Hi Keith and NIgel
I just found your post when I was looking for some info on feeling so bad,my partner is just finishing 3 cycle of ctd and starts 4 on Friday.

The problem is he feels so bad,ended up in hospital yesterday,very dizzy ,turned out,low blood pressure and Dehydration ,although he was drinking well up to feeling lethargic last week…[Read more]

I am not dead yet sounds good to me Dai Although in my case stage 3 will be " Are you still here?" !! It would be great if we could all arrange to meet sometime in the future , we share such a close bond on here it would be lovely to meet the people behind the posts ! love Bridget x

Hi Gill thats blooming brilliant!!! See there is always a silver lining ! Now you can have a lovely weekend relaxing in the sun love to you and Stephen Bridget x

Hi Gill
You must be over the moon,I am so glad for you both,never,never give up hope,we do not know what is round the corner:-)
It does make you think,were would you be,if the conversation about how much stem cells were taken last time?
Enjoy this lovely weather and have a lovely Easter .eve

Hi Jean that sounds like a lively clinic appointment , you should have had a bet on who was right!! Good news though which is great and the fact tht Franks health is good enough to consider an sct should he need it is great Hopefully it wont be for a very long time Have a wonderful weekend with your lovely new grandaughter , I cant think of a…[Read more]

Hi Jean

Hope Frank is right and it is a pulled muscle! But, whatever, I hope you can still stave off treatment.

One thing I can't quite work out is if chemo helps bone pain anyway as lots of folk on drugs still seem to have lots of pain. Perhaps someone can enlighten us.

Very best wishes to you both.

Mavis

Hi Gill.

What to say to you and Stephen? No words help and I feel sure it is worse for the care giver.

Yes, living in the moment is the best each of us can do with this horrible disease. Blessings as you try to do this. I have found the sunshine has helped in some ways, but has also reminded me of what I can't do!

All blessings to…[Read more]

Dear Gaye

Just as few from me too!
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Happy Easter.

Mavis

Happy Easter David hope you and your family have a lovely weekend love Bridget x

Hi Everyone

Yes I can confirm kent south coast is basking in the sun,hotter than Spain,West Coast of France even Cyprus.24 degrees here in sunny Deal no wind sea as calm as can be,when its like this you cannot beat it.
We had planned a few days break only up the road,but Slim not well enough,first time out yesterday for a week,but he did enjoy…[Read more]

Hi Min I am so sorry to hear you had a nightmare holiday !! What rotten timing to get a reaction , poor Peter Glad you got home safe and sound and can relax now though We have been promised sunshine all next week so you can enjoy your garden at least love Bridget x

Hi Dave good luck with your sct Hopefully you wont have too many unpleasent side-effects and be home before you know it It is definitely worth going through Hang in there love Bridget

Hi myelomawife that sounds horrible , it must be awful to see your husband like that and not be able to help Is there no other painkiller? I have never had oxycotin but I do have mst slow release tablets which work really well plus severidin for breakthrough pain If it were me I would ring the specialist nurse to talk it over with her and once…[Read more]

good on you girl,
Have a lovely evening eve

Haha so good to know we are all totally BONKERS!!!…[Read more]

Dear Gill

What can one say,sorry does not seem enough,The only thing I can say is I believe no one dies until they have had enough,and there seems to be acceptance of death,
If it is any help to you I try to look ,at are life together and think of all the good things we have done,and when i look back I consider that we are very lucky people,I…[Read more]

Hi Gill I replied about half hour ago but it has vanished , the first time those gremlins got me!! Blooming laptop fell asleep before I did last night but I am always up till at least 2 and often later The annoying thing is the pn in my feet gets me up about 6 am whether I want to or not . I do hope you can get some rest today and it looks like…[Read more]

Dear Gill I had to read your post 3 times before it sank in my god no wonder you are in pieces! I have been told no more sct either but no-one has suggested giving up hence the revlimid Surely we just carry on with the current and most suitable drug and there must be new trials coming up . Steven and I are the same age and it is so incredible to…[Read more]

Hi Chris these chest infections can be a pain to get rid of ! Arent daughters lovely and its always nice when they come to keep you company, not too sure how I always end up cooking thought!! No I am not in remission When I relapsed and was on Velcade for 3 months but it didnt work So now its fingers crossed Revlimid can do the trick , I am just…[Read more]