Hi Wendy sorry you are going through it , nothing worse than raging diarrhoea!! I think a couple of people on here have had similiar problems on Velcade Have you spoken to your nurse about it possibly being a side-effect of Velcade? I hope it clears up soon and you are able to go home love Bridget

Hi Eve, Shirley and Jo thanks , you have all made me realise just what a high dose of mst I was on , 90mgs in the morning and 100mgs at night, so I shouldnt be surprised the initial dose of Oxycontin wasnt enough The pain has been awful this weekend so I am going to ring tomorrow and ask them to up the dose or put me back on mst morphine Eve I…[Read more]

Hi Gill I am sure that being at home is just what Stephen needs to begin to feel better Who else could take better care of him than you So heres to the good times to come , hopefully they wont be long love Bridget x

Hi Roz good to hear from you. I have just read your reply on another post about Michaels memorial garden , what a lovely idea and you will be able to enjoy it too and feel close to him Take care Roz and one day at a time love Bridget x

Dear Angelina I hope John pulls through this rough patch but I think you are wise to begin a memory book now . I used to work with children who had lost a parent and I know how precious a book celebrating someones life is to them If you ask people now you will get lots more positive happy memories ,if you leave it till afterwards grief may make…[Read more]

Hi Gill
Hope Stephen picks up soon,think about a good holiday in France when this over,that must take some of the pain away.When we go to Dover and watch the motor homes going on the ferries,I have pangs of jealousy knowing it is going to be some time before we manage France.

wishing you well Eve

It is good to hear from you, Roz!

I often think of you and hope you are managing to sort things out and jog along OK

Lots of luv and hugs
{{{{{{{{{{Roz}}}}}}}}}}

Eliz
XX
X

Hi Angelina
I would not know how to advise you,but just had to let you know,my thoughts are with you,I think I would cling on to the fact he would not sign that form,I can see why it is important,to get your life in order,I can remember when Slim was in ITU i left him sleeping,came back 4 hours later he was so upset,he thought because i did not…[Read more]

Hi Bridget

Slims on Oxycontin 30m twice a day morning and evening,also liquid Oxycontin allowed as needed,but if he starts using it all the time doctor will up the pills.but not needed at the moment.

As you know Bridget Slims had a bit of a rough time and can take a lot of pain,the Oxcontin was given in hospital as before Slim was on…[Read more]

Hi Min poor Peter really does get the lot doesnt he !! I have had severe indigestion at times but have only used the remedies you already know about I hope they come up with something very soon for him it must be awful love Bridget x

Hi Jane and Pat welcome to our little world Jane your mum sounds like a real trooper !! Sorry I cant help with the Thalidomide question but constipation is a common side-effect wuth all myeloma treatments I was unable to concentrate on anything for more than a few minutes in the early days but it has improved as time has gone on Take care and I…[Read more]

Hi Gina great to hear mum is home now , and she will soon be back to her old self , but it may take a little time after being so poorly Hopefully it wont be too long before she is on Velcade and it works its magic for her Please give her my best wishes love Bridget x

Hi Angelheart so sorry your post got lost , thank goodness for Dais eagle eyes!! You must be overwhelmed after being given the diagnosis and it is terrible that there was no-one for you to talk to Have you tried phoning thehelp-line on this site , they are wonderful and will be able to answer a lot of your questions I am sure Good luck and please…[Read more]

Hi Min

He will not let me stick anything up his bottom LOL he must be getting better his dignity is coming back,!!!!;-)
Seriously Min its a bit of a fight with Slim,he takes so much,just does not want to try any more,looks if its starting to work,should do drinks it out of bottle>:-(
As for weight gained some then had v&d and lost it.Sorry…[Read more]

Hi Pat and Jane
Min and jo ,s advice is good,just want to add it is important to drink a lot of fluid as you need to clear kidneys,to be honest your mum seems to be doing ever so well,it must be hard living on her own,if i am correct the nurse on this site can put your mum in touch with some one with same condition,ask Ellain ?

Might be worth…[Read more]

Dai
I have thought about it Dai,do you remember my old post[can I have a moan]that other eve ranted and raved,had high blood pressure,needed a g&t to calm down,everything was so inefficient,time wasted,and do not get me wrong Dai it still is,but it has become the norm,and I have got use to it,we still wait hours for tablets,we have appointments…[Read more]

Dai

Love the song ,it,s lovely,glad to here your feeling better after your poo problems:-) ,Its nice to wake up in the morning and read your post brings a smile to my face
Angelina.have been wondering what was happening with you and John,not a good time for you,glad things are improving,Slim and I laugh about him seeing long legs in riding…[Read more]

hi Gina
Hope you mums out and is on the mend,:-)

MOnday,Tuesday and Wednesday at doctors,no infection,but blood counts done,changed doctor in practice,feel someone is listening to me at last,
Slims gone from one extreme to another from D&V and general feeling ill and BP low.Now feels much better,but no bowel movements since Sunday,been dosing…[Read more]

Haha Long Live Movicol !! It is a lesson I learnt fairly early on Dai as I am on large doses of morphine as well But oh the joy of success is a wonderful feeling and to have working taste buds too!! You must be in seventh heaven long may it last!!! love Bridget x