Hi Sharon
Its now November when do you have PET scan and results.
Slim had bmb expect results in next 10 days 1/2 way mark for Slim.
Eve

Hi Gina
how is it going have you managed to get your mum home.
just wondering how you are getting on. love Eve

Hi Min thankyou They did ask if I had a sharps box , which I did but a few years ago I was left without one for a week ! Its so good to hear you are sleeping well , it really makes a difference Are you getting a good tan? Dubai sounds like a lot of fun , makes me quite envious!! love Bridget x

Hi David welcome to the crazy gang! Glad you made it in the end. This site is brilliant for all sorts of reasons , support , information and sometimes a good laugh As you pointed out we are all different and there are times when being lighthearted is good for the soul whilst not ignoring the serious side . Heres to you being fit and healthy for a…[Read more]

Hi David
its just so nice to hear from a person who has gone through the mm journey,and come out the other side and has got his life back.

A big welcome to the site and I do hope you continue to post.

As you say everyone is different and some people have a longer and harder journey,which in its self creates more problems.
I have found this…[Read more]

hi Sue
You want to waffle go ahead,it does you good sometimes and helps when things go wrong,this site makes you realise how so many hospitals are different concerning treatment.
Slim is on Myeloma X1 trials ,so we do have to stick to a certain treatment,but who every devised how it was to be taken never considered the patient.
EG:VELCADE DAY…[Read more]

Hi Bridget and Helen
Defo late birds,was like that myself afew months ago, working hard to try to make sure I am not still buzzing in the early hours.:-/

Slim has been injecting himself for over 6 months now,no bruising but area less pliable,chose to do it himself as scared I would use him like a dart board:-P
To be honest I would be able to…[Read more]

Hi Helen I am on Domperidone , they give me a dose of IV anti-sickness before the Bendamustibe as well Thankyou for the tip I will ask about it on Friday love Bridget x

Hi Helen thankyou for making me feel less alone , I wont breathe a word!! I dont think I could ever inject someone else though , that has to be worse! My youngest daughter has Cystic Fibrosis and for years I did her IVs but only after someone else put the port-a- cath needle in, she always said she didnt trust me anyway!! Stay well love Bridget x

Hi Ted its good to hear you can relax for another few months without worrying about your results ! I hope that it stays the same for a very long time It used to be said that you knew you were getting old when policemen looked young but I find its doctors , nurses , teachers ( the list is endless!) so I guess I must be ancient Teehee love Bridget

Hi Keith great to hear you are doing so well Long may it last !! I hope you get your itchy rash sorted soon it must be so annoying love Bridget x

Hi Dai

Like everyone else I am grateful you have taken this on.

I agree that getting results is very important to how in control we feel. Yesterday I got them from a nurse on s napkin!! She took them off the computer because I asked her. I nromally have to wait two weeks to get my para protein results and this is after my Consultation.…[Read more]

Hi Sue
just to tell you about point 2 of your questions?
Slim has Velcade twice a week dose has always been 2.3

We had appointments at 9 for bloods and 1 o clock for Velcade.
leaving at 8 in morning bloods taken then stayed in city,went back for Velcade by 3 o clock often no velcade getting treatment at 4.30,if we are lucky home by 6.We…[Read more]

Hi David
I know you are in remission,was it the same through treatment!!
I agree completely with you, in terms of getting results,and agree,you can almost see the reactions on the professionals faces(patients who think they know best).
I feel they have failed to keep up with the times,I do accept many people do not want to know!!! fair enough…[Read more]

Hi Dai thankyou so much for representing us, you are a star! Sorry I couldnt add to suggestions my little brain is not working lately!! love Bridget x

My offering is GERANIUM leaving IUM Min we have sunshine here too but there is a gale force wind with it!! love Bridget x

Hi David
I have no problem getting blood results I ask for them at the beginning of each cycle the nurses print them off,and I can see straight away if there are any problems.I find the chemo nurses are willing to expain anything I do not understand,and since Slim has been on Velcade take more of an active roll,concerning his general…[Read more]

Hi Everyone

how about a small one but still important RICHER

For having loved and lived giving HER,ans I am not talking about money.Eve

Hi Jim
What is going on!!!!has something happened ,have you all these e mails on your computer,going into trash can,or are you to ill to reply.
Hope it,s just the trash can eating them up rather than the latter.LOL Eve