Hi Bridget
Glad the treatment is not to harsh on you,how many cycles will you do before you have test to see if its working????
I agree with you about the blood test,the only thing that convincers us now is BMB,Slims blood results have always been good,and kappa lightchains do not show true readings. Slim does not mind BMB just finds it a little…[Read more]

Hi Shirley
Glad to hear you are managing to get out,have they given you a portable one,it makes all the difference being able to move about,out of the 4 walls.I have seen people on planes with the portable tanks,so there will be no stopping you soon.8-)

You sounded if you enjoyed your Christmas outing,turkey and all the trimmings?????.We do…[Read more]

Hi Shirley sorry I must have missed your post till now Your christmas dinner sounds great and its always nice to forget about mm for a while. I am so glad you are starting to feel better but as Roz says dont overdo things , mind you it sounds as though Stephen will make sure you dont Will you need oxygen permanently now ? Or will your lungs…[Read more]

Hi Helen yes it was a bit confusing and spooky but later I saw the funny side ! It will be a while before I know if it is working, I have to rely on bmb and mri scans together with any physical symptoms such as pain because I am now a non-secretorBecause of my own experience ( initially my pp results were accurate) I am always a little uneasy…[Read more]

Hi Amelie sorry if I was over generalising I did remember John is your friend but I was just giving the patients perspective. He certainly is a very active man and his mum too , obviously good genes in their family ! I am glad you can come on here for answers to some of your questions but it is hard to be specific when we each have our own myeloma…[Read more]

Hi only me I really feel for you its horrible watching our parents go through it It is not really a case of someone being able to give you a time table as to when your dad will feel better as everyone is different but in a couple of weeks time you will look back and be surprised how much better he is Just take it one day at a time, I know you…[Read more]

Hi Jean what I didnt say is I could not have got through the last five years without Jeffs support The thing about not telling you everything might be male pride but come to think of it there are times I dont mention little niggles. I really feel for you Jean as now my mum is very frail I feel totally useless but even with her I try and let her…[Read more]

Hi Meera great to hear life is getting better for you now. I admire your strength especially having a toddler to look after as well , but its a lovely age though everything is new Heres hoping you get your energy back up quickly just remember to allow your body time to rest when you need to Good luxk love Bridget x

Hi Amelie and Jean I was just thinking how hard it must be worrying about someone you care about but I thought it might help to hear the other side, the patients side It is a tricky one but I would not want Jeff to be hovering over me all the time .I already feel pretty useless because of all the things I can no longer do so I would feel even…[Read more]

Hi Helen and Sue thankyou for asking. I am still struggling with the tiredness which I assume is Thalidomide Sometimes its scary , the other night I dozed off on the sofa woke and went to get a drink in the kitchen when I looked at the clock I realised I had fallen asleep standing up for an hour in the middle of the kitchen!! Friday and Saturday…[Read more]

Linda and Gina, I was so sorry to read of your Mum's passing.

Sending my condolences to you and your family at this difficult time.

Elizabeth
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Hugs {{{{{Roz}}}}}

I hope your appointment the other day went well for you.

Eliz
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Hi Tom he is sooooo gorgeous!! a real cutie and I like the idea of grandads cuddling chair love Bridget x

Tom
What a lovely photo,that,s what it,s all about kids,must admit I enjoy it more with the grand children,I think when it,s your own children you so busy running yourself ragged,you get tired before Christmas comes.
Have started shopping for Christmas so getting in the mood the sun is still shining on our little part of Kent8-)Love Eve

Dear Gina and Sister
So sorry,even when it comes and you have prepared yourself for the worst it still comes as a blow,you have a lot of good memories to treasure,and i am so glad you got your mum home to die,that in it,s self must be a great comfort to you both.All my love Eve

So pleased for you Carol it must be like father christmas delivering a present early,:-)
Take it easy and look after yourself and enjoy this moment love Eve

Hi Carol thats wonderful news!! No wonder you are walking around with a big grin and how nice of your consultant to phone you with good news Your sons question about Dex day really made me smile, it just shows how much impact Dex has on our families as well I am crossing fingers and toes that next weeks results will be more good news for you…[Read more]

Hi Chrissie
I stand by what I said last time involve your daughter-in law,she just might turn out to be the daughter you never had,you will not know unless you give it a try,no one can manage on there own,take my word for it,I am very much an independent b—-r,but my son-in-laws came up trumps.
Get SKYPE I talk to my daughter in nz all the…[Read more]

Hi Debs if I remember right there were a few occasions when I felt achey on Rev, this was early in treatment and didnt last.As for colds I didnt have constant colds but I was constantly full of snot !! Classy! It actually drove me nutsand as there was nothing to be done about it I just got used to it Hope your aches dont last long love Bridget x

Hi Vicki be prepared for your dads appetite being changeable as most people find their taste buds are affected. So lots of little snacks that are easy to eat , individual pots of jelly , small portions of cheese small tins of fruit with a ring pull Your dad will be able to tell you what he fancies! Also some soothing wipes to use instead of…[Read more]