Hi Mavis
Thank you for the lovely welcome to the site I attended my first consultants apt today and found out that I am a Lightchains Myeloma person…
So my consultant has told me that i dont produce para proteins its a different form.So sorry cant help on that one,completely agree about reading up on things and this web site is great…[Read more]

Hi Debs
Many thanks for the advice,just been to have my first consultant check since being discharged 13 days ago.I have Lychains Myeloma so now have a name to it!(As I am a walker I have Named It "Beinn Myeloma" my next mountain to climb!)
I am half way through my first cycle and finished taking a 4 day dose of Dexy.Side effects have…[Read more]

WORLDWIDE

leaving IDE for the next person

Hi
How about a nice easy one

YELLOW
Love Eve low

Hi Jean
I use it all the time,If your unsure of anything there is a good library site,on here.
When this first started I was told Slim had MYeloma,and it was not compromising the cord,and that was it.Everything else I had to ask about,but when you are told new things your are in shock.Since then I have used this site and libraries to find out…[Read more]

Hi Jean thank you for that one! My word is — ULTIMATELY The next letters are— ELY love Bridget xxxx

Hi John good to hear Cecilia is doing well please pass on my best wishes. There is nothing worse or more painful than people digging around in your arm trying to find a suitable vein !! We have to put up with enough without that too. Ask about a PICC line they are brilliant! They work on the same principle as hickman lines but completely under…[Read more]

Hi John
Slim has the same problem,he is also on Velcade to,I have suggested a picc line but they are worried about infections.
What I do is try to get him drinking a lot before blood test,and I have bought a hot water bottle which I fill at home,and rap it up in a pillowcase,which is applied to his arm all the way to the hospital,it seem to have…[Read more]

Hi Jean
There is a book called Myeloma your essential guide.
It is excellent,you can read it in little bits to take it all in Myeloma UK should be able to send you one,I got mine from the hospital along with other books about cancer.
If you ask for results of test and use the book it helps you understand them,plus it helps to know when bloods…[Read more]

Hi Ivan
how is your leg doing?????
Eve

Hi
Mine is YOUTH

Leaving UTH

best wishers Eve

Dear Min
I haven't been on the board lately so have only just read your post.

I am so sorry to hear that Peter has passed away so unexpectedly, and am sending you and your family my condolences at this difficult time.

Hugs and prayers
from
Elizabeth
XX
X

Hi All
Sharon what are you on now.
It does not look if Slim will be given the option of SCT,because of lung damage with septic pneumonia,after doing 6 cycles of cdt and finding it has increased in the bone marrow to 80%,I have to wonder if trials are the right way to go?,they measured the success bench marker in free light chains,which actually…[Read more]

Mine is
NOTEWORTHY
leaving

THY

for the next person

Hi Sharon
Must admit I search for everything concerning this disease,you just live in hope ,that there is something out there,that will work,and actually cure Myeloma.

I think the answer lies treating it why it is still contained in the marrow.
They are talking about 10 years research for Ecstasy.I also think some Myeloma,s are easier to…[Read more]

Hi Sally
Good to know your dads feeling a little bit more cheerful,it is a shock to the system when you are first told,and there is so much to take in.

Slim found it easier to do a big chart with the cycle on,easier to keep track of the pills,he kept 2 pill boxers one for hospital pills and one for own doctors pills.
I think you will have to…[Read more]

Hi
Just asked the brains
SEXILY
Now you can tell it was Slim who thought of that one!!!!!

ILY

Hi Tom thanks for the laugh – my wrists are well and truly slapped!! I will go into the hospice but not until I see how much difference the radiotherapy makes, the pain might go completely with the RT love Bridget x

Oooh good one Jean next word —- WORTHILY NEXT LETTERS—-ILY XX