better than the last,and this is the ,wonderful news he might just be able to sleep that is the…[Read more]

Hi Belles

Great news about your Mum. Here's to a good Christmas and New Year.

Best wishes.

Mavis

Many happy returns Tom!!

Here's to many more years of celebration.

Best wishes.

Mavis

Hi Eve

How good to hear some good news re Slim after such a long, difficult time. I do hope this time leads to a good major treatment holiday!!!

I went onto Zometa three months ago and apart from the shivers the first cycle I have felt really well on it.

Have a great Christmas the two of you.

Mavis

Dear Min thinking of you today on Peters birthday love Bridget xxx

Hi Eve lovely to get good news however small Enjoy love Bridget x

Hi Jenny
Good luck for today,I will not tell you not to worry,because we all do.
Hope you received the e-mail.!!!!!
Eve

Hi Sue I am glad Michael is feeling a bit better since stopping Thalidomide. I think because it is a drug which has been ferquently used and I hadnt heard many negatives other than PN I underestimated its strength. It totally knocks me out but this may be partly due to the myeloma being active as well The other aspect for me is I have had about 4…[Read more]

Hi Min
How are things going with you,walking your dogs helps i do a lot of my thinking walking my dog,in Deal there is a great bunch of dog walkers there is always someone enjoying the sea air even if it is freezing cold.:-P

When Slim came out of hospital,I was the same as you,having to tell them what equipment I required,an OT told me I would…[Read more]

Hi Gina and Linda
I know it must be hard,but as a mum,I know the last thing you mum would want is for you both to be upset,celebrate all the lovely things about your mum,The goodness and kindness that gave her two lovely daughters,I bet she never told you but she was very proud of you both,mums the word, give your mum a good send off,all my love…[Read more]

Hi Jenny
I received your e-mail but have no contact to be able to contact you,I know were you live,I do not want to put on an open e mail address on line.so may I suggest if you have the time,we meet for a coffee in town,I do walk my dog a lot on the sea front if you would like to meet up this is a good way,but if you just want to keep it to…[Read more]

Hi Jenny
I would agree with most of your comment concerning team approach,from what I can gather they have a meeting on Fridays were individual cases may or may not be decided on and then you have to fight your corner.
If you go in to my profile,you can e-mail me personally as I feel when you are dealing with individual consultants its better to…[Read more]

Hi Bridget
It did not seem a trauma at the time,more unbelievable,Slim was ready to let the whole thing go,but looking back he was already in a great deal of pain because he was wrongly diagnosed.
As I was not married to Slim at the time there was only so much I could do,his mum was a very difficult woman,she seemed to upset anybody in here…[Read more]

Hi Eve how awful for you both to have the added trauma after your mother-in-laws death.No wonder you have doubts Luckily mum arranged her funeral through Age Concern and was able to check it all out before signing up She always says its the best bargain of her life and sometimes amuses herself working out the cost of funerals now as opposed to 20…[Read more]

Hi Min what a lovely generous lady your friend was to think of sparing her husband , no wonder the church was packed. Min you should be proud of yourself for using power tools I am definitely a wimp when it comes to jobs like that! Much to Jeffs despair I am more likely to use a hammer! I am with you on the cardboard coffin though , cant really…[Read more]

Hi Mavis I do hope the snow stays away so that you can get to your grandchildren for christmas There is nothing like the seeing childrens faces on christmas morning, I bet they are just as excited as you are! All fingers and toes crossed for you In my house my husband and grandson are the tree decorators they do a much better job than I could Not…[Read more]

Hi Everyone
I like the thought of bringing loved ones home,as a child I remember my nan in the parlour,it seemed very natural as a child.

A year September Slims mum died,we had taken a funeral plan out in case we were in nz,as he is an only child we wanted all the arrangements done in case we were away costing £3000.
She was in care and a…[Read more]

Hi Min Peters service sounds lovely a true celebration of his life . I think its such a shame we dont have our loved ones at home before a funeral it is so much more personal Its no wonder we find death and grieving so hard when everything is taken out of our hands and out of sight You mentioned the grandchildren were ok with seeing Peter too ,…[Read more]

Great news Tom
Paul:-)