Good morning Gill well the image of you on a soap box certainly started my day wuth a smile !! Absolutely nothing wrong with having strong opinions so keep on telling us like is please Gill Not sure about Carry on Posting though the only character I could play was the Bernard Breslaw one , very large and dim!! Haha hope you and Stephen have a…[Read more]

Hi Min poor Peter I really feel for him , what a hard way to learn that lesson! I hope he begins to feel better tomorrow and they can zap him with anti-biotics quickly Your description brought back memories of my sct where I had a few days feeling very similar In fact I ended up staying in hospital for 5 weeks and I would not have felt able to go…[Read more]

Hi Eve the reason it took a few days to post my news, actually there were a couple. the main one being I didnt want to add any more gloom when we are all still reeling from losing Gordon and Gaye But I do believe this site is a place where you can share both good and bad news, sometimes being able to voice your darkest fears puts it all into…[Read more]

Hi Bridget
I can see were you are coming from,and I can understand you superstitions, do not worry you will know when the time is right for you.
It has taken you a few days to tell us,and I do not understand why you posted in this part of the site.
You are worth alot more than this,if you had posted on treatment people would know,what is…[Read more]

Hi all
Just been diagnosed with Myeloma 11 days ago and just out of hospital after tests and some radiotherapy.wow certainly a alot to take in!!The medical staff were fantastic and we are certainly lucky to have the NHS.I have started taking my first cycle of chemotherapy tablets the RCD route/Myeloma 11 trial.I am 39 and quite physically…[Read more]

Fingers crossed here too, Dai!

Eliz
XX
X

I remember I used to be able to buy a pack of 10 Embassy, box of matches and a packet of polos to hide the breath smell when I was a teenager and still have change from a half crown!!

You are right, Gill, I took a double take at Ted's pic but thought, no, Michael Caine's "real name" was Maurice if I remember correctly. 😉

HiGill thanks for making me smile this morning , the image of you pulling that sock out was funny I have been thinking about how reluctant we are to go in to hospital and I agree with Stephen , time at home is precious and the thought of hospital food , beds etc is not a happy one I t was the hospice that wanted me to come in to look at my pain…[Read more]

Hi Bridget
I have to say it Bridget your a brave lady,very brave,were an earth do you find all this strength,and courage.It,s not just the illness it is the courage,as you go through each treatment,you manage to find a smile and help other people on this site,all though you are in a great deal of pain yourself.
In you own way you are a…[Read more]

Hi Dai all I can add to this post is that I have just found my lost keys —–in the fridge!!!Enough said! love Bridget x

No Tom have never been told that,I would hit them with my handbag if they
did:-P ,
Tom its just my personality,my sister says " I just tell it the way it is",as I have got older I do try to curb it because the last thing I would do is offend someone.It is also the fact that I am a scouser and they tend to be a bit abrasive.
So now you back i…[Read more]

Hi Tom you have been missed but I am so impressed you are doing your kitchen . Elaine must be pleased to see the light at the end of the tunnel too ! It drove me nuts trying to find anything whilst my kitchen was being done but I love it now Onwards upwrds and sideways if necessary ! love Bridget x

Oh Min you must want to shake him till his teeth rattle !! I am sure he knows you are looking out for him but I bet its a case of trying to remain in control when he feels out of his depth . I hope you can talk some sense into him when he is feeling a little better To be honest your post has made me feel a little guilty I am not very good at…[Read more]

Hi Susannah it really does seem unfair that Michael can only have Bendamustine as part of a trial . I have been tol it is one possibility for my next treatment , no trial , I am under UCH London. This postcode lottery for medication makes me so angry and the extra stress it brings we could all do without . I hope Michael is feeling a little better…[Read more]

Hi Susannah
I do not know any thing about Bendamustine trials only MX1 trials,I can only go on information I have.This is were Gaya would be very helpful,she fought hard for frontline drugs.
It is postcode lottery,you would think having roughly 3000 patients diagnosed with mm per year they would be trying to sign them all up for trials,because…[Read more]

Hi Min,
You are making me laugh,I know it is not nice,but you know I have been there before,I made up my mind next time it happens I will refuse to take him home.I liked the grassing up bit:-)wicked
I have told Slim I refuse to go though all that again,I felt so guilty I blamed myself for not calling an ambulance sooner.He does not remember much…[Read more]

Hi Min
As you know Slims on clinical trials,and must admit some good some bad has come out of it.I do not think it is wholly for are well being.
First you have to ask yourself does the consultant feel so strongly that this medication is the best he can give: the answer should be yes
Second Is the consultant just interested in advancing his own…[Read more]