Welcome to the forum, Alexis and John!

I am glad you have finally decided to join in. 🙂

Hi Jo
Thanks for the information,will ring and find out how late I can book it,and check about parking.If problems with parking Slim will not be able to come,as he cannot walk or stand for any length of time.
Also not sure how he will be,1 week of 4 cycle,has hospital on Friday,I might go on my own,It is easier to go by train then tube,but there…[Read more]

Hi Dai
4.21 am,and your creative demons,are all around you,to be able to express living and death in such a powerful way is a wonderful gift ,I think you have expressed my thoughts on life ,but put it in a nicer way than I can:-)
May be they are not demons but angels,your not ready to jump on the cloud yet.

When I read this my thoughts turned…[Read more]

Hi Ivan

Do hope Velcade works out for you. My husband has PN because of diabetes and he gets severe pains in his toes. Hope you are getting some relief now.

Best wishes.

Mavis

Dear Bridget

All best wishes for tomorow.

Love Mavis xx

Hi Gill

Can I also wish Stephen well with his op.

Best wishes.

Mavis

Hi Nettie

Like everyone else i am in awe of the challenge you have set yourself!
Hope you raise lot to make the effort worth while. I'm so glad you are feeling up to doing it.

Very best wishes.

Mavis

Hi Alexis and John

From me too a welcome to you both. Hope John finds it helpful via you Alexis!

Best wishes

Mavis

Hi Aileeen

Like everyone else I welcome you (sadly) to this grand site. You will find the hellp and support you need here.

One thing no one has mentioned yet, but which you might have picked up if you have read earlier posts, is that not everyone starts treatment straight away. Don't be worried if they suggest a "wait and see" stratergy -…[Read more]

Hi Alex I am on my 7th cycle of Revlimid and exhaustion has been a constant throughout It seems to be a very common problem too!! All I can say really is go with the flow and when John feels he needs to rest then thats just what he needs to do It didnt take me long after being diagnosed to realise that there is no choice but to listen to my body…[Read more]

Hi Everyone

How about HENCEFORTH A word not spoken very much but used a lot in letters.

RTH
Eve

Hi Gill
Just to wish you and Stephen good luck,hope every thing goes to plan,and you can have a bit of a rest soon,have noticed you are another one,who burns the midnight oil,terrible when sleep will just not come:-(
The rugby has taken over from the post on here a little bit,I enjoy the solitude of the early hours,If I want to feel a bit sorry…[Read more]

Hi Gina
Glad you and your sister enjoyed the info day:-)It helps i think when you meet people who have been living with MM a log time,it gives you a lot of hope,and on bad days,you can think its just a slight hiccup,and tomorrow will be better;-)
My nearest info day will be London next year,and nearest support group is over 60 miles away, that,s…[Read more]

Hi Alexis
My name is Eve welcome to the club,i never introduced myself officially,just,joined in,Then some one put on a thread"Who the Heck are you" think you will find it in Off Topic just scroll down.I came out on that no reason it cannot be updated on.:-)
So good luck,By the way i am a carer to my husband, keep posting Eve

Welcome to the club you never asked to join, Aileen!

I am glad you found this website as there are so many others out there which are quite frightening and doomladen.

Luv
Elizabeth
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Wishing you an uneventful procedure, Sandy!!

Will you be able to get online when you are in hospital? I found it really helped in the wee small hours to be able to be in contact with cyberfriends.

Elizabeth
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Wishing you an uneventful recovery, Helen!

I had mine just over a year ago and though my hair didn't all fall out while in hospital it got fairly sparse in places and very thin and straggly, so when I was allowed home I made a stop on the way at the local barber's to have it all taken off down to the wood.

It was weird not to have any hair…[Read more]

Wow, Nettie, I really envy you as I used to love rockclimbing and abseiling when I was in the army!!
I will mentioning your adventure on my facebook as well as sending some dosh.

Elizabeth
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Hi Gill I am glad Stephen has got a date at last ,it seems ages since you first mentioned his lump As for the full diary what social butterflies we are!! Thanks for the reminder about the flu jab I am hopeless at booking them so have now left myself notes around the house , like thats going to work!! Take care and good luck for the op Bridget x

Hi Aileen welcome to our merry band!! It is a huge shock when you are first given the news but as you begin your treatment, if any is needed. things will soon become clearer The info line on here is manned by nursing experts who are only too glad to help with questions Last but not least there are so many lovely people on here to support you when…[Read more]