HI Sharon
You have not been on site for a while is ever thing ok i know you do not post much,but you must have finished Velcade now.How are things going:-S?

Slim on 3 cycle and a bit in Limbo as,no results coming through as decided bone marrow to be taken after 4 cycle.

Slim has not got the pain in his chest any more,and except for the odd…[Read more]

Hi Everyone
I will not bore you with general details except to say,husband started on ctd,now on velcade and looks if he will not be offered sct.

My point on this,is we were told he had Myeloma told about Myeloma trials and felt we had no options,asked if we had any questions,how can you ask questions if you do not know what to…[Read more]

Hi Everyone
How about

HENPECKED
I know I leave you with the same end but Slim tells me i keep doing that:-) :-/ :-S
KED

Love Eve

Hi Shir
Nice to see you keeping your chin up,would drive me mad too,Do not know if your are on face book,but they have scrabble on there ,and now i find myself
in the house more ,I play alot,also Slim plays to keep his mind active,I agree completely would not be without my lap top,use it to skype a lot,shows when friends are on line,so pop in…[Read more]

Hi |Girls
If i may call you that.My kids are terrified when I drive because if they talk to me,I have to take my eyes of the road,even my son-in-laws are scared.LOL.
I wish I could wave a magic wand and take all your pain away,but it,s not going to happen.
Life will go on and each day you will find some thing to smile about,I hope you will all…[Read more]

Hi Everybody
Zometa is known to be very effective on bone damage,usually administered once a month to strengthen bone with Adcal-D3 once a day.This has worked wonders on Slim,who could not even lift a carry bag with one item in.
Now he is on Velcade he has Zometa every three weeks,but Myeloma is 80% in marrow,
I can only say doing research on…[Read more]

Ho Dai I am so pleased for you,I hope tonight you are sitting there with a big grin on your face,must feel like winning the lottery.
Only this is far more important,and more worth while.
May you enjoy the freedom this gives you.Love Eve

WOOHOO BRILLIANT NEWS!! Dai its wonderful to hear you have been given freedom from the beast I really hope its for a very long time. Now you can both have fun and live life to the max again Thank goodness you made the journey from Wales and away from that awful doctor , when you did. I was so upset when I read your first post on here, its a…[Read more]

Hi Debs
I do feel for you,they treat you like you are thick as two short planks,and wonder why patients loose there respect for doctors.
I had a problem,with a doctor last week,in the end I told him I was standing my ground,as i new when Slim was not well did not go down well:-P but worked.

Same doctor couple of hours later could not have…[Read more]

Hi Debs if ever a rant was needed that one was ! How infuriating for you and why dont they listen to us the people who are on the sharp end of their service . I had problems after seeing a pain consultant , between him and my gp it took weeks to get my morphine and pregablin sorted out Actually I dont take the pregablin anymore it made me very…[Read more]

Hi Ettas hubby I hope she is feeling better by now . I agree its good to let someone look after you now and again but sometimes its hard to let them do it A lot of doctors dont agree with staging now we have so many new drugs and treatments its not as relevant as it used to be so try not to worry love Bridget

Hi All
I love all this glorious weather we are having,it is a real bonus,it makes so much difference to our days,people walking round with a smile on there faces , i just wish it would not end.8-)
I love that Slim has decided he wants to go out as a family for his birthday,one daughter will be missing in NZ.to me it means he is feeling…[Read more]

Hi All
Nice simply one
STICK

ICK next love Eve

Hi Min
I can just see Daisy telling everyone about you wetting yourself,LOL,You made my day,
The dogs will get you out of the bed in the mornings,just take it a day at a time.Love Eve

Hi Clare
You must be worried after 6 courses of CTD then a rise in light chains,best to ring hospital tell them your worries,you will be able to see your dads consultant early.

Slim had 6 cycles of CTD seems to be on path for remission,when they took bone marrow found MM had gone up,but light chains were down:-S,left us shocked,spoke to nurse…[Read more]

Hi Jo
Well come on tell us,did he wine and dine you!!:-)
As much as i love Slim he cannot even remember my birthday with out my daughters telling him,so not holding much hope for first wedding aniversery.

Saying that he did buy me a bunch of flowers twice in thirty years not bad,and not from a garage forecourt,sainsbury,s more up market…[Read more]

Hi Terry
Well you are a seasoned professional compared to me as I have only just been diagnosed din August! with MM.I to have tumor upper back/lower neck which caused spinal compression.Taken straight in to Hospital with concerns about losing mobility and bed rest.Had radiotherapy and tumor area which seems to have removed most of the…[Read more]

Well said Mavis I agree,Eve

Hi Roz
Sorry if i got it wrong,I know how hard it can be to live alone,specially at weekends,the door shuts on friday and thats it till Monday .
I am not very good at explaining myself,I myself have my own isolation,because I am deaf,I am suppose to were hearing aids,but I hate them,so it,s not so much physical as mental isolation that I was…[Read more]

Hi
I am on my second cycle now(I was diagnosed in August with MM at 39 years old) but on the RCD pathway and also take the zometa(Bisphosphate) injection once a month when visiting my consultant.I dont seem to get the same side effect as you on that..but do feel lethargic and tired on occasions.My legs can feel a little "leggy"as I call…[Read more]