brocho replied to the topic New Discussion Forum Category in the forum General 14 years, 6 months ago
Hi Ellen thankyou for responding to us on this very sensitive subject . I do think there is a need for this category for those who have lost their partner , parent or sibling but also for those of us who after several years of treatment feel the need to look at choices for the final stage of their myeloma journey It would be heartbreaking to…[Read more]
brocho replied to the topic Mini Allo Transplant in the forum General 14 years, 6 months ago
Hi Wendy well I certainly wouldnt want to have to make that decision in a hurry!! It amazes me how very different the various approaches by hospitals and individual doctors are to our treatment In my case I was told the risks of a non-related donor transplant were much too high for me and I dont think my hospital offers mini allo transplants at…[Read more]
Elizellen replied to the topic About time I joined the Forum !!!! in the forum Newcomers 14 years, 6 months ago
Welcome to the group no-one wanted to join, Peter!
As the others have said it is good to hear from someone who has lived with this pesky disease for many years and is still fighting the good fight, as it gives us all something to look forward to.
Long may your remission continue!! 🙂
Elizabeth
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Elizellen replied to the topic another 3 months in the forum General 14 years, 6 months ago
So good to hear your numbers are still dropping, David!!
Enjoy your "holiday" from appointments!!
Love
Elizabeth
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Elizellen replied to the topic More good news! in the forum General 14 years, 6 months ago
How wonderful to hear you are in remission now, Jet!
I have been following your blog and am so glad that after all you went through that you are now out the other side and can enjoy your good news!!
Love
Elizabeth
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Elizellen replied to the topic Hello in the forum General 14 years, 6 months ago
It is lovely to her from you, Linda. Your mum is blessed to have such lovely supportive children.
Thank you for all the fundraising you have been doing as well.
Love
Elizabeth
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Elizellen replied to the topic Ten year survivor after SCT in the forum General 14 years, 6 months ago
How great to hear of a longterm success story like his, Carol!
Thank you for posting about meeting him.
Eliz
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Elizellen replied to the topic Some good news! in the forum General 14 years, 6 months ago
What lovely news, Liz and Kev!!
I wish you (both) a long remission full of lovely experiences and good living.
Love from
Elizabeth
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Elizellen replied to the topic What do you think? in the forum Off topic 14 years, 6 months ago
After reading your other post a day or so ago, Min, I already sent a pm to the webteam asking them to consider adding a forum section on grief, so anyone who needs to can post there without feeling they might be upsetting any others who might prefer to avoid the subject for whatever reason.
And I am glad you see you are enjoying this Indian…[Read more]
eve replied to the topic What do you think? in the forum Off topic 14 years, 6 months ago
HI Min
So glad you are coming back to us,and so glad you have taken that first step,from reading your mail,I think you are a very strong person,and for awhile you worried me wondering if you could get through that black tunnel and see some light at the end:-),Grand kids,are a tonic,just what you need.
As for cars cannot help you,me personally…[Read more]
brocho replied to the topic Not Good News in the forum Carers 14 years, 6 months ago
Hi Gill I am so glad you both had a good evening, just what you needed I think!. It just occurred to me Gill I am the fat lady!!!! haha Heres to many more nights boogying the night away love Bridget x
brocho replied to the topic Thank You in the forum Off topic 14 years, 6 months ago
Hi Min I dont know how I managed to miss this post till now It makes my heart ache to hear you describe your pain and not be able to give you any comfort You and Peter were robbed of the time when you could reap the benefits of years of hard work and raising a family and it just doesnt seem fair. I agree we dont acknowledge the effects of death…[Read more]
brocho replied to the topic Anagrams in the forum Off topic 14 years, 6 months ago
Hi Dai thanks for these , they gave me a good chuckle!!Words are just amazing arent they!! love Bridget x
eve replied to the topic About time I joined the Forum !!!! in the forum Newcomers 14 years, 6 months ago
Hello Peter
Welcome to the site I hope you enjoy your your journey here,finding out new information and any help you need or can give:-)
How do you rate Velcade,how long were you on it,and did you have any side effects?????
Where you on trials? and what dosage did you have.It sounds so interesting.
I would be grateful for any info as my…[Read more]
eve replied to the topic Not Good News in the forum Carers 14 years, 6 months ago
Hi Gill and you also Stephen
I am sorry to hear the news,but your Stephen have the right attitude,I can see were your thoughts are,Stephen will choose his time Gill but I think he just might surprise the medical profession.i think he has lots of things he wants to do,;-)
Slim wants to go fly fishing,will arrange it soon:-S
It,s very hard…[Read more]
brocho replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 6 months ago
my word is ENTERTAINMENT —- leaving ENT love Bridget x
brocho replied to the topic Not Good News in the forum Carers 14 years, 6 months ago
Dear Gill no wonder you are devastated with news like that!! But remember Gill that is just one mans opinion and Stephen can prove him wrong!!( you and Stephen together should I say) I think Stephen had the right idea about going out and enjoying yourselves and I hope it took your mind off gloomy things for a while Good news about the Revlimid and…[Read more]
OutdoorsPaul replied to the topic Outdoors Paul Lightchains is the word! in the forum Under 50s 14 years, 6 months ago
Carol/David
[b]Vasbyte[/b] yes I like the word it has feeling of determination about it!I to will use that word when abit of extra umph is needed.:-D
brocho replied to the topic Calling Eve… in the forum Carers 14 years, 6 months ago
Hi Eve good to know you are both ok , Sometimes we all need a break though and you are wise to recognise the need to escape for a while Have fun decorating and shopping too?? lots of love Bridget x
eve replied to the topic Calling Eve… in the forum Carers 14 years, 6 months ago
Hi Dai
Thanks I am fine,just feeling a bit low at this time,no reason,
Glad to hear your good news,and it,s lovely to see so many people coming on the site with lots of good news,
Just what we need after so much bad news,In some ways i hope Sarah and Min,do go on and get on with the job of living and enjoy their future,but as you say they will…[Read more]