Hi Jean

Pleased you are feeling better,you got to see the x rays,that's more than I did,it pays to ask questions or in my case be a pain in the a——–s.keep asking as Bridget use to say,knowledge is power.

Is you husband on trials???

Take your boots off its spring,if you cannot cope emotionally ,go to see doctor ,nothing worse than…[Read more]

Hi Sue and Helen

Slim has been much better with sleeping since we saw are own doctor,and if Slim sleeps I sleep.

I spoke to her,she recommended paracetamol on top of Oxycodone ,which has helped,he is always reluctant to increase drugs,this is a man who never had a prescription until he was sixty and that was a drug being pushed through…[Read more]

Hi Tom

Start eating ,you can eat for as much as you like,but keep it health, 😛 🙂 😎

Then it will not matter about weight loss,you must be feeling ,it's all bee worth while,lets hope you have a very long remission .Eve

Hi Dai and Tom

May I suggest a design problem with a onesie it concerns men and women,not so much kids as there bodies are flexible .you do need an a functional escape area,were you can quickly remove part of he garment,to attend to you normal body functions.

Love Eve

Hi Helen
I wish you well on your belated or should I say early birthday,I feel like that about Christmas Slim has nt been well enough to enjoy one for a few years,with that in mind why do I look forward to it !!!

We all need a little Mills and Boon,in are lives even the people who go uck!!,seriously does this heart problem worry you,or are…[Read more]

Hi Tanya

So glad you managed to be with your Dad,that is something no one can take away from you,be kind to yourself have no regrets,
You are a lucky lady,good husband kids and a kind mother in law,
Move on with your life and enjoy it.Eve

Hi Sue

I will keep trying,I do understand that even with the knowledge a PET scan brings,it will not change the outcome in Slims case,what they fail to understand,we need that knowledge !! I say this because we are busy planning are future, we are retired and intend to make the best of what ever time while Slim is reasonable fit.
I think they…[Read more]

Hi Ted

It is not strange,it sounds if they are checking your Kappa Light chains,they send a blood sample off takes a while for results to come back,then I'm a few months they will do the same again,this gives them extra knowledge to see how the Myeloma is advancing,it is just another marker to manage the stage of Myeloma.

Hope that…[Read more]

Hi Helen

Lets hope you find the key
Slims bloods are good,even kappa light chains showing rise,but on the 7 May it will be 3 months from the last BMB he will have another ,then the wait until 24 May for results. 10 percent three months ago.i wonder what it will be in 3months and 3 weeks.??? It is hard to just have BMB as marker,.

They…[Read more]

Hi Jo

You are always such an encouragement to everyone here. So sorry to here things haven't been going so well. Glad you are improving. Do hope things go well with Velcade, but sorry you have to have it. Hope your kidneys cope OK.

Lots of love.

Mavis xx

Hi Terry

You are in the shock stage,Slim only got 6 months between 100 day BMB and the next one,your life turns up side down,we thought he might get 2 years,so yes it,s a bit of a bummer,Helen says it bites you in the bum,when you do not expect it,I call it a shark attack.

Slim worries about me,why???.you cannot change the future ,I want…[Read more]

Hi

Welcome from me. Like everyone else I'd encourage you to continue with CDT. I had a sickness episode and was in hospital for a week and I had shingles, but six months on from the end of six cycles, and still in remission, I am glad I had it.

All best wishes.

Mavis

Hi Terry

We all know about MM,it is how you see it,and how it effects your life.!!!

Take mM out of the equation ,and do what ever Floats your Boat,my husband believes look after number one first,might seem selfish,but it works for him. As a wife and mother,I have different priorities ,??? Or is it just the fact that women are natural…[Read more]

Hi Charlie and Mary

SCT already seems like you were new on here not long,you had a few blips and now going forward for SCT.:-)

Well you have has good advice from above,it is hard work once there home,are you having it done in Southampton or Kings,try to get the SCT out of the way first,. My advice is do not bother to buy new clothes…[Read more]

Hi Sue and Helen

Thank you for information Sue,my daughter tells me the lesions on the shoulder blades will be very hard to define new lesions as it does not show up very well, he is having difficult taking clothiers off because of pain,the lesions on the skull are easier to spot,he has told us no more lesions on skull,this is when I approached…[Read more]

Hi Dai

Just a quick one have you seen the home page on drugs available !!!!!!!!

Hi Tom

Coach trip seems a good idea,as you say no driving,I drive now for long journeys.

We like the freedom a Motorhome gives you,but must admit will want to know we're the hospital is. I am determined this Myeloma is not going to take everything away from us. We will still take trips to France but only within a 24hr distance..
This is…[Read more]

Hi Andy and you to Vicky

Vicky we are all a bit paranoid ,that's why everyone says its like a roller coarser lots of highs and lows,you are both expecting to much,if you look at SCT as major surgery,then you would not expect to be fit. Andy Tom everyone else will say listen to your body.

Andy I am so pleased for you,it is an awful…[Read more]

Hi ladies

With Slim being deemed to be out of remission and will have to have BMB every time they need to know how is myeloma is doing,plus more blood .it has made us rethink are plans.

We thought France safe to go only to find your European Health card will only cover 79. Percent of emergence treatment, so getting caught out could be…[Read more]