Dear Min

I have just gone back to your posting and noticed the attachment in the left hand corner,Thank you sharing your photo with us,Slim never goes on here but occasionally ask me why i am laughing and I read out to him little bits.
He asked me to personally say how sorry he was for your loss,

I hope you keeping well and you are in our…[Read more]

how about
YESTERDAY
never a truer word sung by Matt Monro

DAY

Hi Paul

This is an "oldy" of 66yrs answering a post on the fifties strand! Having just picked up your posting i also wanted to welcome you, sadly as it were (!) to this great site.

It's good you have been given Revlimid as part of the Trial as it is supposed to be very good for a front line therepy. I read lots of stuff on the Myeloma…[Read more]

Dear bridget

Just thought to say – do dose ourself up well with painkillers before the radiotherepy or it will kill your back. I didn't find my radiotherepists very symathetic. I hope yours are more so and that it works quickly for you.

Love.

Mavis x

Hi Debs I hope you get a quick refferal to Macmillan , it wikk be such a relief for you My nurse came round this week and the first thing she arranged was for the District nurses to come out to give me a painkilling injection of morphine if my usual doses fail to ease the pain Tat in itself was such a godsend as this week I have been desperate ,…[Read more]

Hi Bridget

I'm so gutted that you are having such an aweful time. I can understand tears – with so much pain you feel so out of control. I remember being there a year ago. I am so glad that the McMillan Nurses have made some useful suggestions and help is at hand.

I feel very wild, I listened to an Amnerican Webcast about Pain, a few…[Read more]

Hi Ameloe what a wonderful achievement for both of you You are right to feel proud of yourselves!! I am sure it helped Johns recovery enormously!! Treasure those memories of your wonderful acheievement Shame you couldnt have recorded it for us to hear Which instruments do you play? I have always envied people with musical talent , I could just…[Read more]

Hi Amelie

So pleased to hear that John got his dream because you worked so hard for it. Keep dreaming and making dreams come true.

Best wishes to you both. May you have much time together.

Mavis

Hi Amelie
It is nice to hear something positive,it was something he dreamed of and you made it come true,I like to think some good comes out of bad things even if it is only a learning curve.

I hope both of you have a long wish list and you make every day count.
When my husband was first diagnosed my thoughts were we are so lucky,we have done…[Read more]

Hi Dai

I had been thinking of you today and wondering if you got off on your holiday. I'm so glad you have. I do hope that when you read this on your return you will have had a very well deserved break and come back to fight both the MM and the system and knock them both for six!

Very best wishes.

Mavis

Dear Min

Like everyone else, I am shocked that you have lost Peter so suddenly. I know we all thought he would pull through yet again. This terrible MM had been particularly unkind to him. At least you can take some comfort that his fight is over and all the horrible things that go with the attempted cure.

Now it is you and the family who…[Read more]

Hi Paul
Have a drink while you can,it is allowed because your taste buds,will change some times drastically,my hubby has always liked his wine,and G&T does not like anything now LOL more for me:-P

Good luck with your treatment Eve

how about DELINEATE
Cheated a bit Slims the brains in the family
I have started reading some post out to him though,this morning he was as shocked as I was about Peter,but I think Min would like us to post as usual
Eve

ATE

Thank you Stewart much appreciated.
Bridget thanks for the Revo advice you seem to have a wealth of good advice. and I think I will take the revo later in the evening.Today is my first day of the 4 days of high dose Dexy so I will be assessing myself as it goes.Went for blood test and away for 9.30 thoe it did involve 22 mile journey.Will try to…[Read more]

Dear dear Min its so hard to believe that Peter has gone and if its hard for me it must be doubly hard for My heat goes out to you Min You shared a love that was special and without your sour support Peter would have been lost Although you didnt have time to prepare Peter knew and he will always be with you, even if its to jinx your computer Like…[Read more]

Oh Min
I am crying as i post so don,t worry if it does not make sense,So so sorry,I just cannot believe it,I know it can happen very quickly,but he was still was walking about.I thought he was going to get over this one.
My heart goes out to you,I just wish I could do more.
All my love Eve
Min I just keep reading your post,so have come back on…[Read more]

Hi Paul I am Revomod too and I have always taken it late evening , usually aor a lttle afrer about 10 pm and there have been no problems , so Would take it when it suiys you . I do get hot sweats quiye often and I think that is due to Revlimid too but you should mention it , and any other side-effects tooo, when you nwxt go to hospital.It made…[Read more]

Dear Eve I am so sorry if I upset you and made you cry . Yrs I know I am being a dunce about going into the hospice but I just cant get my head around it yet If I am honest the news about Gaye going whilst in the hospice is still to frsh in my mind .But I have said I will go after radiotherapy if I need to The pain will or should reduce quite…[Read more]

what can I say except I am a woman.I have the right bits,just not working Eve

Hi Sarah
Glad to see you are holding up,tell us about your grandchildren. Eve