Hi Sarah and Jenny
Just popped in to say welcome to the club.As you can see there are lots of people and carers who are ahead of you on this journey.

My advice to you is take it a day at a time,it,s a long journey both of you are on as patient and carer,so my advice to you both,is it,s a journey were some people do well and get of the bus…[Read more]

Hi Cally and welcome to the forum . I feel for you with the itchiness it must drive you mad! I havent got any tips as I have not had this problem but it sounds as if you have got some reassurance already Good luck and I hope it clears up very soon Best wishes Bridget

Hi John thats brilliant news I am so pleased life will be more comfortable for Cecilia now Even more amazing is her medical team listened and acted on the info you gave them !! I wish hospitals here would do the same especially on this issue with Velcade ut unfortunately they are being very slow . I hope Cecilias treatment continues to go well.…[Read more]

I am looking forward to the definition of Dais word too!! Its a cracker! My contribution is too easy , sorry –AARDVARK Next is ARK love Bridget x

Hi Jenny

Welcome from me too! In view of the fact that you haven't had any support you seem to be be doing very well and keeping in good spirits. As Bridget say, keep your eyes on the goal of a long full remission. You will get there.

I am interested as to how you got diagnosed. Were there health complications and what was your para…[Read more]

Hi Ted

All best wishes for your appointment next week. I got an extension to three months thids time, but I know how it feels when appointment looms. One good thing is that now I am having Zometa injections I have a blood test each month so can keep an eye on blood results apart from PP.

By the way, yours must be about the longest thread…[Read more]

I will follow yours with TITILATION which leaves ION for the next go love Bridget x

Hi Jenny welcome to the club!! Iam glad you are coping with treatment so far, just remember to be kind to yourself and take it easy when your body needs it any chores will wait for another day Whereabouts do you live? You say there is not much support did you mean there are no support groups? Hopefully there will be one you can get to so you dont…[Read more]

Hi Mal and Bruce brilliant news I am so glad Bruce is feeling a bit better Fingers crossed you get to go home before the weekend , no place like it is there! love Bridget x

Hi Jim
I was diagnosed with Myeloma in August this year and I will turn 40 in December.Like you it came as a hell of a shock as i eat healthy and physically active to.I live on the Yorks/lancs border and receive treatment in Halifax and will have SCT at St James Leeds.My consultant acted very quickly with my diagnosis and spoke about the…[Read more]

Hi Jim
Just to say welcome.

Myeloma X1
Husband started trials February this year,allocated CTD side,did 6 cycles with a small blip in between had septic pneumonia 22 days in hospital not very nice,with hindsight,should have been on Clexany,from day one,this is not automatic,but would have saved a lot of problems with blood clots.
ON trails…[Read more]

Ooh la la Jean !! I will follow that with SERENDIPITY , which leaves ITY for the next one love Bridget x

Hi Kay

Like others I'm pleased to hear that over all your SCT has gone well. I know bone pain can be so debilitating and depressing. Hold in there and do make sure you are given good pain killers. It does take a lot of patience to find the best for you.

Be kind to yourself.

All best wishes.

Mavis

Hi Chrisitne

You all do right to get SCT put off till after Christmas. Last year they wanted to start my radiotherepy days before Christmas and I held out without any noticable effects. I think Consultnants sometimes forget how important these family times are and this will be especially good for your father if he is feeling better then…[Read more]

Hello Dai

I had missed your post because BT cut off my Broadband!!! So sorry that you have had this bad infection. Do take care. Really want to hear that you are in a good place and feeling like your old (young!) self.

I'm off for my flu jab tomorrow so hope I fare better.

All best wishes.

Mavis

Dear Gina I am so sorry mum is going through a rough time again , you must be worried sick The news about the growths must have been a terrible shock , I hope they can give you more information about them soon and hopfully they will be able to treat them . Sending you lots of love and hugs and please give mum a hi from me , tell her we are all…[Read more]

Hi Jim welcome to our little club that no-one wants to be in! It must have been a huge shock for you , in fact it is for us all I was 51 , but 40 does seem too young The advantages are that your physical fitness will stand you in good stead when it comes to treatment and hopefully you will get to a point where you are in complete remission, so…[Read more]

Hello Dee

Glad to hear that Mike is feeling a bit better. The trouble with Myeloma is that none of us will have heard of it before we were diagnosed. I agree that getting as much knowledge yourself is very enpowering. I find the Myeloma beacon Site (USA) very helpful – they have links to interesting videos.

Another thing to keep in mind…[Read more]

Hi Jim

Like David just wanted to wish you well. If you join the Trial I hope it goes well and brings dreaded MM under control.

Very best wishes.

Mavis

Thankyou David this is so wonderfully funny its made my day! I shall pass it on to all the crumblies I know too love Bridget x