Hi Everyone
Plasmacytoma is treated with chemo unless it causing damage to spinal cord,Slim has tumour on spine plus lesions on shoulder blades and skull,when I asked about how long he had,had it,and what stage it was at,I was told,the do not do stages any more and they considered when it became painful was the start of it!!!!!

I can see why…[Read more]

Hi Everyone

DETRIMENTAL leaving TAL

Eve

Hi Everyone
You do make me laugh Tom,Slims hair looks a bit moth eaten and he has not had SCT,just 11 cycles of different chemo,but cannot complain it is starting to do the trick.

Helen it is so nice to hear you so cheerful,I thought I would mention a few products that might help eg: Polytar from boots, it help with itchy skin,.Aqua cream you…[Read more]

Hi Suru sorru I have only just seen your post. You have had an awful time you must be exhausted After any major surgery it takes time for you body to recover.Just try eating little and often whatever you feel like eating , your appetite will come back Do you take fortified drinks , Ensure is one we have over here. perhaps you could ask your…[Read more]

Hi Tom
I am sure your sons are right in saying Leeds is more fun than Scunthorpe!:-) .I dont go to Leeds as I live on the yorks /Lancs border and Manchester is much closer to me.My SCT is being lined up at St James (jimmy's) in Leeds so its abit like going to the other side of the world to me!!I suspect it was Seacroft hospital you may have…[Read more]

Hi Helen.
Yes he is home and gradually getting his strength and "joie de vivre" back!
Thank you for asking.

Eliz

Hi Jo
You must be so pleased,I am so pleased for you,you have been my beacon,for some time now,because of not having SCT,so I am so glad you are still in remission.
You have been doing so well,have a lovely Christmas Jo,and forget about the sword of Damocles. love Eve

Dear Jo what wonderful news I am so happy for you! I bet you were dancing a jig last night!! Was it the lovely Dean who rang you? Now you can foget about myeloma for a while and have a great christmas lots of love Bridget x

Hi Roisin welcome I hope we can be some help to you .There is nothing worse than watching someone you love suffer If the chemo is palliative is it easing his symptoms?Just wondering why they are giving it to him as it is a tough regime . Recently I had a similiar problem with my 85 year old mum who had a stroke last year.I try and help as much as…[Read more]

Hello
I Like the idea of this developing thread of where we all are.My name is Paul(outdoors Paul) and i turn 40 in December(so propping up the younger end).I live on the Yorkshire/Lancashire Border and am receiving treatment in Halifax and St James Hospital Leeds (SCT).Currently on the RCD pathway and being lined up for SCT in Feb.…[Read more]

Hi Mari I know what you mean about not feeling old! In my head I am much younger than in reality so I have to avoid all mirrors!! Happy birthday for tomorrow I hope you have a lovely day and are spoiled rotten love from one teenager to another Bridget x

Hi everyone I too was born in 1955, a very good year Tom!! I live in Houghton Regis Bedfordshire, a few miles from Luton airport My hospital is University College Hospital in London The haemotogoly team is led by Dr Kwee Yong who is well known in myeloma circles , they are brilliant I had to retire when I was diagnosed but I used to work for…[Read more]

Hi Sarah
Did not know you lived so close,Slim and I live in Deal in Kent.
I am a young 63 years going on 21 and a bit,Came from Liverpool to Kent 40 years ago.Love the south but miss the northern sense of humour. Eve

I wonder if we will all now react like in the Flanders & Swan song that starts with these words
[quote]Ma's out, Pa's out, Let's talk rude[/quote]!

Lyrics here for anyone wondering 😉
(http://answers.yahoo.com/question/index?qid=20070527175030AAMvOX9)

I am in Bournemouth, Dorset. We still have our stained glass supplies shop so am technically not yet retired but at present am opening on appointment only so only "work" now and again. 😀

You lot are making me feel old as I was born in 1949!!

Elizabeth

Congratulations on your wedding and all my best wishes to you both for a long and happy marriage. It was great that you could include your mother in the celebrations.
What a lovely group of children! Are they all yours?!?! You hardly look old enough to be anyone's mum. 😉

Hi Chrissie so sorry Davids mm has gone up , no wonder you feel devastated Hopefully they will come up with the right combination to bring it down very soon All fingers and toes crossed for you.The trouble with all these anti-cancer drugs is they are so toxic we risk damaging our kidneys all the time I always worry that mine will just pack up one…[Read more]

Hi Chrissie so sorry , I didnt think about using the abbreviations and there is nothing worse when you are just getting used to the jargon. The induction chemo is the chemo used to lower the paraprotein levels to as low as possible before a stem cell transplant High dose steroids are usually given as well . The bmb is bone marrow biopsy , used…[Read more]

Hi Gina congratulations on your wedding I am glad it went well and you enjoyed Although your mum wasnt well enough to be there she must have been so proud of you. You look so beautiful in the photos and the children are gorgeous too, thank you for showing us . I am sure your mum loves looking at your photos . In looking after your mum at home…[Read more]

Thank you to you and the whole team, Stuart!

I am sure it will be most useful