Hi Gina

Sorry Velcade hasn't worked for your Mum. Do hope the next few weeks bring better news.

Best wishes.

Mavis

Hi Chelle

So sorry you and your husband are having such a hard time. As everyone says, don't give up, these Consultants seem to be able to come up with a plan. If yours doesn't ask for a second opinion.

All very best wishes.

Mavis

Hi Gill

I do feel for you,at least you now know,and the battle begins,we are still waiting on MRI scann date for this Sunday,then hospital appointment for everyday except Thursday,have just worked out the mileage and we will be doing 210 miles to and fro that week.

I do not know which is worst knowing or waiting,Slim seem to take it in his…[Read more]

HI Dai
I take it the kept you in?????Eve

Sorry Deb,Slims on Velcade but does not suffer neuropathy I do give his legs a good massage,but i suppose you legs are to painful to touch ,I think Dai has a lot of knowledge and scott you could try e mailing one of them

love Eve

here is my memory for today
My mum use to buy every week something for Christmas,tinned fruit and things and put them at the bottom of the wardrobe,we were not allowed to touch them.

I can remember thinking if i made a little whole in the tin,I could drink the juice,and my mum would never know i got the old fashioned can opener and put a tiny…[Read more]

Hi Gill sorry I didnt spot your post before I sent you a message Blooming heck no wonder you couldnt sleep! Stephen must be so fed up at the thought of more treatment and surgery , sometimes I have a weak moment and want to say get lost when told I have got to go through it all again. I hope the next results are better news for you Take care love…[Read more]

Green shield stamps were amazing when they came out! I still have a few glass plates and a mixing bowl that came from there Mind you the amount you had to spend to get them was astronomical!! My mum smoked Embassy cigarettes and she used to send me up the road to sell the cigarette cards as they did a similiar scheme love Bridget x

Hi Debs just thought do you have any contact with the Macmillan nurses? They are expert in pain relief and so knowledgeable about different types Perhaps you could ask for a referral. I have found minne so helpful in all sorts of ways it might be worth a go for you love Bridget x

Any one remember green shield stamps,i know we saved books of them,cannot remember were we got them from??? or what they bought.

As you know i come from Liverpool,known as scousers,but did you know there is a stew that they call scouse you had it on Mondays made from left over meat from Sunday,and on Tuesday you had blind scouse which was the…[Read more]

Hi Gina
Your mum must be feeling low just being anaemic ,a blood transfusion should make her feel much better,until they decide treatment.When will you know what comes next Gina.
May be if you do some research to see what other drugs they use for Myeloma it might help,Hope your mum gets some blood as nothing worst than feeling washed out,and let…[Read more]

Hi Angela
What i am saying is you cannot second guess without more information,May be the nurse on Ellane on this site might be better at explaining it than I am.
I would hate you to think your father died because he was not well cared for.
I can only tell you after every cycle bloods are checked and any problems show up and your meds are…[Read more]

Hi Chelle you sound like an amazing woman supporting not only your husband but your young family too It must be very tough but I think you are right to share your fears and tears sometimes , none of us are superhuman !! By sharing your worst fears I am sure it must make it easier for you husband to talk about how he is feeling too To start up a…[Read more]

Hi Dai what bad luck hurry up and get well soon love Bridget x

Hi Angela
So very sorry to hear about your father.
It would be very hard to comment on people who are having chemo unless you know what type of chemo your father was on.was he on any special trials.
To be on the intensive chemo he must have been deemed to be fit,as your are boarder line at 65.How many cycles of chemo were given .
DVT are a…[Read more]

Hi Paul!

The system would not let me respond on your thread soI am posting here instead.

Welcome to the forum none of us ever asked to join, but which is here to help us all get support and info about this blasted MM.

They do seem to have moved quickly in your case, I hope the radiotherapy is doing its thing and that you will be a long…[Read more]

Hi Min I loved dripping on bread nothing like it now though One of the smells I remember vividly is bacon in a big sainsburys store . It used to fascinate me watching bacon and cheeses being sliced to order love Bridget x

Min
Be positive,IT took sometime for Slims infection to be controlled,and Yes it might not have got to this stage if he had listened to you.This just might be the wakeup call Peter needs,Slim does not believe me when i tell him half the things he did( has no memory) so he says 😛
Had to take him to hospital yesterday,local,took skin off…[Read more]

Hi Min
I am the youngest of 7 as I have grown older I realise why we were all sent to Sunday school.We lived in a 3 bedroom house with just a tap in the kitchen and outside loo.even if you were dying you were sent to Sunday school,I thought it was for our mortal soul,not for my parents.

Believe it or not Min our tea came from the ships,My dad…[Read more]

Hah I love Memory lane ! Does anyone remember the Saturday Cinema? We used to love getting the bus on our own then spending a very noisy , exciting couple of hours with a few sweets thrown in . The following week we played whatever games the best film had been about , cowboys and indians or robin hood stick out in my memory .The smart kids knew…[Read more]