Hi Linda welcome from me too , you will always find support for you or your mum on here It sounds as if your mum is a lucky lady to have such lovely children , she must be very proud. Make sure you dont let myeloma take over your lives though and you go and have fun sometimes away from hospitals and all the stuff that goes with it love Bridget

Hi Jet great to hear you have had the magic word remission too , thankyou for sharing with us its always good to hear news like that Now you can put myeloma on a back burner hopefully for a very long time ,and go and enjoy life love Bridget

Hi Liz and Kev thankyou so much for sharing your wonderful news!! Having been through the mill it must feel great to hear the magic words ! Heres to a very long time before you need any treatment Now go and have some fun love Bridget x

Hi Pete welcome to our lovely band of people Great news about your remission fantastic length of time. I agree a positive attitude helps a lot and having the support of people who understand too , so you have definitely come to the right place Best wishes to you and your wife Bridget

Dear Jo happy anniversary! What a wonderful thing to celebrate 46 years is awesome. I do hope you are going to do something really special tomorrow , have a lovely time Bridgetx

Hi eveyone heres my word KNOWLEDGE leaving —-DGE love Bridget x

Hi Susannah I do hope the lower dose is better for Michael , all fingers and toes crossed ! I wasnt eligible for a Bendamustine trial as I am a non-secretor and the only way to monitor my mm now is mri and bone marrow biopsies The hospital does have a system though where if all the team agree then treatment can go ahead At the moment I am waiting…[Read more]

Hi Gina what wonderful news! It may have been a bit of a mixed bag but its a very good start to get those numbers down!!Hopefully mum will feel better soon , I agree with Dai the drugs we take are often what make us feel lousy but as your mums system gets used to them it should get better. I hope you can all relax a bit now and go and have some…[Read more]

My Dear Friend Min after Dais lovely message to you there is very little to add. Please know that although Peter was the mmer you were and are the person who made so many friends on here.It feels wrong to pressure you to stay , if I were in your shoes I am not sure what I would want,but Min you would be missed by so many people! I can only imagine…[Read more]

Hi Tina thankyou thats reassuring to know after Revlimid Although to be fair the side-effects with Revlimid werent terrible just a real pain when combined with Dex . Watch this space ! love Bridgetx

Hi Nadine and welcome ,sorry I seem to have missed your original post. It sounds as if you and your mum are coping well with getting to grips with this myeloma lark. It struck me when you said you are being strong for your mum that perhaps she is doing exactly the same to protect you and this could be making it difficult to talk But try not to…[Read more]

Hi Jean I wondered what happened to that post!! I was writing about how exhausted the radiotherapy has made me feel and then I dont know what happened!! But I can honestly say I have never felt so tired in my lifeLast year they told me tiredness could be a side-effect of the RT but I didnt feel any different It may be because I still have these…[Read more]

Hi Mary and Theresa how lovely to hear from you. I am glad your holiday felt right and it must have been such a comfort for your mum that you were with her Both your parents must be very proud to have such lovely caring daughters, you are a credit to them Take care and please pass on my best wishes to your mum love Bridget xx

Hi Susannah wow you have certainly been kept busy!! I am glad to hear both Michael and your daughter are feeling better though but now is the time for you to look after yourself! Go and treat yourself to some pampering you deserve it! I will be starting Bendamuste in the next couple of weeks it was a choice between that and a course of heavy duty…[Read more]

Hi Helen
I to am a glass half full rather half empty person so positive stuff and we shall keep going.Thanks again for the info Helen much appreciated.Wow 3-6 months recovery time but like you say its an individualistic thing.Glad to hear that its gone well.
speak soon paul

Hi Helen
Thanks for the post I agree that my body will tell me and it does..I have taken the advice about resting and agree that works.I got a little snappy on one occasion about where the Pears soap had gone from the bath room! We laugh about it now and I can tell when a Dex moment is upon me.My personality is quite laid back if not…[Read more]

Hi Bridget
Just looked at my discharge sheet and lightchain Bence jones protein is what they are monitoring.I continue to provide both blood and urine samples for my consultant.(The 5 ltr urine container always seems intimidating!)Seen the consultant yesterday and now on cycle 2 from today(4 days of Dex to start with),I find out in…[Read more]

Hi Gill
Exercise does seem to help me, though it can be mentally challenging to get going.I.E I try to walk about 2 miles a day (currently off work) on the canal,it might take 5 mins for my legs to get going as such,But once moving things feel better.I have quite good muscle depth in my legs so i know my legs can do it..but i know when to…[Read more]

Hi Eve
Went to see the consultant yesterday (only 2nd apt)She seems happy with me at this stage.My October apt will tell me how I am reacting to the medication.Thanks for the "heads up" on the Dex which can mask infections/low blood pressure,i did ask my consultant that question and she did indeed say yes it does…So "thank you" for the…[Read more]

Hello Dai
Just read Bilbo's song….wow made me cry straight away,such a descriptive song and so lovely.Thanks for sharing that.
cheers Paul