Hi Sarah,
Just so sorry to here sct failed,i agree with Bridget it is a bstd illness,Slims on a low dose of Dex now and seems to be coping better with it.
I even let him drive now,before every journey was,like a nightmare.
Let us know how you get on. best wishers Eve

Hi Sarah what a bastd this illness is , you must be gutted. Well Dex may be the most evil drug in the world but it is good at getting those pp numbers down quickly. Enjoy your break in Yorkshire I shall watch out for reports of a riot in Yorkshire !! Hang in there Sarah love Bridget x

Hi Kathleen sorry to hear you are having a rotten time hope it doesnt last much longer Your post made me chuckle at your new signature !!Being challenged in the dental department myself I love the name Gummy. Take it easy and I hope you feel better very soon love Bridgetx

Hi Sarah

So sorry to hear that Gordon's SCT hasn't worked. Thank goodness there are more options about these days. Fingers crossed that they find a good combination that works.

All good woshes.

Mavis

Hi Gill

Just to say we will all be rooting for you.

Keep strong.

Mavis

Hi Keith great news now you can forget all about it for the time being and enjoy your holiday!! Have a wonderful time love Bridget x

Hi Gill welcome to our merry band of slightly crazy but wonderful people ( cucumbers are a good example!!tee-hee) Actually I thought I replied to your post yesterday , either I was dreaming or the gremlins have pinched it It is very confusing when you first start on treatment but it will soon settle down as you get to understand all the new words…[Read more]

Hi Tom
I won,t ask what you do with the cucumber ,the mind boggles!!!:-S
PS is it any thing to do with onward and upwards

Hi Gill

Welcome to this site, I think we have 3 Gills now so do you become gill20?
Sounds if they have caught you early with having mgus.
My husband has mm and is on Myeloma X1 trials he got cdt side on 5 cycle having 6 cycle then see consultant.Just had another bone marrow sample taken yesterday.Thing seem to be going in the right…[Read more]

Hi Peggy
My if you have not got enough on your plate and this has happened you must be devastated.What a start to a birthday.It will get better,I know that it does not seem this way right now,but there are people ahead of you with not just myeloma,but extra problems as well so you are not alone on this journey.

Its my husband with mm,I also…[Read more]

Hi Helen
Good to know your mum feels a lot better. Its very worrying at the start,but your mum will soon get into the routine of things,do keep posting,it might help your mum to post as well,there is light at the end of the tunnel.
There will always be people who can help you,with any questions, so good luck and keep in touch eve

Hi Helen

Sorry you have had to join this site,but you are welcome.
this is what the site is for to ask question,get support,and rant and rave if you wish.so welcome again to the big learning curve.

Ask your Questions on the other sites as,Re starting a discussion is not were people on this site look very often,you will be picked up ,on…[Read more]

Hi Gill you are on the right site for info and lots of support from people who understand what it feels like At the moment it probably feels overwhelming but as your treatment begins it will all start to make sense You will have a specialist nurse who will be available , usually more so than consultants although a lot of them are very good at…[Read more]

Hi Gill

Welcome to the site,Its either you so shocked or it is a relieve that at least you know have a name to your illness,sorry you have to join us.
Ask any questions you need answers for,or thing you do not understand,look on it as a big learning curve.
I wish you a good journey eve

Hi Dai
Sounds if you are going through the mill,so what can i say your knacked through lack of sleep,Let it all out if any body is entitled to blast off its you,think of it as just another hurdle,and if you refuse to jump over it,i,ll bash you with my hand bag 😛
Tomorrow is another day,try to stay positive,do not let your demons rise to the…[Read more]

Hi Kay

Just wanted to send good wishes. Hope your wigs prove a knock-out!

Love Mavis

Hi Peter

Don't know if you read the American Site "Myeloma Beacon" but they were sugesting that it isn't licensed for all US yet, but said UK would follow. You do wonder why things take so long when it is obviously going to make things better for all of you on Velcad.

Take care.

Mavis

Hi Dai

I can really feel your frustration. No, it is not too much to ask for that someone reads your feed-bcak sheets and has a sound conversation with you. It doesn't sound like rocket science you are asking for. And is it really that Drs are so busy? I don't know, but do get the feeling that Drs find time to do what they think is…[Read more]

Hi only me

I've just caught up with these posts. Don't be down hearted about your Mum not progressing straight to SCT. Not everyone has a long remission following it and the immediate effects can seem pretty horrid. At least it isn't ruled out for her. For myself, I am in no rush for any treatment and have decided, at 66yrs and with other…[Read more]

Hi David

So pleased that things are working out for you and that the SCT worked.
Enjoy the next three months and forget you are someone with this dreaded MM.

Mavis