Dear Eve congratulations to you on your marriage and to Slim for turning a corner!! I hope he makes it out of itu soon . As you say it will take time to get his strength back and he will need that if he restarts chemo . How are you? You must be exhausted I hope someone is giving you some tlc even if its only a nice cuppa when you need it. Onwards…[Read more]

Thank you every one for all your Help

Had a tough week and a big learning curve,we got married on 26th of April instead of 28.th The hospital did us proud,cannot thank them enough,good job we did it then as Slim was a bit off his head the next day,and I am sure the Registrar would have said he was not of a sound mind.
Only managed one daughter…[Read more]

sheff
This is to you personally ,I need to Know more,I do not know if we can post are email address on here, but I do need some facts on this.
My husband was diagnosed in January on myeloma x1 trials ctd side.

He is in hospital at this moment in itu.getting better slowly from infection but what concerns me,is the mental state,I do not know if…[Read more]

I am so sorry to hear that your Dad has passed away, Mary.and Theresa.

It was good that you were able to say your goodbyes to him in familiar surroundings.

Sending all my love and best wishes to you all.

Elizabeth
XX
X

I am so glad to hear you persevered and called 999!

sometimes we just have to believe in our gut instincts.

My husband is prone to developing pneumonia after a cold so I have been known to exaggerate his symptoms to the duty doctor in the night if it looks as if he is heading that way in the past as I know in a few hours he will need…[Read more]

Hi
thought you all might like to know,low blood pressure,indication of infection,it was not picked up on at a&e on Saturday,as dexi managed to hide the infection.Sent home what happened to this extra care for taking part in trials !!!!IF I had not phoned for ambulance Slim I dread to think what position we would be in,I would never have forgiven…[Read more]

Dear Mary thankyou for your post you really are an amazing woman , full of compassion for others I am so sorry your dad has gone but reading your post helped me understand how important it is to be with loved ones and to hear he was pain free and comfortable and able to talk to you all made me think thats about as good as it gets Sending lots of…[Read more]

Hi Kay yes I think you are right about a new name , that will keep me amused for awhile !!Perhaps others would like to add their suggestions . Kay I am really sorry I havent posted your hat yet , I have the memory of a goldfish , I will post it on Tuesday promise How are you feeling ? Hope you are enjoying the mini summer love Bridget x

Hi Min good to hear Peter is feeling better and great that his back pain has eased up too Theres a lot to be said for sunshine, recently I read about a couple who moved to Italy just to get the relief the warmth gave them from their bone pain Not sure I would do so though , far better to take lots of holidays in the sun, I am not so tired all the…[Read more]

Hi Chris I am so glad to hear you have got the all clear at last!! Bet it was driving you crazy especially with the weather being so nice My chest infection did go but I think there may be another on the way , possibly something to do with loads of mucus and I blame Revlimid Still I dont feel too bad adter the first week of the course now and…[Read more]

Hi I am not sure I can offer any useful advice really but a count of 12 pp is not too high .I am sure your mil doctors will be looking at the right time to offer more treatment, they were probably waiting till after the radiotherapy As far as I know radiotherapy does not affect the paraprotein levels . It might put your minds at rest if you ring…[Read more]

Hi Dai good luck with the velcade issue , if we all ask about the sub-cu then maybe they will hurry it through here ! love Bridget x

Hi Shirley happy easter to you too love Bridget x

Hi Joe I am so sorry you are having to deal with all this but thank goodness your mums tests were negative As for your own tests I agree with Jean and Gina , tell your mum and dad they probably sense something is wrong anyway. Dont bear the worry all on your own share it with them , they will wnt to be there for you just as you have been for them…[Read more]

Thanks Min
Will try 7up,,does not like flavoured water,a little bit better today although still not eating drinking small amounts.

Hospital tomorrow for bloods,the unit will open tomorrow,so I am going to ring first thing,see if doctor will see him,needs fluids inside him.
not so confused today,energy levels zero.
The problem with him,is he…[Read more]

How many ciders?,you enjoy them and have one for me

thanks Jo
Have managed to get rehydration powders and some energy drinks which I am mixing with drinks,that he likes.Also find straw is helping ,every 10 min I make him have a few sips,seems to be working,plus the threat of hospital,
First time Slim has not got out of bed,

Thanks again jo,it brings it home how this mm reacts so different on people

Thanks for reply
Hard to get fluid in Slim,has been so good about it for last 6weeks,has a sore throat,as drugs attack soft tissue,I know this is going to be a hard time,but the low bp is it normal ,
My daughter has found a chemist open and managed to get rehydration powder,plus energy drinks,having to put them in other mixers to make them…[Read more]