Hi I got one too and also assumed it was a site I joined ages ago .I havent responded nor will I Blooming nuisance why cant these people get a life!! Michelle I do hope your sons problem gets sorted very soon it must be so stressful for all of you love Bridget x

Dear Min thankyou I must admit to being a little nervous for no good reason . I think your point about the tumour throwing out myeloma cells is spot on especially as they areon our spine. Unfortunately I will have to travel to London each day , although its only 30 miles it can be a pain on the motorway, but I would rather come home each day than…[Read more]

Hi Michelle I am surprised this has not been offered to your mum before given that she has a lot of bone damage .I was on Parmidronate for over 3 years and it certainly helped with bone pain , I always knew when it was due The infusion is ok just means spending a couple of hours on a drip once a month , sometimes it can be a little painful for…[Read more]

Hi sorry you are having to go through this its an awful time but things do get easier as you all learn to cope with myeloma and its treatment. There were times in the beginning when I refused to give in to tiredness etc and pushed myself to the limit I was trying to hang on to old life , as perhaps your brother is too , but eventually you learn to…[Read more]

Hi Keith I was on velcade recently and my platelets did drop quite significantly Its monitored via the pre-chemo blood test and if its too low you will need to be given platelets through your line It is normally given on the ward with dex on the day of treatment and the day after . I was recently changed to Zometa after having Prmidronate for over…[Read more]

Sorry Gaye but now you have set me off giggling too !! The thought of prancing sylph like through the fields ( in Luton ???) is just too much to bear I will give up all thoughts of Wills as he is so fickle as to marry a young , beautiful ,rich girl ( cant think what he sees in her ) I now have a new plan to feed Jeff all the goodies then I can…[Read more]

Hi Tina so sorry to hear Patrick has had to come off Bendamustine .Heres hoping Pomalidomide does the trick for him and Gaye too , they are the trailblazers Love to you both and heres hoping this will be a good year for you both Bridget x

Hi Min thats brilliant those devices work really well for a lot of people My trouble is that apart from when I had pneumonia a couple of times I still enjoy smoking!! Having said that Jeff gave up last year and surprised even himself so I am sure there will be a day when I say enough is enough as I do often think about it . The thought of…[Read more]

Hi Shirley I am so glad you are home it feels great after a long spell in hospital Just take it easy and it wont be too long before you are able to dance the night away If you fancy one of my hats just e-mail me your address on bridget.rochfort@btinternet.com. I never had a wig , because I am so untidy it would have been wonky more often than…[Read more]

Hi David

How great to hear such good news from you. Do enjoy your "new" life.

Best wishes.

Mavis

Dear Shirley

So glad that you are home with your family. Do hope your recovery goes very well.

Love.

Mavis

Hi John

From another newcomer, welcome. I do hope that the "wait and see" phase lsts long!

I travelled on an ambulance today with an MM survivor of 11 years so all is not grim.

Best wishes.

Mavis

Good to hear you are back home and starting to feel better, Shirls!!

Take it slowly and rest whenever you need.

Hugs to you and your sister

{{{{{{{{Shirls}}}}}}}}

{{{{{{{{Trish}}}}}}}}

Eliz
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Dear Enormous Nettie (bet you arent really!!) If I had to endure snow and cold for as long as you have this year I would be eating even more so I think you definitely have the best reason . I am sure our Wills will be back at the first sign of the spring ( suitably tanned and trim of course!!) I am afraid to take the covers off the mirrors and…[Read more]

Hi Min those pesky chocolates are a pain when they sit there tempting us , so its really not our fault Like you I havent had to worry about dieting for a long while because I am a smoker, still !! Thats a chllenge for another day for me but your will power is impressive . I suppose half the country is feeling stuffed to the gills too so I am going…[Read more]

Hi David great news its always good to hear things have worked out well There will be no stopping you now —Tour de France??? Dont overdo it though rest when your body tells you to love Bridget x

Hi Sean sorry to hear you have to have more treatment so soon after your sct. I agree information gathering is probably the best step to take I would find out who your local Macmillan Benefits Advisor is through the hospital They are brilliant at negotiating all the forms etc and would be able to advise you about registering as disabled It really…[Read more]

Dear Gaye sorry you have been having a horrible time , like you I had forgotten how bad the back pain can be , I hope you get your RT soon Great news about the Pomalidomide hers hoping it will blast the lousy mm to smithereens so you wont have to worry about treatment for a long time Happy new year Gaye love Bridget x