eve replied to the topic Macmillan Nurses in the forum Treatment 14 years, 7 months ago
Bridget you have made me cry,and i have broad shoulders,Bridget do as they ask ,
Go to the hospice and let them get your pain under control.
You have always told us no one should be in pain time to walk the talk,
hugs go out to you Eve
brocho started the topic Macmillan Nurses. in the forum Treatment 14 years, 7 months ago
I thought I would post this in here tonight after the other days misplacing ! Well after 3 days of sheer torture the pain has eased at last thank goodness!! It was without doubt the worst ever pain , even worse than when mm ate 3 of my vertebrae My instinct tells me it is this wretched tumour getting bigger , maybe only by a small amount , and…[Read more]
brocho replied to the topic Trip Down Memory Lane in the forum Off topic 14 years, 7 months ago
Hi everyone perfect timing by the BBC, they are running a series on BBC4 called The Story of British Pathe showing lots of the pathe nwes films and outlining some of the background Perfect for bringing back all sorts of memories for us oldies!! love Bridget x
brocho replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 7 months ago
Well think I have got it now–eventually ! I will follow Gills word with —-fireman. So man is the next lot Bridget x
OutdoorsPaul replied to the topic Welcome Paul in the forum Under 50s 14 years, 7 months ago
Hi All
Thanks for all the support and advice which i will take i promise!
Been on the RCD medication pathway for 11 days now so meds must be well into the system.I do have a slight sore throat and sometimes get a hot sweat usually after Revlamid in the evening. I was told to take Revlamid at "teatime" so duty fully taking at 5pm..could i…[Read more]
eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years, 7 months ago
Hi
I thought it had to be together eg:ESS ———-BLESSED.
i had trouble too Eve
brocho replied to the topic Who the heck are you. in the forum Off topic 14 years, 7 months ago
Hi Liz good to hear Kevin is doing well after his sct . It sounds as if Lady Luck gave a helping hand along the way , especially as they werent considering mm whilst looking for anaemia Heres to lots of luck and a very long remission love Bridget x
brocho started the topic About as ff Topic as you Can Get -2. in the forum Off topic 14 years, 7 months ago
Hi Gill the site wouldnt let me reply to your thread so I had to post another . I actually read your post late last night but as I was high as a kite on mega doses of morphine I couldnt make sense of it!! However today I havent taken any extra so my brain can t least read. The sun is shining and there is a wonderful breeze bringing a freshness…[Read more]
brocho replied to the topic Niggle, Niggle in the forum Side-effects 14 years, 7 months ago
Dear Dai and Janet have a wonderful holiday If anyone deservrs it you do Hope the red stuff does the trick nd keeps any nasty bugs away love Bridget x
eve replied to the topic Welcome Paul in the forum Under 50s 14 years, 7 months ago
Hi Paul
I am a carer to husband Slim,I sent you an email to say something wrong with your posting,other wise a lot more people would be giving you a welcome nod,no one seems to be able to reply to it.
My husband was on cdt to your cdr on myeloma trials,most people take revlimid before bed time helps you sleep.Specially after 4 days of dex you…[Read more]
eve replied to the topic Niggle, Niggle in the forum Side-effects 14 years, 7 months ago
Dai i do not know why you expect to be informed you only the patient,it does not matter that you have been waiting all day for something and it,s been over ruled by some one further up the ladder and no one has told you,just remember you are now an institutionalised patient:-P
I am counting those days to your holiday now .Eve;-)
eve replied to the topic A Right 2s/6d… in the forum Side-effects 14 years, 7 months ago
Hi All
Must admit I never got pocket money,but I can remember going to the pictures on a Saturday morning,I think thats were my love of western come from,but my big thing was Flash Gorden,he was always on the point of being killed and you had to come back next week to see what happened.!
Talking about cigarettes we could buy looses I know they…[Read more]
eve replied to the topic HOME AGAIN then back in to stay in the forum Treatment 14 years, 7 months ago
Hi Min
Hope Peters picking up a little bit,I use to worry about Slim and his dignity So i tried to be around as much as possibly,but he was so ill,he cannot remember any of it.
I think this will alter his own perspective of illness,and i think your life will get a bit easier Min.
Might do Peter some good to keep a picture on your phone,then…[Read more]
eve replied to the topic Appointments in Dairy in the forum General 14 years, 7 months ago
I agree Min we should be able to double up at least 2 of those appointments,We rang last week just to remind them of things that needed to be done,and was told not to worry things were in hand!!!!
when we went on Friday no appointments had been made,nurse made blood and Zometa.Told me nothing had been arranged to late to get hold of anyone.
bank…[Read more]
OutdoorsPaul replied to the topic HOME AGAIN then back in to stay in the forum Treatment 14 years, 7 months ago
Positive thoughts to you both & keeping shouting loud.
Paul
eve started the topic Appointments in Dairy. in the forum General 14 years, 7 months ago
Hi Everyone
I thought i would share with you,all the appointments for next Week.
5th sept—bloods 11am
5th sept—cat scann 6.15pm
6th sept—bloods 9am
6th sept—treatment—1pm
7th sept—zometa 4pm
9th sept—blood 9am
9th sept—treatment 1pm
11 sept—mri scan 11.40am
Each trip 30 miles round trip,the 1 clock…[Read more]
OutdoorsPaul replied to the topic The Under 50s Group in the forum Under 50s 14 years, 7 months ago
Hi Russel
I was diagnosed about 11 days ago now and I am 39 so we not that far off in age i think.Theirs a shed load to take in for sure but this is definitely a site to find good sold support and some possibles answers to questions you have.Its still all new to me plates spinning here and there,medication,hospital apps,work,social…[Read more]
OutdoorsPaul replied to the topic Welcome Paul in the forum Under 50s 14 years, 7 months ago
Hello Bridget,Elizabeth and charlie,
First of all many thanks for the replies,once i signed onto the site my broadband went down so I could not respond.Its still 50-50 so hence tapping out a reply now.
The advice about Dexatude I would agree with I have found my self a little spikey at times not like me as I am very liberal in fact quite…[Read more]
mhnevill replied to the topic Niggle, Niggle in the forum Side-effects 14 years, 7 months ago
Hi Dai
So sorry you have this last minute hitch before your holiday. Do hope you
get off soon.
Very best wishes.
Mavis
mhnevill replied to the topic Velcade induced Neuropathy in the forum Side-effects 14 years, 7 months ago
Hi Gill
So sorry your PN is so bad. Do hope some of the suggestions here help. It's one of the things I dread as I have something similar following nerve damage through one of my hip operations. I find Reflexology helps. Although sometimes a bit painful during the treatment it does seem to get the circulation going. I wonder how Dai got on…[Read more]