Hi Jackie no wonder you are finding it difficult anybody would Its hard to give you an answer because myeloma is such an individual illness but a lot of us have ongoing pain due to bone damage .In my case I lost 2 vertebrae completely and had to have my spine stabilised with plates and rods , I have bone damage everywhere except my left arm…[Read more]

Hi John what a shame Cecilia is having problems with her blood counts, fingers crossed she will be able to have her next dose Often a short break does the trick .I had the same problem last year and I had GSCF injections in between doses which brought my bloods back up to a level where I could carry on with the treatment Its always good to hear…[Read more]

Hi Fiona I can understand how difficult it must be for you if your mum and dad dont want to talk about her myeloma, thats what this site is so good at , supporting you and your mum and dad if they want it so carry on posting please . Sometimes it takes a long while for the reality of living with an illness to become something manageable ,so give…[Read more]

Hi Tom hope you and Elaine have a great holiday , will recharge your batteries for the cold winter love Bridget x

Hi David and web team I had the same problem when trying to reply to Toms post Bridget

Hi Gavin I am not too sure I can help much with your decision as each of us is different . I did go for the chemo option , but in my case the damage was extensive and severe and I was stage 3 when diagnosed. If your general health is good and you havent too many related problems then you may choose to wait ,but I would discuss it further with your…[Read more]

Hi Min I am lucky as I have only been breathless a couple of times ,iy must be a bit scary.I do occasionally have nose bleeds , nothing dramatic and usually when my platelets are a bit low .Good news about the kyphoplasty ,I just wish it was suitable for me but not so My mum who is 84 frequently tells me off for lifting anything as she worries I…[Read more]

Thanks for all you are doing, Stuart!

And thank you for fixing it so we don't have to fill in the subject box unless we want to change it to something different.

Eliz

There is a topic in the 'Newcomer' section about how to add/change your profile picture if anyone is having problems doing it.

Hi Stuart a big thankyou to all of you the site is becoming even better each day!!Its great that you are taking our ideas on board too Thankyou again Bridget

Hi Michelle so pleased mum is doing well and still going to disney on ice , it will do her the world of good It does take a bit of time for the reality of mm to sink in but once you accept it you can put it to the back of your mind and get on with living Your mum sounds like a very strong minded lady which will keep her going Please pass on my…[Read more]

Hi John welcome to the crazy gang !!! I think the best thing about this site apart from the wonderful support we give each other is the humour and refusal to be ground down by this lousy illness Take care Bridget

Hi Nicki so glad to hear Sam is doing well please pass on my best wishes What a lovely photo of the two of you . Hopefully Sam wont have too many roblems , lack of appetite and and energy are fairly standard just make sure he doesnt overdo it when he gets home love Bridgetx

Hi Kevin you really have been through it this yearheres hoping that was your last hospital stay for a very long while !! Constipation is the bane of my life too but luckily it hasnt been bad enough to need to be admitted. Mst morphine is brilliant , makes life much more bearable Take it easy love Bridget

Hi Norman welcome to our gang sorry you find yourself here though As Min has said you will always get answers on here and all the support you need from people who understand and care . You definitely should not have to put up with pain ,I have extensive bone damage and take mst morphine and severodol for pain Pain relief is the first issue dealt…[Read more]

Hi ( sorry you didnt put your name ) trouble is myeloma is so individual its hard to compare treatments In my case my doctors take the whole package into account before suggesting treatment , which means scan results , bone marrow biopsy as well as paraprotein levels.If you feel comfortable with the consultant the perhaps asking the question…[Read more]

Hi Michelle great to hear mum is feeling a bit better My fingers and toes crossed for her to get to disney on ice love Bridget x

Hi Gill Iam so glad you made it !!This site wouldnt be the same without you love Bridget x