Hi Eve I am glad you feel better after getting that off your chest and thats one of the things thats so good about this site!! I do get frustrated by all the waiting around, the worst time is when you are waiting to go home from hospital and have to wait hours for drugs!! But now I try not to get too annoyed as it just makes me feel worse and…[Read more]

Jet

having hyercalcaemia is bad and with the akf,Once you were put on drip with in 24 hours you would have seen a good improvement,drinking lots of water to flush kidneys out helps skin.Water seems the key to having good effect on skin and hair flushing excess drugs out of kidneys is important.The bone infusion helps with the pain relief.there…[Read more]

Hi Mike and welcome , sounds like you were lucky being picked during tests for diabetes , so many of us have to wait a long time Good luck on the trial , you will be very well looked after just dont hesitate to let them know your side-effects if you get any, doses can always be altered to suit you Heres to your fiftieth , its the new 40 you know…[Read more]

Hi Mike

sorry you are joining this club,but you will find it an experience in it self. lots to look at and lots of info here takes sometime to take it in.
My partner is coming up to 3cycle of chemo 21days of ctd myeloma x1 trial.

This site has helped me a lot,some great people on here,have a good journey

Hi Eve I believe you are right in thinking the dose is determined by our doctors , based on individual circumstances. When I was diagnosed I had a massive tumour from my spine into my ribs therefore I was on 80mg dex twice a day for 3 weeks to reduce the tumour, thankfully I have not neede such large doses since However in both my relapses I…[Read more]

Hi Jet and Bridget

I do not think gender is the key,My partner on ctd takes 20 tablets 2mg dose 4 days running then repeats dose after 7 days.his chemo cycle is 21 days!!!!

has a good quality of life when on dex although a bit short tempered,takes a few days off dex and is very very tired,hot and cold,not wanting to eat.

The strange thing…[Read more]

Hi Jet the taste thing happened to me when I first had it Ihad been in hospital for 6 weeks and after my back surgery was on massive doses of dex, 80 mg twice daily, needless to say this made me very greedy!! Some friends were begged to bring me something savourywhich they did bless em!! Well I ate a whole bag of baby bells before they had sat…[Read more]

Hi Jet I am glad you find dex so exhillirating , unfortunately I am the polar opposite Apart from the insomnia I retain fluid and although I was on the same dose as you Ido have a hamster face The last few months being on Rev and Dex have been awful for the first 5 days of the cycle My whole body was painful and tender for days so now I am going…[Read more]

Hi Gill poor Stephen what a bummer!( oops soory bad pun!!). What about anti-sickness injections , might make it a little more bearable love Bridget x

Hi Gaye you are right I think but its a lot easier to live with it if you arent in pain, I do hope they come up with something soon for you . No you arent alone we have the volume up too , all adds to the atmosphere love Bridget x

Thankyou Gill its good to know somebody else has the same hobby as me !! Tee-Hee love Bridgetx

Hi Bluebird the there are quite a lot of people who had to wait months for a dignosis.In my case it was about a year , during which time 3 vertebrae were destroyed and it was only major reconstructio surgery that prevented me from being paralysed. The trouble is myeloma is a rare cancer and few doctors such as gps and junior hospital doctors will…[Read more]

Hi bluebird

my sympathy to all your family,My partner has mm,and it is hard to deal with,IT is rare only 3000 cases a year in Britain most doctors will only come across it once or twice in there working lives.the symptoms can be many illnesses,only bone marrow test will confirm 100% that it is mm.

Most people put it down to back…[Read more]

I am so sorry to hear about your brothers, it must be very hard to accept they arent there. Hang onto all those good memories you have which will be with forever and just take it a day at a time love Bridget

Hi Gill

LOL needed that,eve

Hi Sarah the last episode is on bbc i-player for a bit yet The new gets good reviews too Roll on autumn love Bridget x

Great positive news, Shirley!

Long may it remain so.

Eliz
XX
X

Dear Gaye that sounds hopeful I cant remember where Mr Malloy works but he is a specialist in myeloma fractures , I think it may be the Royal London though. Apparently when he looked at my x-ray there was a lot of head shaking .He couldnt believe how little of my spine was left!!So surgery would be too dangerous for me but I really hope they can…[Read more]

Dear Gaye it seems so unfair that you are still suffering an unbearable amount of pain despite the rt .I suppose it would be risky repeating the rt but has anyone suggested any other options ? Is surgery possible ? There must be something they can do and I hope they dont keep you hanging on too long Its a good job you are a tough old bird like…[Read more]