Hi David
It's beautiful at the moment sunny without wind.Eve

I am pleased this little thread has opened to a large one . Thanks to you Dai were would we be without you,

When Slim came out of remission, it just seemed if I could not be open about it and slipped it into some ones post.as Andy says you start not posting,it seems all doom and gloom,but this is the time you need opinions around you ,this…[Read more]

Helen

Given Elizabeth a buzz on Facebook. eve

Hi Dai

It's not that long ago I was saying to you,that you were going along one branch of the tree and Slim along another, how wrong could I be, trying t be positive,I could have lost him that first year and here we are 2 1/2 years later ,we did a lot of reminiscing last night,things we use to do !!!! Only out for 1 1/2 hours,he could only…[Read more]

Hi Everyone

Tonight Slim and myself went out for a meal, to celebrate our 2nd wedding anniversary ,this one occasion when the elephant should be locked away in the cupboard , 2 years ago getting married in ITU, no honey moon,the first anniversary Matty my grandson died two days before,plus Slim was in hospital waiting SCT. So everything low…[Read more]

Hi Helen

My feelings is hit it hard,Velcade worked for Slim,I would like to see maintenance with Velcade,they know for some it stops working!!!!,Slims on your tail,another BMB on 7 then wait for consultant on 24 for decision !!!

Good luck Helen get the Palmers cocoa butter formula and tell hubby massage every night,just do not tell him…[Read more]

Hi Sarah

Nice to know you look in and trying to get on with life,how many lambs this year,I bet you are glad to be in the south,those poor animals up north have taken a battering .

Grief does have to be done your own way, its a year on 24 for Matty,seems like yesterday,Slim came out of hospital,as it was all to much,next month it will be…[Read more]

Hi David

How I sympathise about your battle with pain. I am going through the same thing and my Consultant doesn't want me to take anti-inflamatories because of my kidneys. I have had to start again. Like you I have a goal in view. Visiting my daughter in Luxembourg in July – she is moving there with our only grandchildren so I have got to…[Read more]

Hi Ann

Sorry to go through your thread to reply to Peter!

Peter, did your Consulstant really say "cure"?!!!!

Do hope your pain soon subsides.

Love

Mavis

Dear Andy,

Like everyone else I am so pleased to hear your news. Keep getting those PPs down. Like Helen, although not a young one like her, I agree it's not all about SCTs these days.

Very best wishes to you and Steph have a great holiday.

Mavis

Hi Dai

I agree with you Post, but have you any ideas as to how we can take things forward. Do we need to ask the CO ofMUK to take this forward. The myeloma web site in America seems to have been able to make a real difference. Of course they have the advantage of scale, but still a Voluntary Org.

I have just responded to a…[Read more]

Hi Mandy

Welcome,,everyone on here will tell yo the Myelma journey is like a rollecoaster ride,mentally and physically ,everyone is different,plus add the equation of carers ,you get a real mixed bag!!!!,so every thing yu are feeling is normal.

It sounds if you are doing well,had a few blips,but on track,to help your back!!! Plus SCT,it…[Read more]

Hi Ellen

I'm sure lots of others will say the same, is it possible to send on our love and best wishes to Keith's wife, and I'm sure many prayers will be said for him too.

Mavis

Hi Helen

Sorry you had all this to cope with just when you were through the worst after SCT. Just hope it all turns out to be a blip. I remember once, on a pre-op session, being told that I had a silent heart attack. Carrying this worry for years, a later ECG showed no sign of it, so it shows they can get things wrong.

Love.

Mavis x

Hi Tony

I agree with Helen, your post was very encouraging. Has your MM had any bone involvement.
Yes, I know how we all worry about the numbers. I find it hard to get results too which is frustrating.

Very best wishes. Don't work your life away, but may your non treatment phase last for years.

Mavis

Hi Tom

Can I add my best wishes to everyone else's.

Very best wishes.

Mavis

Hi Ann

So sorry to have to welcome you to the Forum. As everyone has said, everyone's MM journey is different. If your blood shows Paraprotein, the level of PP at diagnosis, and the rate at which the readings rise will influence decisions about treatment regime. It might be useful to speak Myeloma UK Specialist Nurse with your specific…[Read more]

Hi Helen

I just remember when you were diagnosed,with a simple blood test,as a nurse you never saw it coming,you questioned yourself ,no matter who you are aches and pains are a part of life,it is looking back and thinking as a nurse,I should have seen that coming,or as Sue says hindsight .

I do think sometimes the patient can be to close ,I…[Read more]