Thankyou everyone your support means such a lot. Wobbly moment over but I am definitely going to ring my nurse tomorrow as this pain is more than can be blamed on dusting unfotunately !! lots of love Bridget x

Hi Dai good luck for tomorrow . I didnt find velcade too bad at all really , no sickness or nausea but constipation was a bit of a problem, best to take laxatives early on love Bridget x

Dear Gaye yes housework is a perilous business , perhaps its best avoided if only sunshine didnt show all the dust up!! I am less panicked this morning but will definitely ring and tell them to check my mri results sooner rather than later, the pain is exactly like the original which led to diagnosis so I need to know . I am so sorry to hear you…[Read more]

Dear Roz,

It was great to see a post from you and hear that your kitchen is all fixed up now.

Your remembrance garden and Michael's bench are such a lovely idea and I wish you many pleasant hours with the birds in the future.

I have missed his actual birthday but I will be thinking of you and Michael today and hope it will be possible for…[Read more]

Oh Eve!

Nothing to say except I am thinking of Slim and you and holding you both in my prayers.

I wish I could give you a big hug

{{{{{{{{{Eve and Slim}}}}}}}}

Elizabeth
XX
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Hi Min good morning the laptop decided to go to sleep last night so I didnt see your reply You are right morning things dont seem so scary but I do need to ring tomorrow as this pain is deinitely more than strain, not much point today Thankyou Min for being there just what I needed someone to point outthe obvious which you cant see yourself in…[Read more]

just got in
THere is now a bug on ward number of patients infected Slim being one,was talking about shut down,doing all personal care ,picked up on antibiotics and fluids,plus potassium low.
exray not looking good patchy lungs,I cannot tell you how many people I have spoken too.Even Slim in one of his lucid moments,had a slanging match with a…[Read more]

Hi Roz you need to click on your name where it comes up on your post thenclick edit profile , this lets you change your e-mail It is such a shame your daughter doesnt visit perhaps she finds it hard not to see her dad in the house Could you suggest meeting her elsewhere perhaps , it might be easier for both of you Hope you have a good weekend…[Read more]

Dear Eve its heartbreaking reading your post and the last thing you need when Slim is so ill is having to worry about his basic care. Although Slim is on a general ward surely his own consultant must be responsible for his care!! What sort of response have you had from the consultant or specialist nurse? I found out many years ago that when a…[Read more]

Hi Min
The news is not great I am going to try to keep this reply short

After being discharged from A&e,then readmitted 2 days later on easter monday Slim spent 9 days in itu with septic pneumonia in both lungs,care excellent,
sent to general ward,as cancer ward would not accept him,hdu was not given as alternative.
First complaint wrong…[Read more]

Dear Roz lovely to hear from you. Sounds as if you have been busy with yoiur new kitchen etc , I bet its great now its finished. The council are fitting me a new kitchen and bathroom soon , trouble is they are doing both at the same time so the mess will be double!! I hope tomorrow is a day full of lovely memories for you Take care of yourself…[Read more]

Hi Dai thankyou your words are so poignant and moving love Bridget x

Hi Angelina roller coaster it certainly is , I suppose it stops life being boring though!! Like John I lost 3 vertebrae and had surgical reconstruction , walking is difficult some days worse than others As for the pain you just learn to live with a certain level of pain controlling it as best you can. It must be very hard for you with your…[Read more]

Hi Angelina what a tough time you are both going through but reading your post its obvious that you and John are fighters to have got through such a hard time in the beginning Although your husband has mm I am sure your strength has helped him to get back on top and hopefully it wont be long before he is home !It is definitely better to be on…[Read more]

Hi Sharon good luck but you will be well looked after on trial I am sure Try and put it all out of your mind for a few days and do something nice and luxurious! love Bridget x

Hi Liz great to hear Kev is doing well and normality is just around the corner!! Make sure he is careful to cover up in the sun though love Bridget x

Thankyou Amie its very humbling to see the effort all those lovely people go to raise funds , especially the children Bridget

Good to hear Kev and you are starting to get back to "normal", Liz!

I remember how good it was to have the Hickman line out, It was such a fiddly business trying to keep the connectors dry when having a shower!

Wishing you an uneventful few weeks while he gets his strength back and hope you both get some rest and relaxation over the summer,…[Read more]

Hi Min yes weird in many ways and probably always have been !! They seem to think the rise in klight chains is significant but to be honest I think they are fuessing really , who knows! What a shame Peter had a few bad days when you were so looking forward to the grandchildren coming. I agree thought the unpredictability is hard to live with , if…[Read more]