Hi Jet
I wish you all the luck in the world,it is good to see someone doing so well,
as you know from post some people struggle, when you are in this position it is not very nice!!!!!.
There is an old saying (who wants to live till there 90,the person who is 89) so I do not think it is different what ever your age,I think you are very lucky!!!
Eve

Hi all of your wonderful Carers!

Just wanted you to know what a marvellous job you are all doing. I have always thought it must be worse being the one watching on.

Makes me appreciate my own hubby even if we all like to moan from time to time!

Love

Mavis x

Hi Pam

It must be good news that the MM isn't in your Dad's bones as this is what causes everyon with it so much pain, and because of your Dad's other difficulties would be very difficult to get under control.

I do hope that when the Haematologist looks at his other results they can find some treatment for any symptons without going down the…[Read more]

Hi Gill
So glad your out of hospital,do not worry about the emotional side .
Just take things slowly and try to do a little bit more each day,if you feel tired give into it your body knows best in this case,you will get on your feet again,just takes sometime.:-)
Make sure your wonderful sister takes a break,she will find it takes a lot out of…[Read more]

HI Sarah
Missed the post on Yorkshire did not show on emails either!!!!
Well at least Gordon tried it is very hard for them to admit they can no longer do things,i think that is why we have these battles with them,but it does show they are fighting this b—d Myeloma .

I take Citalopram 20mg,It does work stops you dissolving in tears,or…[Read more]

Hi Sarah poor Gordon not much of a break for either of you! Is the damage to his hip due to myeloma or is it steroid damage ? My right hip was destroyed by the huge doses of steroids but thhe hip replacement sorted it out and I have not had any problems with it The Blue badge is easy to apply for , its usually your local council, give them a…[Read more]

Hi Jet

Though I can't offer anything re SCT, not having had one, I just wanted to say that I will be thinking of you at the beginning of August. I think the fact that basically you are so fit to start with will go well for you.

I also like the new look! As Gloria says, you are lucky to ahve such good bone structure.

I shall look forward…[Read more]

Dear Dai and Scott

I'm glad to hear you ahve both got good partial remissions. Hope it makes all the miseries worth while.

I will cheer you on Scott and watch your progress as I too am not overjoyed by the thought of SCT.

Dai, I'm sorry you have to have more treatment, but at least it is well in the right dirrection and looks like Full…[Read more]

Hi everyone thankyou again for your best wishes Jo I hope you had a great week with your grandson , I bet he was excited!! I am still plodding on , but my macmillan nurse is back from leave and its been agredd she will make any changes to my drugs It was a real pain being prescribed something only to have it completely changed by the next person…[Read more]

Hi Dai congratulations on your good news and it is GOOD NEWS!! You are within the range and there is a high probability your numbers will drop even more by the time you have finished . I have heard good things about the once a week dose and if it does the trick it might be worth taking it a slower . I have no doubt you will achieve CR in the end…[Read more]

Hi Debs your dinner sounded awful !When I was in having my sct all I wanted at first was jelly!!My mum made some and brought it in but you can also buy it in individual pots too Get someone to get you a couple Fingers crossed the next bit isnt as bad as you fear it will be Keith good luck with your sct , it will be over before you know it and…[Read more]

Hi Pam so sorry your dad is having such a rough time , it must be awful for you watching him go through it . It sounds as if your dad is being well cared for in hospital which must give you some peace of mind If it does turn out to be myeloma I am sure they will be able to manage treatment to suit your dads health , they wont give him the strong…[Read more]

Dear Pam

I'm so sorry you and your family are having such a distressing time with the potential diagnoses of your father. I do hope that someone on the site will be able to answer your specific question, but I wanted to point out that not everyone with myeloma needs immediate treatment, so it may be possible that it will just be the results of…[Read more]

Hi John I do hope you remain symptom free for a very long time yet The treatment can be demanding , although consultants are generlly very good in working with you to find the right treatment to keep some quality of life balance The other thing in your favoir is the time to research all treatment options Provided you are generally fit and after a…[Read more]

Hi Jet I love your pic , you really suit having no hair it shows what great bones you have ! My sct was 4 years ago and I was petrified going into hospital , like most of us going into the unknown. I had the sickness and diarrhoea but I was lucky not to have too many problems with my mouth or gums . I had absolutely no energy whilst in hospital…[Read more]

Hi Gillian its good to hear you are doing well and I hope you can get home next week, there really is no place like it Your new house sounds exciting , even if it is a big undertaking !!You will get some normality back , probably sooner than you can imagine right now ! The main thing is to rest when you need to , dont try and rush yourself to do…[Read more]

Hi Min
I could not get in to the link,my brainy laptop will not let me access it.
How are things going with you.?
Eve

Hi Jo and jean and you Bridget
Nice to hear from you jean,
Jo I know that area so well,Tyne-E-Pull,spelling not good,use to be outward bound centre for waives and strays like me.:-P lol thats going back years.
Colamundy nr Mold another place.loved Betsy coede,Dai will be able to spell those names correctly. Climbed snowdonia many times I…[Read more]

Hi Gillian
Good to see your getting there,take any equipment they offer you,as you will need most things for a short while,and you can send them back,when you do not need them.
Slim did 22 days in hospital and was so so so glad to come home,progress was slow but little by little he is much better,and it does take it,s toll on the carer,it…[Read more]

Hi Min
I am the same,if i do not eat Slim will not eat,hence the weight gain.
Three dogs seems like a good idea,eating waste and all that walking!!!!

Previously to this illness,i shopped once a week,now its every day,it is something that Slims taken over,spending more money and wasting a lot of time,but he enjoys something he has control…[Read more]