Hi Peter UCH is a London hospital I am also a patient there. Several of us have have asked our docs about the sub-q Velcade and apart from them being aware of its use in US no good reason has emerged as to why we are not !! It is so frustrating as this would make the use of Velcade so much easier for us . Have you ever had a PICC line? It is so…[Read more]

Hi Jo I am sorry you didnt get the remission with those drugs, it must be very scary for you as the options become limited, I know I dread it Sorry I cant help with the intermittent Melphalan ,have you rung the nurses on this site their knowledge of up-to-date treaments is excellent Good luck with whatever treatment you have next love Bridget

Hi Jo Min and Sarah thankyou all for your good wishes its you lovely people that keep me going! Min how wonderful that Peter has turned a corner at last it can only be onwards and upwards now!!Love the new hairdo too Srah your holiday sounds just perfect to get away from it all and I bet Gordon was pleased you went , I know I feel so bad that…[Read more]

Hi Angelina I am so pleased John was able to be with you and his girls at home for a short while and it went well Joining everybody else in crossing fingers toes and anything possible that he gets home very soon Angelina your strength and positivity are amazing I hope you can find some time to look after you as well love to all of you Bridgetx

Hi Min god to hear Peter has realised you need a bit of looking after too , even if its only a sandwich its the thought that counts. Perhaps he is worse this time because he is more scared , angry than the first time , I know relapsing brought up a whole load of emotions for me the worst being feeling helpless! I am struggling with these new…[Read more]

Hi Angelina

How are things going with John and yourself,just thinking about you this morning,just thought i would pop into site to see how you are getting on.
love Eve

Hi Kay

Good morning to you all,another lovely day,hope you do not spend to long in the hospital Kay.Wig or no wig,fat or thin,you still will be lovely,its what,s in side that counts.
wishing you well.Eve

Hello Meike and Christin

Glad to see your dad at least got out on his good day,Nhs supplied me with wheelchair for Slim,but I bought a light weight one from Halfords much easier getting into car.I know men are not keen on using it,but we would not be with out it now,and Slim has got use to it.yesterday we went out for 5 hours just packed the…[Read more]

Hi Dai,

Thank you so much for your very encouraging reply!

David has started his 3rd cycle of Velcade on Friday and had a couple of good days on Dex, we even took a trip to our local B&Q yesterday for some manly shopping. He took great delight in using one of those electric scooters they have in store for people who are not so…[Read more]

Hi Kay

You must be so disappointed ,its not easy when you build yourself up mentally to have the treatment,i know you started treatment in January,many of the others who started treatment about the same time, are now approaching sct.
Slim started in February sct has not even been suggested!!! will be end of July before we see…[Read more]

Hi Min I am so glad you are enjoying your gardening , if anyone deserves a break you do!Perhaps Peter needs a kick up the backide , I bet he doesnt even realise he is being a brat!!So let him fend for himself a bit , even if its only a few hours and I am sure he will realise how lucky he is to have you looking after him. You said you think us…[Read more]

I am so glad to hear you have been given 3 whole months off!!

Have a lovely relaxing time in the Rhine and take lots of photos so we can really envy you when you post them. 🙂

Eliz
XX
X

Hi Dai like youI have not had a full nights sleep since being diagnosed 5 years ago!! Apart from the fact that I have to sleep in a semi sitting position I rarely manage more than 2 or 3 hours a night! Mind you I can cat-nap with the best of them ,and Jeff watches me like a hawk sometimes ( I have been known to drop off despite having a cup of…[Read more]

Hi David
That is wonderful news,you must be feeling so high,and its great for us to see someone turning that corner,Champagne is the order of the day,I can see you now cruising up the Rhine sun setting sitting in the stern with a glass of champagne with your lovely wife,thinking isn,t life great,just wish it was me in my moterhome on the bank…[Read more]

Hi Gill

Glad to here Stephen managed his 2nd SCT
It is awful when you are stuck at home,first the hospital,then home I felt Spring came and went with out me knowing,and Slim has not got to the hard part yet,on 5th cycle ctd.

Sleep is the worst thing my body clock woke up if Slim moved!!!!!then in the day it just went on,bath toilet,fetch…[Read more]

Hi David lovely to hear your clininc had good results for you Even better when you dont have to go back for 3 whole months !Yippee!!! I agree with Dai dont apologise just get on with enjoying yourselves you both deserve it ! love Bridget x

Dai

How can you say that,I am a scouser,born and bred!!!!! warm hearted,lovely person and if you don,t agree i will do a Margaret Thatcher on you,I will hit you with my handbag:-P

PS got a plum in my mouth now stuck some were between my wisdom tooth!!!!

Dai
i have to say it,you have a wonderful way with words.eve
P S. Slims done 22 years of yomping in Marines just told him to go and join up again, lol

Thanks Stuart
Done and dusted next has to be photo,still learning promise not to say naughty words.lol

Hi Min
You sound about were I was a month ago,and it did not help people telling me to get some rest,
I lost the plot a few times,had to go to doctors,saves money not buying gin, lol . It did help to pop pills kept my temper under control,tears stopped flowing,saved a bomb on tissues.Only take them when my demons rise to the surface.
I have to…[Read more]