Hi Min
Glad to see you have posted at last was worrying,as all your posting was about other people and not how Peter and you were.:-)I hope it all works out for you on Monday,and Peter starts to feel better,now his back has been fixed

We need some good news on this site,so keeping fingers crossed that Peter is the turning point!!!,will be…[Read more]

Hi Craig
The Problem is Craig,you need someone who has been through the whole system of varies drugs,with all the problems that go with it,these people do not plan that far a head.As you may understand they do not know what will be happening by November so no one can offer you a guarantee!!!!.Even carers like Min who are very well informed,have…[Read more]

Hi Susannah

just to say that I hope Michael shakes off this infection and can resume the Trial soon.

Look after yourself. I know how much regular Hospital visiting took out of my husband.

Best wishes to you both.

Mavis

Dear Gaye

When I first came on the site i appreciated your posts and your support of others.

I do understand the decision you have made. Everything I read fills me with admiratin with what you all endure to prelong your life and to give this b….. MM the best fight you can. I am sure a time comes when enough is enough. I am glad you are…[Read more]

Hi Susannah
I have been following you post,but as you are head of my husband ,have not posted,posting now just to say even though you don,t know me,I am wishing you all the best and hope you have Michael home soon.Eve

Hi Gina

Sorry about your mum,Its not knowing when to make that call,thats the hardest thing,don,t we get conflicting info,telling you to see your doctor!!!! I have been told that if Slim is ill i have to take him to hospital as they can tell within half an hour if he has an infection,and the first couple of hours are crucial !!!
Anyway I hope…[Read more]

Hi Gill and Stephen
Keeping my fingers crossed for you,it must be a horribly waiting game for you both,plans on hold until you find out,but France beckons.:-)
it is lovely to have some good news,and i hope by the end of this month,you will be over the moon,and making plans.

Slim is in limbo at the moment,with ctd stopped and conflicting…[Read more]

Hi Gina your poor mum is really having a tough time lately it doesnt seem fair. I hope they get the answers they need from the tests very soon and they can then give her the treatment she needs. She is bound to feel down but hopefully her mood will pick up soon , she seems like a very strong minded lady and I cant imagine she will stay down for…[Read more]

Wow what great photos it would have been such a shame if they had remained unseen you are so very talented!!Thankyou for sharing them with us and I am sure the exhibition will be a huge success best wishes Bridget x

Hi Pam

I add my sympathies to ohers. I am just glad that your father didn't have to suffer treatment for MM which would have diminished his quality of life further.

I am glad he had a peaceful end and is now free of pain and at peace.

Best wishes.

Mavis

Hi Dai
I hope you had word with the tech who did the scan!!!
Janet this is a message for you if they only give you to pairs of stockings go out and buy more,if you have something the size of a bottles when washed put them on bottles to dry,trick i learn,t,if you want to save money have a swear box handy,because you will be .>:-(.
On a serious…[Read more]

Hi Gina sorry to hear your mum is still poorly but its amazing sometimes the difference a few days can make Paraproteins are coming down nicely and this should continue even if they halve the Velcade. I too thought anti-inflammatories were not good for us. Good luck and hope your mum feels better this week love Bridget x

Hi Pam so sorry to hear your dad has passed away . A peaceful end is all we want best wishes Bridget

Hi Mary lovely to hear from you How brave you are to do a sky-dive I cant even stand on some steps!! Good luck with it I bet your dad would be very proud of you Have a wonderful tile in Ireland and although wont be there physially he will be there in your hearts and memories so raise that glass for him love Bridget x

Hi Dai what a nuisance but thank goodness they did identify it in the end. I really dont envy you the stocking and injection routine , just remember not to rub your belly when it stings cos thats what makes it bruise I only found out after several days and my stomach was one big bruise!! love Bridget x ps it will save Janet going to the gym too as…[Read more]

Hi Dai

At least you know what you are dealing with. Glad it hasn't travelled any further. Sorry about the Walfarin and stockings though.

As you say "upwards and onwards"!

Mavis

Dear Pam I am sorry your dad did not have longer with you, but as Eve said he was spared having to go through treatment which would have been hard for him . He will always be with youso treasure your memories Take care Bridget

Hi Craig
Do you see what i mean about Dai,i hope you have signed him up.sorry no pressure Dai!!!!:-P .I think he would be ideal!!!

To Dai,boffins are no different to me and you,i have a good friend who use to be a boffin,and on a social level you would not have known it,
no pressure Dai.Eve

Hi Pam
So sorry about your dad,I know what you mean,when you look at other postings and this mm has no age limits i think the youngest is 29 on this site,also young mums with very young children.:-(
To me a life is a life and does not have age barriers,you still loved your dad and cared for your dad and did not want to see him with any more to…[Read more]

Hi everyone.

I found Dr Berenson's interview very interesting, particualrly as i have always said i wouldn't want to go down the road os SCT – because of my age and other non MM health issues, BUT mainly because of quality of life issues.

However, it was interesting to have seen this interview at this precise moment. Reading Jet's Blog of…[Read more]