Hi All
We find are senile moments very funny at times,were does the day go,looking foe keys can take up time,My husband refuses to go in my handbag,he claims he could loose his hand in there,the more we try to be more methodical,the worse it gets how many pairs of reading glasses get lost!!!.then add this Myeloma to the mixture with all these…[Read more]

Hi Gina
I was just thinking the same as Jill how are things going with your mum
love Eve

Hi Sally I am glad to hear your dad has begun treatment , fingers crossed he will begin to feel a bit better soon . He will probably still be tired when he is on treatment but he will learn to pace himself . Great that you have been in contact with social services and I am sure they will be a great help The Macmillan nurses are brilliant and very…[Read more]

Hi Dai

Left Liverpool 40 years ago,no regrets,when I first came down here,everyone thought I was Irish LOL now I have a plum in my mouth they think I am Welsh.
I know the Isle of Sheppey,few years since I have been there,Deal name fame is they lost 11 bands men to IRA bomb,they were all musicians no threat to anyone,most 18–21 years old.
I…[Read more]

Hi Jean
He is not to bad in himself considering the ctd has not done the job for him,and now started Velcade,another learning curve, 2weeks on 1 week off just started the week off.
he is not looking forward to having bone marrow taken at end of every cycle, but that is now the only way they can tell what is going on.One minute we are looking at…[Read more]

Hi Pauline this lousy illness plays havoc with all our lives! You must be very hurt by your husbands reactions but I think Jean and Eve have raised good points and as Jean said it has got better Perhaps you could contact his specialist nurse , in confidence , explain the situation to her (or him) and she may find a way to approach him about his…[Read more]

Hi Pauline and Jean,
Jean and I have had this conversation before,you will find Pauline there are a few others on this site with partners they feel like strangling some times,even with out the illness,that,s part of them,
I think jean and I came to terms with ,what was going on instead of getting angry we took the view( their body there life )it…[Read more]

Hi Russell
Bone Marrow is the only way to confirm Myeloma 100% it does show in bloods sometimes and sometimes it only shows in Urine there is about 5 different types of Myeloma,and there are related conditions.see related topics!!!
As I said you are young,looks if they have found it early if you look at home page and go into video,s there is a…[Read more]

Hi Dai
Thought i would let you know Dai Slim did not have Picc line,but solved his problem after last week looking like a pin cushion,bought a cheap hot water bottle fill it and wrapped it up in pillow case,applied to arm while waiting to be called in,works a treat,and no time wasting looking for veins:-)been to hospital this morning,have to go…[Read more]

Hi Tom
Have we missed you yes,yes yes,we thought you got lost in your jungle of cucumbers.We are in need of some cheer on this Forum,as ever one has been having hiccups,and the people who are doing well are reluctant to post ,

Kitchens do keep you busy though,mine is still not quite finished little things like light and blinds,but we will get…[Read more]

Hi Pauline
In life we seem to find this energy to cope with what ever comes our way,my husband has the same view as you,why worry about it,if you cannot do anything about it!!:-S I how ever try to jump there hurdle first,so i can make it easier for everyone else to get over.
He is the Myeloma sufferer I am the carer,but this diseases has taken…[Read more]

How like Gaye it was to make sure we were told of her passing on.

I am glad she was able to spend her last days peacefully and in such a lovely place.

RIP dear lady.

Elizabeth
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Wishing you all the best for your appointment today, Russell. I hope your consultant will be able to reassure you as to what steps they suggest be taken first, and that your treatment progresses uneventfully.

Most areas have a support group I think, where you can get together with others in the same boat as you are and find out a bit about…[Read more]

Hi Carol

Just wanted to add my happy respose to your good news especially as it comes just after i had read the sad news about Gaye and shed a tear for her.

Like everyone else, I do hope the 0PP lasts and lasts and that the revlamid maintenance works well for you.

Get out there and forget MM for a while.

Love Mavis

Like everyone else, I feel so sad at Gaye's passing even though she had prepared us for it. She certainly fought the brave fight and endured so much pain with fortitude. An example and a friend to us all.

I just take comfort that Gaye had prepared herself for her end; and because I do not believe death has the last word.

Gaye may you rest…[Read more]

Hi Sue really good to hear Michael is home at last and they have got that infection under control You must be sp pleased to have him home but I bet you are exhausted , no wonder you feel low after having the worry of Michael being ill and hospital visiting him. I hope that you can both relax a little now and please try and make some time for…[Read more]

Hi Carol
You are allowed a copy of all results,you do have to ask for them,I have most of Slims results,but some take a couple of weeks to get back as test are done in London,Leeds and Birmingham.
Any department in hospital can only give you result they deal with,computer does not allow them into anything not connected with there dept.
What…[Read more]

For Gaye ; This morning when I read that you had left us I cried . As the day has gone on I have been thinking of your wonderful warm nature and how your posts written with such warmth showed us what a caring person you were .When I first found this site I was unsure as to whether the forum was something I wanted to take part in , but the warm…[Read more]

Hi Ivan I am glad you were seen on the ward it really does make sense for them to see you as they know all the relevant details of your illness and treatment . I can understand you being disappointed having to take time off work but sometimes its the best thing rather than struggling on and making things worse. We have all had these minor blips…[Read more]