Hi Min
It all comes down to lack of knowledge and when you get conflicting answers from the professionals, it does make you question everything around you.
I know what your saying Min as when he was first admitted they took bone marrow,full body xrays and MRI and result confirmed and talking about Myeloma trials within days.

I do not have the…[Read more]

Hi Jo
How are you doing,thought you might post to let us know about info day.Did it go well. Love Eve

Hi Tom
I believe what ever works for you as an individual:-)that,s what is most important you are the person living with it,and it seem to work very well for you,all ways cheerful,never worry unless the doctor is not smiling,were would we be if we did not have people like you Tom on this forum.
So consider yourself an asset. Love Eve

Hi Dai
I will see what I can do,I know boffins deal with the fact side of the treatment,understandable so ,but first and foremost I am a carer to some one who is very ill and is going to pass away,either from Myeloma or a related illness,so as such I tend to be emotional about it.So you Dai are going to have to bear with me.I do write as I…[Read more]

Hi Only me
Funny name to have LOL.:-)
Just to say sorry your mums having a bad time of it,cannot help you,but my best wishers go to you and your mum,Eve

Hi Onlyme sorry your mum had such a rocky start to her treatment , hopefully things will go more smoothly now . I had similiar problems in harvesting enough stemcells for a second harvest My local health authority refused to fund the Plerixafor injections and I was able to produce the bare minimum but enough to do the job . I was told that if…[Read more]

Hi Sarah
Bridget has just given you some very sound advice,so my advice to you is listen to what has been said.Apart from that welcome to your journey as a carer,ask away about anything you are not sure about,even if we cannot help you,you will have the support of everyone on this site.
Hi Bridget good to see you are posting again. Eve

Hi Sarah I would like to add my welcome too. You have been lots of good info about sct so far and I am sure you will have more specific questions nearer the time. You have probably realised myeloma is a very individual disease and as we all react differently its hard to predict each persons response The one thing that is the same for most of us…[Read more]

Hi Everyone
First to Helen,make sure you do that trip.wonderful country,we spent three months there mainly to see family but did spend 3 weeks travelling in motorhome,from Christchurch to Auckland,one thing MM makes you realise is never put of doing things you want to do.:-)
Caro,hi have a friend in Hamilton,scouser who moved there years ago,its…[Read more]

Hi Glyn
Just to say welcome from one carer to another,hubby seems to be doing very well,and long may it continue.
Good to hear good news and know there are people out there that are getting such good results,it does give the rest of us,such a boost.:-)

Hope you keep posting and let us know how it goes.Eve

Hi Gina

So Sorry to hear your news about your mum,no matter if you were expecting it,it still hits you,I do know how hard it must be for you and your sister,I hope you get your mum home soon.

Try to be strong for your mum she may have a reasonable time left,you and your sister and your mum can make the best of the coming months.
Love Eve

Hi Everyone
Sorry not in a position to comment,but I do know that in boots they do a solution called polytar ,not sure if it,s correct spelling cost £4 it is very good for people who have itchy skin,at £4 might be worth a try. Eve

Hi
I play scrabble with my daughters,the one in nz is whipping me some thing awful at the moment,we do it over a period of days,

how about ARRANGEMENT

I leave you with ENT

Love Eve:-)

Hi Gina

So sorry that your Mum has taken this turn for the worse. I do hope you have a good converstion with her Consultant. One thiong I would say, although it's not easy, if they suggest not to do very difficult treatment that you go with it. There does come a time, hopefully not yet for your Mum, when the treatment comes worse that the…[Read more]

Hi Mal

What good news that Mal is now home. Do hope next weeks go well.

Best wishes.

Mavis

Hi Ted

Just to show that I have appreciated the fact that I don't need to scroll down such a long list! Maybe others know how to do it quicker. It seems to take me ages.

About questions – I am only just a year into this business and wanting to delay chemo, apart from zometa, for as long as possible, Because of all the anxiety I feel each…[Read more]

Hi Gina.
So sorry to hear about your mum,you and your sister must be very worried,I can understand you not telling your mum until you know if its new cancer.
It does not sound good if its hit main organs,try to keep positive there is so much they can do these days,have they tested for this before,because she has been having lung problems for…[Read more]

Hi John
Good news for you both,Our hospital is still talking about it,do not know if Slim will have it as on MYeloma trials,have to wait and see.:-P

We asked about it sometime ago,its going to be a tummy job,we asked could it be done like clexane,so we could self administer no such luck.

Glad to know you are both fine,look forward to…[Read more]