You have all started my day laughing,its going to be a good day,
Bridget be careful do not sit on those stools you might fall off!!!lol

Min I shopped on line for all my appliances a annd saved my self around a thousand pounds,because I have small kitchen,went for combi oven,and waste disposal,needed everything got good makes,delivery often…[Read more]

Hi Min sounds like a good time to have it done , very dusty here and getting to the loo has been tricky so Peter is best out of the way Tomorrow the units go in and they are tiling on Saturday !!I was able to choose from half a dozen cupboards , flooring , worktop and paint clours , even door handles Afar cry from the old days when tenants had no…[Read more]

Hi Dai your tour sounds wonderful if a little exhausting maybe , pace yourself But how lucky to be able to race your ancestors I am so jealous coming from anglo -irish- french- stock makes it tough to find mine Hope you both have a lovely trip and leave all thoughts of mm at home love Bridget x

Hi Angelina

Now that is interesting,as Slim served many years,as a young marine on board ships,travelling all over the world,also the other ex marine same age as Slim served in roughly the same places at the same time.
I know the old navy ships were covered in asbestos and Slim said were they slept above them were pipes covered in the…[Read more]

Hi Bridget

I had one of those slobs,by nature, she was so bad even the spiders left home,cobwebs stayed and gathered dust.

Out of the blue,she left her partner of 10 years,who was a nice chap.Met another man,and within a very short time married and had 2 kids in 13 months,she is now an earth mother,spotlessly clean,you would not know it was…[Read more]

Hi Dai your garden sounds lovely ,more power to Janet clever lady. I used to love pottering around after work just watering and dead-heading, cleadred my head from the horrors of work , they are such healing places in all sortts of ways arent they? Good luck for your ct on Thursday I will cross fingers toes that it shows a big fat zero love Bridget x

thanks Min
Always there with good advice,Slim and Peter seem to go hand in hand,only you are ahead of us.
Do you wonder whether it is related to being in the RAF,the reason I ask,is in my doctor,s surgery,there is Slim with Myeloma,and another ex marine with AMyloids,Facts are 3000 people a year get Myeloma,600 People get related condition of…[Read more]

Hi Eve yes I know I will love it when its done the council are doing it so its not high spec but it will do me just fine and all tiled and decorated is a big weight off my mind . I think the cleaning firm is a great idea , your time is taken up with hospitals so you should definitely treat yourself , I might do the same !! My daughters think life…[Read more]

Hi Bridget

It will be worth it in the end,I had mine done just as Slim was diagnosed,had been arranged earlier and felt,I had to go ahead with it.
Believe it or not it kept me sane,I was so busy with kitchen and bathroom ,and Slim being admitted I did not have time to feel sorry for myself,saved a lot of money not buying gin lol.
After Slims…[Read more]

Hi Marian thnk you for letting us know how you got on As you say the worst is over now, it does take time for it to sink in but as your family see how your dad gets his treatment and copes with it things become less dramatic and urgent Life does become normal again , slightly different but you find a way to live with myeloma I ts brilliant tha…[Read more]

Hi Jo

No not possible round trip of at least 160 miles,journey alone with bone pain would be bad for him.

It,s not so much the myeloma trials,It is the conditions which seem to go hand in hand with it,Slim complained of pain in side for a long time,we thought bone pain, when the cat scan was done turns out lots of wedge shape holes plus…[Read more]

Hi Min like Peter I am now over 3 inches shorter than I used to be my remission lasted 18 months , which is not a very long one but neither is a very short one . It is an interesting thought though I have not seen anything to suggest spinal damage might affect remission time Hopefully you will get lots of answers which give an overall picture…[Read more]

Hi Carol welcome to our happy little band , I am sure you will get lots of replies. Bone pain is very common and doesnt necessarily go after an sct . Your consutant doesnt sound very helpful perhaps if you had a chat with the specialist nurse and rxplained how difficult it makes life being in constant pain . I have extensive bone damage and the…[Read more]

Hi Angelina

Yes I can relate to your post,not as bad but very frighting,Slim has had a few bad times,being an ex marine he has seen and been in many bad situations,but these nightmares he tells me are so frighting,had about 4 in itu,panic attacks they said ,but when we talked about them,they were nightmares.Must admit at time my thoughts were…[Read more]

Good Luck Min

Wish I could help you more ,no knowledge of treatment as you are ahead of us on this journey,Peter is a fighter and I think this goes a long way,I wish I could say more in words to comfort you,but we all know,these are desperate times,
Too stop my self from loosing the plot,I now resort to popping a pill,tried g&t,not a good…[Read more]

Hi Dai I think you are very disciplined really , they say we all have a book in us but very few people actually do write one !! I love your outline and I am looking forward to reading it Happy writing!! love Bridget x

Hi Angelina blimey you must both have been exhausted come the morning!! It must be scary to see your husband like that . I think it must be due to the meds, as you said he takes a lot of medication and who knows how they interact with each other. I do have very vivid dreams , sometimes it can seem ages when I wake up working out what is real . I…[Read more]

Dear Min I had to read your post twice as it didnt seem possible that this wretched myeloma could kick you in the teeth like that Thank goodness though they were able to pick it up fairly quickly and come up with a strong plan to knock it right back. I feel for Peter , the thought of having to go through all that must be hard to contemplateThe big…[Read more]