Hi
I hope Min has taken a little time out,may be,she has gone to enjoy her grand children,if she has she will come back refreshed,and stronger to cope with all those inefficient people who do not know her situation and have no understanding of it.
Min will come back in her own good time.Eve

Hi Gill
My,Stephen is brave I suppose it is better recovery with local,and chemo should finish off,I suppose Gill with all they go through,its just part of the bigger picture:-/.
Do understand were you are coming from,to me it seems like waiting for the next episode,I do not think sct now,I just wait!! as cdt did not work,will velcade:-P.I…[Read more]

My word to follow that one is LAMINATED which leaves TED

Hi Paul not all doctors classify patients myeloma type to them so you will get various answers to your question When I was first diagnosed they were able to measure my paraprotein levels and therefore the level of myeloma in standard blood tests When this proved inaccurate after a couple of years, I relapsed with a large tumour and still had low…[Read more]

Hi Carol thank you for caring and I would never think you were a pest for asking ! So far so good no pain for the last few days but as I took extra Dex this could be masking it The radiographers always point out things get worse before they get better so I am being cautious for a while yet ! Still its looking very promising apart from a bit of a…[Read more]

Hi Helen your answer made me laugh That would be just the thing to happen to me too !Or I would spend a whole day out before realising it was on back to front or upside down!! Just e-mail me your address and I will knit your hat , at least it will help keep warm As for body hair Wendy I didnt have to shave my legs for over a year the first time…[Read more]

Hi Jo , Dai and Elizabeth thankyou for your kind words .Dai of course you can have a Bridget beanie but no contribution please this is my small gift to my online friends in just the same way you give us your beautiful words and music Its a joy to me to be able to make something people like and who better to make for than good friends .I have still…[Read more]

I wore my Bridget woolly hat a lot last winter and it fitted me from the bald stage up to when I had a couple of inches of curly locks!

I am glad to hear you are feeling able to make some more, Bridget.

If you remember, you were kind enough to send me two last year – one red one and one lovely white one with a button/tab detail.

I never…[Read more]

I've been having to fill out our postal voting applications today, so my word is
OFFICIAL

leaving
IAL

Hi Graham
If Tom can do it you can,do not think they are a strict bunch,you have different issues when your younger with families,work and money so still worth trying,they can only say NO,and that,s nothing with all the other issues.:-S
If it is any help to you,at this time your face looks ravaged and you look into that mirror,it does get…[Read more]

Hi Dai and may you be a happy bunny for a very long time to come love Bridget x

Hi Graham welcome Can I just say if you are young of heart and mind they laet you into the under 50 group , this is from me a 56 yr old who joined ! Seriously there may be relevant work or lifistyle issues better suited to the under 50sif so just let Scotty or Phil know your e-mail address This site is brilliant too , so many lovely people to…[Read more]

Hi Dai
How did the holiday go,plus the weather,must have just been nice to get away from treatment for awhile:-/
Soon passes it seems like yesterday you were saying about starting Velcade,Slims just finished second cycle,wish we had your turn round for bloods and Velcade,we do it in 2 trips.60miles all together.:-S 😛 Tried staying around…[Read more]

Hi Graham,
My first thoughts on reading your post,your 2005 and relapse 2010,and wondered how you have managed to cope with this all this time,family and friends are good,but its people on the same journey who understand.:-)
You are further on your journey,than my husband,but I can see you are going to be a great asset to this site,and I hope in…[Read more]

Hi Everybody

NOTIFY

My word for today IFY Eve

Hi Paul
My husband is on the MX1 trials,he got CDT side,6 cycles intensive pathway,some advice I can give you,is high dose DEX does disguise any infections,low blood pressure was the start of Slims,not even picked up in A&E,so do take care.Septic pneumonia has cost him the chance of going for SCT.
Now on Velcade as no bench markers to judge how…[Read more]

Hi Helen and Debs I love to hear how well you are both doing and you are so right it is day by day , sometimes hour by hour ! Helen it must make you feel much better now your mouth doesnt hurt so much, nothing makes me feel so wretched even a single cold sore !! I have lost my hair 3 times now and I knew from the outset I was too untidy for a…[Read more]

Hello Dai
Many thanks for the reply,since the posting I found out it was Bence jones and looked on the sites info leaflets which helped alot.
3-4 of my ribs have been weakened as have 1 vertebrae and the consultant put me down as in the "early stage" .So having Bisphosphate infusions once a month when visiting consultant.
I was…[Read more]

Hi Dai

Great news about the numbers. One thing, as I reckon it you have only two more treatments, and then you will be able to get on with your life, in remission, and hopefully be treatment free for a long long time, and hopefully time for side effects to subside.

Hang on in there, let's hope the next two treatments are much less…[Read more]