Hi Marian!

Just a suggestion that migh help – I always take a small digital recorder to my doctor appointments and record the whole thing so I can listen to it later and confirm in my mind just what was said and work out what questions I need to ask my doc or specialist nurse.

Mine is very small (the size of a memory stick) and I download…[Read more]

Dear Bridget

Just caught up with your troubles. So sorry because you are so brave ans an inspiration to me. Hope improvement continues.

Thinking of you.

Love

Mavis x

Dear Eve

Have been off site for a while. Just caught up with all your troubles.
Just to let you know I too am thinking positive thoughts for you and Slim. I sympathise with your wish to get him safely home as soon as possible. And they say the NHS is safe in their hands!

Love
Mavis

Hi MIn
Not good min,
I now know why they call those little girls who try to get you walking o/t,they go over the top,left Slim for 4hrs he was due to eat,have cat scan and have a rest period, this ot decided Slim was going to walk,ith zimmer with sticks and do stairs and Slim put on a great act and did the lot only to be exhausted for rest of…[Read more]

Hi min
just woke up, thank thank you so much,I need to know there is hope to give him hope,At the moment reading your message you could be talking about Slim I know I have left him tonight wondering if this is the end.The doctors do not know it,his attertude is I have got away with it for 66 years!!!!I suppose,because of his life style he has…[Read more]

Hi to you all

Tom you are going to have to tell me how i can do it,because I know I am loosing the plot.
just got back from hospital.Slim had cat scan today,not good news.
Blood clots on lungs,also cavities might be mm or could be tb.my own thoughts are possible asbestos as Slim use to sleep under the piping on board ship as a young…[Read more]

Hi Fi sorry you are in the position of needing to join us but welcome Myeloma is such an individual illness it would be nearly impossible to guess whats going on with your dad as it needs the whole range of results rather than just paraprotein There is an excellent helpline on this site where medically trained people will be able to give you…[Read more]

Hi Roz thankyou I do feel much more positive that was just one of those nights when the pain got too much and ended up in dark thoughts I am sure we all have those nights !! Mri today and hopefully have results by the end of the week Mind you the pain has been gone since I took my steroid dose so maybe it wont come back! I hope you have a good…[Read more]

Morning Eve away with the blubells sounds good to me !!Cant think of anywhere nicer in fact As for the offense dont worry we have all done it I am sure and it was probably a minor thing How was Slim last night? Are you able to get any rest? Try and take a little time to recharge your batteries away from the hospital its exhausting visiting anyone…[Read more]

Hi Jean nothing wrong with being a nutcase !! sorry poor humour sounds like counselling was really helpful for you Myeloma affects so many people not just the patient , my poor mum is not the same person since I got mm and she worries so much it affects her health too Snap I have an mri tomorrow too , I hate them !!Pain has disappeared since…[Read more]

Hi Min I know what you mean individually the side-effects sometimes seem not worth a mention but as a total they dont make for a happy life. Peter seems to have been very unlucky as far as his diarrhoea , that must be so depressing. I am at the point where the endless chemo in one form or another can get me down , in almost 5 years I have only…[Read more]

Hi Kathlean and Jean no wonder you are tired and on edge I really do think its easier being the one with mm , husbands and wives are the ones who shoulder the burden .I am about to make a sexist remark so all males please close your eyes!! I think as wives and mothers we are used to being in control of our loved illnesses I am sure you know what…[Read more]

Hi Min yes I agree Revlimid makes life very unpredictable doesnt it !!. I cant say its the easiest of drugs to live with and initially I thought it would be less evil than the others. Has Peter got a cough? I think its all the extra musus being produce rather than infection biut it is turning into a really nasty cough which has me gasping for…[Read more]

Morning Dai how true tis is !!There is nothing better than listyening to Howling Wolf or Muddy Water when you are fed up and realise we aint got it so bad!! As for Leonard Cohen thats for the seriously depressed and works just as well love Bridget

Hi Angelina poor John is really having a rotten time but as you say he is in the best place at the moment. I didnt have any diarrhoea when on Velcade , my problem was severe constipation. It was explained to me that velcade affects the nerve endings in the bowel and intestines in the same way it affects fingers and toes, it sounds as if John has…[Read more]

Hi Angelina thankyou for your caring words. I phoned my nurse today and she is going to make sure the mri report is seen this week and will phone me on Friday bless her!! She has also suggested Fentanyl patches for the pain. But its very strange I have had no back ache this afternoon and evening , thank god,all I can think is the weekly steroid…[Read more]

First chance to reply
Ward went in lock down today no new admissions place swarming with cleaners. Slims septic pneumonia is back, had 24 hour bug,on the whole much better,Test to see if there is an under lying infection.Doctor does not think it is directly related to mm,except concerning the body being at low ebb,to pick up infections.all the…[Read more]

HI Bridget,

You are all ways there to support people,in time of need,I wish you well and will try to follow your post to support you as much as I can.best wishers eve