Hi Keith (Via Gill – aren't our carers wonderful!)

sorry to break into your post to reply to Debs.

Do hope your second half of Velcade plus goes more smoothly and gives you a good preparation for you eventual SCT.

All blessings to you both.

Mavis

Hi Debs

Hope you have told "them" about your suspicions of nueropothy as everything i have read, especially of US site, says tell folk soon as you might need to decrease dose.

PN is something I really worry about when I have to start treatment as I alreaady have some nerve damage.

Yes, I agree with you – use of PP numbers seems very…[Read more]

I echo Debs' comments.

You must be feeling angry as well as overwhelmingly sad. Life does seem very unfair at times, and it seems so unfair that MM takes so long to diagnose.

Please be assured of my prayers too.

Mavis

Hi I too confess to reading the mail but I will say in my defence it is only because its the only free one now!! It was a good story though love Bridget x

Hi Perkymite

At least you have a good chance of not being infertile LOL,Perkymite what a lovely nam on wards and upwards 😛

hello Mark

My partner has tumour on spine plus damage to spine.Stared straight away after test on Myeloma X1 Trials.He was given ctd side for test.Intensive pathway decided now on 36 day,has good days and bad just go with the flow.

Mark you will be having a big learning curve with this illness.We asked short medium or long term and was told…[Read more]

Hi Jean that was a good start to my day thankyou As the daughter of an irish woman I have grown up well used to irish humour ! love Bridgetx

Hi Mark sorry to hear your dad is going through a togh time As others have said ringing the myeloma helpline will be helpful for you , they are very knowledgeable should be able to answer your questions The survival rate is a difficult one as we all react diffrently to our illness but I read recently that 4 to 5 years is now expected but of…[Read more]

Hi Gill what a lovely , caring girl your grandaughter is , you must be so proud of her Thankyou for telling us about her sometimes we do need reminding that not all kids are like the ones featured in the daily mail!!love Bridget x

HI Gill
Your posting has just burst the dam that has been cracking for a long time.eve

Hi Ozzy welcome to the best support group there is .You have certainly had a very eventful year!Its hrad to say how long before you feel normal again as we are all different In my case it took almost 6 months but I think that was because I had major surgery a few months before my sct What I would advise is not to overdo it , your body will let you…[Read more]

Hi Shirley absoultely brilliant news!!!Long may it last Wont be long before you can put myeloma to the back of your mind and just enjoy life love Bridget x

Hi Shirley

I am so pleased for you. Long may the remission last and what great news for you and your sister. Both of you were brave to go down this line of treatment.

All blessings to you.

Mavis x

Hi Ian I was told that any remission after the first one is always shorter. I dont think it makes any difference if you have complete or partial remission. There was a trial going on last year,sorry cant remember what it was called, to look at using velcade before the sct in the hope of getting a longer second remission.I will try and remember to…[Read more]

Hi Eva thank you so much for sharing your wonderful photos, they are lovely Mind you I am also green with envy as China was one of my dreams , still theres time yet just got to win the lottery!! love Bridget x

Hi Jean

Yes Slim had been ill for more than 6 months,In a lot of pain,wanting to be sick,not eating,doctor put it down to tablets.Slims problem is he has a high pain threshold and an attitude a little bit of pain never hurt anybody.
I came across as a screaming banshie with attitude,not good when you know something is seriously wrong and…[Read more]

Hi Jean

I know its hard,but if Frank will not make his feelings known to doctor,you have to accept it is his life his choice.He wants to go on holiday!!If bone damage is there 14 days will not make any difference,If he starts wanting to be sick,then calcium is getting into blood stream its called hypercalciumer ,spelling might not be right but…[Read more]

Dear Dai I know how devastating it is to be told the beast is back and it seems very unfair to have had a relatively short remission. Once treatment starts it becomes easier to accept and just get on with it Go and do something nice this week and put mm to the back of your mind for a while Love to you and Janet Bridget x

Brilliant just what I needed on a Monday morning thankyou for making me laugh out loud Bridget