Dear Gina I am so sorry to hear your mum has passed away but you must be relieved to know she wasnt in pain Your mum must have felt so loved surrounded by her lovely family , there is no greater gift Take care of yourselves and hold on to all the wonderful memories you have love Bridget x

Hi Min
The nurses are very good and never seem to stop,I asked about the strike today and the answer was no we cannot strike!!!!!!
I also asked how long they would have to work for there pensions all of them said to 68 years old!!!!!!
I think at the age of 68 working in a job like that they would not survive it without making many errors.

My…[Read more]

Well Min this is the time to find out!!!!you do not know what you can do until you try.!!!!
Dishwasher!!!! for a present,who was that for,any thing to get out of standing at the sink!!! my my Tom hang your head in shame,It,s nearly as bad as my hair removal gadget,its taken him years to live that one down LOL Eve

Hi Dai
The cost for Slim is topping £3000 as now in 8th month,but if you compare that he was in ITU for 10 days at a cost of £2000 per day its a no brainer.
Slims history is grandmother plus mother died of pulmonary embolism,his mother a year September age 85.
I have had some response to my complaint,went for start of 6 cycle today and H…[Read more]

Hi Everyone

Poor Slim,that,s what I hear all the time Tom,i always seem to come out the baddy,I just reckon he does not know how lucky he is being married to me!!!!!
but there again he can not remember it!!!! LOL.
the other day he asked to see the photo,s so my daughter showed him,and for some reason he thought he was standing up(we got…[Read more]

Hi Helen

Slims is a long story,so will keep it short he was on CTD myeloma trials, and three months on,after going to A&E on Easter Saturday and sent home,Emergency admission on Easter Monday 10 ITU with Septic Pneumonia and 22 over all in hospital.
he stared the trials again 2 weeks after leaving hospital,did 6 cycles only to find Myeloma had…[Read more]

Hi Chelle
We all have days like that,because you get desperate for something to work, I must admit to being a pill popper ,mainly to keep my emotions under control,It cannot help your husband to see you so upset,so my advice is go and see your doctor,get some help,because you have to be the strong one at this point in time.
I am sure other…[Read more]

Hi Helen
It does seem worrying at first,but as soon as you mum starts the injections she will improve.
Slim had a mass of blood clots in lungs,no one realised as he did not get out of breath,plus holes from damage with pneumonia.He has been injecting himself for over 6 months now and we expect this to continue for some time.

If you put a word…[Read more]

Eve have you thought of attacking Slims eyebrows when he is asleep ? That would be soooo funny , but a bit cruel I suppose! Having lost my hair 3 times now I can honestly say it doesnt bother me anymore Mind you my eyelashes and eyebrows always stay which helps, but being a baldy is quite liberating Sinead has gone back to her shaved head now too…[Read more]

Hi Jean I am glad you posted this because although I love Christmas I just havent got started this year, maybe I will get moving now ! Your family Christmas sounds wonderful, you will have a great time even if it is exhausting. Sarah I am so glad your family are all going to be with you too it will help I am sure My mother-in-law has invited…[Read more]

Hi Sarah
I live about 40 min from you,and Deal is frost free,on are way to Canterbury this morning you could see frost in the small villages low down of the road,but otherwise this little corner of England tends to have French weather.

I am glad you are going to have all the family,its so important the first year,if your worried about the out…[Read more]

Hi Only me
Just to try and give you a little bit of support,i cannot help you as Slim has not had SCT,but am posting to say people who have been in your mums position,say it,s worth it in the end so hang in there,this post should take it back to top and more people might see it and reply to you.
Good Luck Eve

Hi Everyone
Well last night I did it, could not look at the moth eaten man any longer,so decided to get my scissors out,he moaned all the way through it,told him he was lucky I did not get the dog clippers out:-P
Have cut Slims hair very short to give it more body,he tells me,when he was a marine he never had it so short,think he is telling…[Read more]

Hi Carol
That,s wonderful news about your family,very hard on your daughter to make that trip,but she is so far away and the worry must be awful.:-S
My daughter could not get over how Slim looked so ill!!! but saying that has now put on 1st 8lb and looks so much better has his bad days when he tries to do to much,:-( but is OKish.
When Slim had…[Read more]

Hi Jean
It sounds if you are going to have a wonderful long Christmas,make the most of it,as the family get bigger they start to scatter,so make sure you have a wonderful Christmas.

The weather here is beautiful,as long as the sun is shining ,we go for at least 2 walks a day having the dog,and for the end of November it is wonderful.

I have…[Read more]

Hi Jo

I too am delighted at your news. I am roooting for much more than 3 years partial remission for you.

Love

Mavis x

Hi only me

Sorry, can't answer the question about SCT, but wanted to send my best wishes to your Mum – she is having a rough time. From what I hear from others, the end to these horrible reactions do come to an end.

Hang in there – good job your Mum has you fighting for her.

Love to you both.

Mavis

Hi Helen

It's strange isn't it! Because of the various side effects of treatment, in your case hair loss, we wish the months away – it's hard isn't it. I do hope the Revlimid maintenance works for you and the side effects diminish. I guess if not you can ask for a lower dose. You have already put up with so much.

Hairs to the…[Read more]

Hi Helen last year I was so grey it was like looking at a stranger in the mirror till I had it dyed !! What a differencee instantly felt brighter and more lively so boo to growing old gracefully !! You should wait 3 months after chemo before dying , I booked my appointment for 3 months and 1 day !! Happy hair days love Bridget x