Hi Sarah
Good to hear from you,no sign of the Ram!!!!!!
what you say is so true,Gordon loved his land and was privileged to die on it,and you have the comfort of your family around you.I consider grand kids your greatest asset,the future generation for the land you love so well,so his memory will always be there,you just have to decide were your…[Read more]

Hi Jo
I was thinking about you today,so sorry Jo you have been doing so well,Velcade has worked well for Slim,and they have caught you early,Let hope the BMB shows low results,I can only say its knocked Slims from 80% to 10% in bone marrow,that,s after 4 cycles twice a week,with no heavy side effects.
Ask away Jo,if we can help you we…[Read more]

Hi Dave you have had a rough time till now but I hope things will get a bit easier now you are on treatment Like you I had surgical reconstruction of my spine after myeloma destroyed 3 and a half vertebrae, luckily I did suffer any paralysis ,much to the doctors amazement! I am so grateful they could do the surgery otherwise I dread to think what…[Read more]

Hi Eve
Great news for you and Slim so good to hear some positives8-)
cheers Paul

Hi Dave
Tom said it you have been through the wars,and with the determination to walk again,I would say you are doing great,its a big thing,my hubby was lucky he had no compression of the spine,but a fair amount of bone damage.
if you have a look at under fifties there is someone on there who has eye problems ,I think that,s how Myeloma was…[Read more]

Hi Helen,
I felt the same way as you when Slim was in hospital and thought wait until he came home,but I was so busy,bathing and looking after him day and night,the complaint never got done,and my verbal complaint never was dealt with,he will never go on that particular ward again,and now I stand my ground I take the view I know when he is…[Read more]

Hi Gill
Well at least you are getting there,I know you said there was a good local doctor,who new about Myeloma,so that must be helpful if any thing goes wrong!!
How will travelling affect being on RCD????

We did have a week in Canterbury site as we had so many hospital appointments between us,it was cheaper and easier than travelling for…[Read more]

Thanks again for all your wishers,yes I did over do it a teeny bit!!!,i had Slims share as he does not enjoy a drink!!!.
He over did it by not resting enough,found all this energy,and paid the price on Sunday after the walk,has been sleeping most of the day and night,making up for not sleeping well on Velcade.
2 week of 5 cycle this week.
On…[Read more]

Hi Gill
RCD is the other side of myeloma X1 trials,Slim got CDT side,but we wanted the RCD,if that makes sense !!!
This is the one JET had and had such good results.As you know people are affected in different ways,but they can alter the dose,It looks if it will become one of the front line drugs for MYeloma but at the moment still a trial…[Read more]

Dear Gill

Sorry that Stephen is having to go down this new road. Let's hope and pray it isn't as bad as you fear. Lets hope the reduced Dex isn't as difficult on the nerves – yours as well as his!!!

Hope this will lead to a good long remission and make it all worth while as you have both coped with so much already.

Best…[Read more]

Dear Bridget

Thank you for your kind words. I feel much more cheerful now Kate and the boys have arrived, even if I did have to collect them from Leeds in thick fog!

Sorry about your rash. Hope it soon disappears. These drugs are so powerful aren't they, that they always seem to came with a price (side efects). Still my prayer is that…[Read more]

Hi Dai thanks for the tip working from the outside in sounds a good idea I will try that If Susannah or Tina reads this perhaps you can help me with some info I have developed an angry red rash on my feet and lower legs , ending just below the knees. Did Patrick ever have this ? Has Michael had anything similiar Susannah? How is Michael? I am…[Read more]

Short and sweet in a NUTSHELL —- ELL next love Bridget x

Just bumping this up for newcomers who may not be aware of the under 50s site Bridget

Hi Penny
Sorry to hear about the diagnosis but from your post you sound up for getting your running shoes back on again! being positive is the thing to be.But you must listen to your body and when it says "rest" or "slow down" then you should.I did a 12 mile cycle ride around Derwent reservoir yesterday and really enjoyed it but today took…[Read more]

Hi Roz
You are coming up to your own 1 year soon!!,so my thoughts are with you,I have to confess when people say it gets easier!! I have my doubts the loss just becomes more acceptable,but it,s always there,but in time the good memories remain.
I hope you have planned to do something,even if it just opening a bottle of wine and enjoying that…[Read more]

Hi Everybody
I am on a bit of a high at the moment,slept well for the first time in ages.mind you G&T wine an d baileys helped.LOL but feel wonderful this morning and its such a lovely day the sun shining,and everyone seem to be out walking this morning.8-)
Min you were right about not giving up,and with out your support,i think i might…[Read more]

Hi Dad and Abi
Welcome to the site,It is no use telling you not to worry because your world has just been invaded by Myeloma,and your thinking this cannot be happening to your dad.
There is so much to take in,so just try to take it one day at a time,I found it useful to ask friends and relatives to stop phoning all the time,because I was just…[Read more]

Hi Mavis sorry to hear you are feeling a bit down , I think its inevitable we all do from time to time . Hopefully the visit from your daughter and grandchildren tomorrow will put the sunshine back in the world. I treasure my time with my grandchildren especially George who is the eldest ( I so we are very close.was there when he was born) , he…[Read more]