Myeloma diary???
Where can I get one, Min?

Ha ha David good one to start the day !! love Bridget x

Dear Gaye how are you feeling ? Any news on your rt yet? I am now addicted to scandinavian tv police dramas on bbc 4 .Wallander got me hooked , even better than the Kenneth Branagh versionNow on Saturdays we watcg 2 hours of danish drama , The Killing I highly recommend it lots of characters that you care about and very well acted As long as…[Read more]

Hi Min I hope increasing the dose does the trick this time too In the past dex has caused water retention problems for me so I have Ferusomide at the ready Could your itching be caused by anxiety ? You have so much on your plate and the waiting for a date cant help , hopefully your lovely employers will let you go very quickly I hope you are doing…[Read more]

Dear Min thankyou thats very reassuring . I realised today I had slipped up in taking Revlimid at the same time as dex so tomorrow I will take it last thing and hope to sleep like a baby!! What dose of dex was Peter on? I am on 40mg for the first 4 days of each cycle and was told it may be possible to reduce it after a short while. Your new…[Read more]

Dear Min I was pleased to see on another post that Peter is feeling a bit better this week , long may it continue Yesterday was my first dose and it wasnt a great day ,I just felt yuk all day and very lethargic What surprised me was I didnt get a rush of energy from the 40mg of dex at all , I had hoped it would override any tiredness from the…[Read more]

Dear Jen

I'm very grateful for your answer, and so promptly. It gives me a much better prospective on things.

I feel for you having to cope on your own. I am very fortunate to have a husband who does all the cooking and fetching and carrying, as I also have chronic arthritis, which was what masked my MM in the beginning.

I do find this…[Read more]

Dear Jen

Just picked up this strand. Sorry I can't help you as I haven't had any chemo yet, but do hope you get the second dose yuou want as it agreed with you.

Can you help my learning? What was the first regime of chemo you had, which didn't agree with you? Also, what numbers of para protein jogged your Consultant into action on each…[Read more]

Hi David how very true Unfortunately politicians newly in power are like junior doctors and would have us believe they and their strategies are much better than anyone else before them Ha ha!! love Bridget x

Dear Sarah and Min you are both going to enjoy not working you will soon wonder how you ever found the time to work!! The extra time with the grandchildren alone makes it worthwhile . Min I am living on benefits now and a small work pension and my solution for the shopping is on-line The big 3 supermarkets are all pretty good and the delivery…[Read more]

Hi everyone yesterday I had a near perfect biopsy Heres how it went 9am I arrived and was met by the only nurse on the unit who inspires fear and dread in me !! Its not her fault she is a very large girl but she is brutal at putting cannulas in , on one occasion she made 6 attempts before giving But yesterday went like a dream , although she…[Read more]

Hi Min good to hear you are about to become a lady of leisure!! Haha I bet thats the last thing you will be but I am so glad you are going to get time to do all the things you want Have you got the cruise brochures yet? love Bridget x

Hi Keith I know what you mean the whole NHS reform issue is worrying me too Trouble is there wont be any mass rebellion against it people will just let it slide in but when it comes to trees they will be chaining themselves to those!! Gos arent equipped to deal with finances they should be given more time to spend with patients not lessAs you say…[Read more]

Hi David and Dai I have never been told I have Bence Jones yet my paraprotein levels bear no relation to any myeloma ativity My consultant uses the serum-free light chain test but even that was showing low values despite very significant myeloma progression and a large tumour My doctor now jokes I am the most difficult patient they have , at…[Read more]

Dear Min how very cunning I love the e-mail idea My technophobe husband can look up his dream team only because I put it in favourites but not much else When I have tried to show him a shopping site he ends up on a page which is nothing to do with the original and I then have about 20 pages to remove Maybe he will get the hang of it one day !I…[Read more]

Dear Sarah I hope you have had another call to put your mind at rest Oh to be young and fearless again love Bridget x

Dear Gaye and Min ( fellow saddos) I am with you on Holby City I love that programme , even if I do have to watch it on my laptop!! Mind you it is strange that we all spend a lot of time in hospitals yet still enjoy it , must be a deep seated psychlogical reason !! love Bridget x

Have you all noticed the comments used as examples on the home are from this thread !!Bet anyone new reading them would be very confused tee-hee love Bridget x

Hi Min poor Peter he must be feeling wretched I hope they can sort it out for him. I have been told to carry on taking Aciclovir and Lanzoparole whilst I am on Revlimid, from the way the conversation went I got the impression that is standard practice love Bridget x

Thankyou all for your lovely birthday wishes It has been a lovely daybut the children and grandchildren have just left and I am now officially knackered !!But worth it ! Hope you are all enjoying the evening love Bridget x