Hi Eve I agree planning your funeral is a good idea and makes it much more meaningful My mum has had hers planned and paid for for over 20 years now ! Age Concern ran a scheme where people over a certain age (cant remember what the age limit was) could pay a fixed price in installments, they also sent lots of helpful literature regarding…[Read more]

Good Morning Mavis thank you for your kind words It is a nuisance having to write off a whole day following the Bendamustine but I am going to discuss it at clinic and see if there is a solution No my hair is still here it would be very chilly without it! The extra pain which turned out to be a tumour showed despite low pp levels that myeloma was…[Read more]

Hi Mavis
Thank you for your reply,must admit did not realise were the money went concerning,the burial fee.
I hope your not offended with any of my comments,it is just a general observation,I seem to be hitting funerals a lot lately,at an age were you go to more funerals than weddings:-S
I do envy people who have a faith,as it must be a great…[Read more]

Hi everyone

And only three more weeks to Christmas!! I am praying for a snow free one this year as for, the first time, I am hoping to make the the journey from Yorkshire to London to spend Christmas with the grandchildren, four and 19 months. The last four years I have had Christmas services to take so haven't been able to get down. You can…[Read more]

Hi David,

I know i have been a long time answering this post. First off, I am sorry to hear about your neice. We have just had a similar experieince with one of our younger friends who just upped and died. No ryme or reason to it.

But as a Priest I have been thinking about what Eve said about funerals. I am sorry and apologise on behalf…[Read more]

Dear Gina,

A bit late, but may I also send my sincere condolences to you and the family. At least there is some comfort that your Mum hasn't to fight this dreaded disease any longer. She was very brave.

Love

Mavis x

Hi Meera

Glad you can now concentrate on strengthening your back. Some folk seem to do really well quickly. I am 14 months past my op and still need two crutches, but mine is complicated by arthritis.

One thing to be careful of is lifting. I got worse a few weeks ago when my grandsons were staying and I lifted the four year old onto my…[Read more]

Hi Debs

Sorry you are finding the Revlimid so difficult. I do wonder if a lower dose would do as well. At least, would you be able to have a break from it to enjoy Christmas with the family?

So glad you have a wonderful family.

Love Mavis x

Hi Bridget,

I have been wondering how you are. Often lift up a little prayer for you. Sorry the new treatment is having these strange side effects, but see you are coping with your usual fortitude. Have you lost your hair again this time? Not the weather for it!

How did you know the PP levels weren't accurate?

Do hope things get…[Read more]

Hi Tom

What good news! You must really long to be treatment free.

All best wishes.

Mavis

What terrific news, Tom!!

Hi Everyone
We have snow some were,according to the weather forecast,it,s not in my little corner.
I think it,s time to find the Christmas decorations!!!!
Tom I think you have survived two dish washers,because there is so much more to you,that your young bride,over looks the little hiccups.:-)LOL

I love Christmas,but it does bring home,how…[Read more]

Hi Dai beautiful words its a shame I have no sound on my laptop I would love to hear the song love Bridget x

Hi Tina yes I think it is Thalidomide thats turned me into a zombie! In the mornings I have wonky vision and frequent catnaps of less than five minutes drives me nuts Todaay and last night were write offs I felt dreadful within 2 hours of Bendamustine and just had to sleep through it , the headache is unbearable , its now about midnight and I am…[Read more]

Happy Birthday Toms Stem Cells ! Did Elaine bake them a cake Tom? Heres to many more birthdays for them love Bridget x

I am glad you seem to have got some benefit from the session and are planning towards the next one, Roz.
Writing it all out is a way I often get to grip with things as it seems to help things fall into place.
Sending you cyberhugs {{{{{Roz}}}}} and my love.

Eliz
XX
X

Hi Vicky

Hang on in there for your Dad. At least he is the right side of SCT and, we hope and pray, looking towards a long remission. Let's hope he is over the worse by Christmas and can get a bit of an appitite for his Christmas dinner.

Best wishes to all the family at this very difficult time.

Mavis

Hi Shirley

I share others' disappointment at your breathing complications. Do hope things improve as time passes and that you can really enjoy the Christmas period.

I admire your determination it is sure to pay off in a general improvement.

Love

Mavis

Hi Carol

So glad to read your good news that CDT is having such a good response. What a good thought to take into the Christmas period. Do have a wonderful time with your NZ daughter and the rest of the family. SCT is for another day!

Love.

Mavis

Hi Claudette
I am so glad you posted to Chrissie,and I am so glad I read your post,one because I hope your post gives Chrissie some strength,and two you have made me realise once Slims not on the trials any more we will be able to travel again in our campervan,go back to are way of life.I know I should just be grateful that he is still here ,but…[Read more]