Dear Dai

I'm so sorry "you were "really" ill"! You do seem to have gone through the wars lately. Still, if the temperature and all that followed means you get a rest from the Velcade, and then are hopefully approaching the last round, it isn't all bad.

I once had a junior Doctor try about twelve times to get a canula into my arm so I…[Read more]

Hi John

I am also in a "wait and see" stage having been diagnosed last October following the discovery of a tumour on my spine which was removed in LGI and followed by Radiotherepy. I am 66yrs old.

I am very happy to wait and I am in no hurry to begin chemotherepy – although I do take Bonefos. Having read very widely around the subject…[Read more]

Hi Eliz
I know it is unbelievable,nearly said some (miracles do happen) but thought better not.Called Slim in with bag of drugs in hand,saline drip first then Zomita,and while that was working,went over drugs with me,gave me blood results asked if any problems,even had a cup of tea!!!!!.that,s what i a service.
it took us both by surprise.eve

Gosh, Dai, you really have been through the wringer!!

Hopefully when (not if) you get the CR verdict you and Janet can start getting back to whatever passes for "normal". 😉

Eliz
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Wow, Eve!
That IS impressive 🙂

The shortest it has been for my infusions has been an hour and a half (plus 15 minutes each way walking along the long corridors)

Eliz
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Hi Jo
Thanks for asking after Slim.
Bloods,kappa light chains all going in right direction,on 6 cycle of ctd.
So why am I not running round in circles cheering!!!!do not understand it myself,considering the position we were in a few months back.Slims slowly getting stronger.
Appointment end of July with consultant,bone marrow test will be…[Read more]

Hi Everybody
I agree ,go with the flow,but what do you do when,you are a carer???
Slims lost so much weight with being so ill,it is very hard to feed him up,I buy all this lovely food,the fridge is so full with tasty morsels and he eats a bit and says (I have gone off this),I think to myself I cannot waste this and eat it,tried giving it to the…[Read more]

Hi Dai
There,s me thinking you had gone off on holiday and not told us,in case we were jealous 😉
Glad your back,you have been missed(a little bit).:-)
These things do not go unnoticed when are lyric and musician man goes missing without a telling us:-( as they have chucked you out,bruised and batted, but fit for duty,we hope to be hearing…[Read more]

Hi Bridget
Nice to hear from you,sorry they have not got the pain under control,funny the way some drugs work for one person,but not another,go back to what works,Try to enjoy the day,it is lovely and sunny down here on the coast.
Best Wishers Eve

Hi Gill20
May i just say everyone seems to suffer with bowel problems.You have to make sure you take a laxative on a daily bases otherwise you have a build up,even then you will find yourself needing a toilet very very quickly,after awhile it becomes the norm.part of the course with the medication.
Gill the one in hospital,my husband has been in…[Read more]

Hi everyone bless you all for caring Sorry I havent been around but I have been struggling with Revlimid and changing these wretched painkillers! Half the time I am out of it and the other half I am asleep Last week I saw a consultant who specialises in palliative pain care and he altered my Oxycontine dose from 70mgs twice a day to 200mgs twice…[Read more]

Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve

Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself…[Read more]

Hi Everybody

Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to…[Read more]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

Hi

Thank you for this. Just the information I needed.

Mavis

Hi Ian I am glad things have gone well so far apart from your reaction. I hope that its all plain sailing from now on Good luck and take it easy love Bridget

Hi Dai

Well we do not need to ask were all that talent comes from:-)you have every right to feel very proud,this is what life is about,doing a good job.
I know the feeling of missing a daughter,one of my daughter,s live in New Zealand only moved out there3 years ago,taking two very young children with her,so journey home is not on the…[Read more]