Hi meeuu

i needed that joke at five this morning still lol,have you any more ?

Hi Jean

Frank is so like Slim!!!!!,If Slim new about me talking on this web site he would,go off on one.He was a commando marine for 22 years,use to being obeyed the only good thing about him being so stubborn is it just might be the one thing that helps him on this journey.He is a fighter with the believe he can do it and in my own way admire…[Read more]

Hi Jean

Is a holiday going to make any difference to treatment?

I have one of those men,who would not listen to me,So he has stage three MM. he has all ways been like this,you are not going to change him End of the day his body his choice.
You must make your choice,do you go to Spain,and have a holiday may be the last for sometime or phone…[Read more]

Hi Jean please dont apologise for letting off steam we all need to do it at some point. I am glad Frank is going to get his pain checked out , if there is one thing I have learnt in the last 4 years its not to ignore a persistent pain Could you phone his pecialist nurse about it or would that upset Frank? My husband is equally stubborn where his…[Read more]

Hi Nigel you have just got to go with the flow! Have a nice day chilling on the sofa tomorrow is another day love Bridget

Dear Gaye I had to smile when I read your post as I have done something very similiar. Unfortunately mine was a complaint e-mail!! It didnt do any good either. I hope you are having a nice weekend , the sun is trying to shine here yippee love Bridget x

Just a note about the complan type of drinks, when he is out of hospital it is possible to get those on prescription, so worth mentioning to his doctor and insisting on them being presxribed when the time comes. I think they are quite expensive to buy so thought I'd mention it.

I am so glad to hear this, Amanda!

HI Jean

I am a new be to this site and also to mm,my partner is on his 29 day of cdt.He has had pain in his right side for a long time,he originally thought he had broken ribs.When it was first diagnosed the damage to the large bones were in shoulder blades and skull plus spine,these showed on skeleton exray and mri scan. ct scan has not been…[Read more]

Dear Gaye you have been in my thoughts a lot lately , I am so sorry to hear you havent yet hsd any relief after your rt You must be exhausted . Heres hoping you dont have to put up with it too much longer lots of love Bridget x

Hi Jen well after last week this week is so much better The soreness and tenderness lasted all week though .I am convinced it is dex in combination with revlimid that is the culprit .I am also on a reduced dose now ,15mg and the tiredness is less of a problem I know what you mean about the shakes , it really is annoying Still hopefully next month…[Read more]

Hi Sandra I was 52 when diagnosed and I was told that an allo was too dangerous for me , mind you it wasnt just based on age but rather the amount of damage already done. I was surprised as UCH London is a major teaching hospital and my local docs had suggested an allo as a possibility. David it was Shirley who had her allo recently love Bridget x

Hi Edo I suppose they are checking your dads blood results regularly? Last year my father-in-law became extremely confused and it was because his sodium levels were very low, it might be worth double checking they are watching out for that .I do hope things improve soon love Bridget

Hi Nigel sounds as if you are doing well on velcade long may it continue !! love Bridget

Hi Edo its possible your dad may just need a little longer to get used to the idea of having myeloma , the other infections etc must complicate things He does sound like a very strong minded person so hopefully the anti-depressants will be the jolt he needs. It is always hard to see our loved ones going through something like this and feel…[Read more]

I would suggest also ringing the Myeloma UK line to ask them about what help is available.

If it were me I would get it looked at.

Hi

I travel every year in motor home making are way through France then Spain and on to Portugal 'we have needed a doctor once in France and a dentist no problems just paid are 20euro,s and then paid for tablets.In Spain you can take your repeat prescription in to chemist and you can get it over counter we do this all the time as doctor,s are…[Read more]

Hi Amanda just want to add my welcome to you and your sister , and your mum too of course . I think its brilliant that you and your sister are keen to support your mum ,( I dont like the word carer either!), and I bet she is as proud as punh of both of you . I think Debs made a good point about this time without treatment will give you all time…[Read more]

Hi Gaye
I know i am fairly new on here and my partner Slim is only on his 23 day of ctd,I do not understand why everone seems to be on different pain relieve.I am concerned how much Slim takes although hospital is very pleased with progress he was taken off tramadol put on 10 mil of morphine a day plus paracetamol 500.This controls the pain to…[Read more]