Hi Wendy so glad you are home and feeling better There really is no place like home is there Stay well love Bridget x

Thankyou everyone for your support as always it makes the world of difference My lovely and very wise Macmillan nurse came today and has suggested increasing the Oxycontin to 70mgs morning and night plus increasing Severadol to30mgs Fingers crossed it works She was rather annoyed with the doctor for ignoring her other reccomendations for patches…[Read more]

Hi Michelle sorry to hear mum has had setback but it sounds like her doctors are on the ball!! I am also on Revlimid and I have been told Cyclo may be added if Revlimid beomes ineffective on its own Could the P drug be Polpomanide( not sure of spelling ) if it is Gaye is on this one I believe. Good luck but with your positivity and your mums…[Read more]

Hi Sue just want to wish you luck for Friday I hope they come up with a good treatment plan . Crossing fingers toes and anything else for you love Bridget x

Hi Roz
I feel like a naughty school girl,the first time i thought what an earth have I said,because I do not swear normally,I was upset by the whole thing,and thought,have i offended someone.
The second one ,was saying H-e-l-l.Tom told me how to get round it,but you have to question ,who would find it offensive
Glad you seem more upbeat…[Read more]

Hi Heath I had not heard of PCL thankyou for letting us know Your wife must have been a very determined lady and I am so sorry she is no longer with you.All the best for the future love Bridget x

Hi onlyme good luck to your mum on the next stage of her mm journey Fingers crossed Velcade will do the trick !!love Bridget x

Hi Clopot brilliant result with Revlimid!! Do you have any nasty side-effects with it and do you take Dex as well? long may it continue love Bridget x

Hi Eve thanks for that , I was told its the liver getting used to morphine that leads to higher doses At the moment I am relying on Severadol just to get through the day Hopefully the Macmillan nurse will ring and up the Oxycontin dose soon , if not Iwould rather go back on mst morphine at least Tlcan function better on that Take care love Bridget x

Brilliant news Dai you and Janet must be on cloud 9!!! Heres to the next results being a big fat zero!!! love Bridgetx

Hi Everybody

Slim was changed to Oxycontin in hospital,when we asked why,told it was better because it worked longer up to 12 hours,I think they said it was opium based,morphine mst worked faster,but the body gets use to the drug and becomes less effective leading to higher doses.
As for Tramadol Slim was taken off them again by hospital as…[Read more]

Hi Angelina your girls sound lovely and such beautiful names Whatever you decide about a memory book they will cope because they have you to guide them through it , Sending big hugs to you all love Bridget x

Thank you Dai
Dai you are in the right,It does get me down,today was another hospital day,believe it or not we were only in there for one hour miracles do happen.

I think you are right care,s do get overwhelmed,many cannot express them selves,i must admit my spelling has got much better since I have been posting,but my grammar needs…[Read more]

Hi Roz

You hav not heard from me before,so when you posted again I thought if I replied you might think{who is eve]:-)
I came on this sight in February husband has mm.but do not think you are forgotten I read all your posting because i had to know what the future held,I have thought many times how you were getting on,so many people come on…[Read more]

Hi Wendy
Sorry to here you are in hospital,Raging diarrhoea not nice,but you are in the right place,if it was a infection they would most probably not like to have admitted you! fluids is the big one with diarrhoea,and being an impatient any test will be done earlier.It must be very hard to cope with living on your own,
Hope your well soon love eve

Hi Bridget

I too had you on my mind. I do hope and pray that you find something to get this pain under control soon. since I was diagnosed and had op to remove tumour my pain has always been bearable, if limiting, but as others have siad, i have always found using several pain killersw together seems to work best, Do hope they increase your…[Read more]

Dear Angelina

Just to say I am thinking of you John and the girls at this very difficult time. May you find the strength you need and an assurance that this life isn't all there is. Love never dies and your Memory Book will be ione way of keeping it alive.

Best wishes.

Mavis

Hi Claire

I can understand you being confused about your Mum's diagnosis. The good thing is that two years later you are here rooting for her. It is a difficult disease to understand because everyone's path through it is so different.

You have come to the right site. Ask any questins and I'm sure someone will be able to help'

Best…[Read more]